Literature DB >> 31126909

Re-identifiability of genomic data and the GDPR: Assessing the re-identifiability of genomic data in light of the EU General Data Protection Regulation.

Mahsa Shabani1, Luca Marelli2,3.   

Abstract

Mesh：

Year:  2019        PMID： 31126909      PMCID： PMC6549023          DOI： 10.15252/embr.201948316

Source DB:  PubMed          Journal:  EMBO Rep        ISSN： 1469-221X            Impact factor:   8.807


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  7 in total

Review 1.  Rules for processing genetic data for research purposes in view of the new EU General Data Protection Regulation.

Authors:  Mahsa Shabani; Pascal Borry
Journal:  Eur J Hum Genet       Date:  2017-11-29       Impact factor: 4.246

2.  Scrutinizing the EU General Data Protection Regulation.

Authors:  Luca Marelli; Giuseppe Testa
Journal:  Science       Date:  2018-05-04       Impact factor: 47.728

Review 3.  Routes for breaching and protecting genetic privacy.

Authors:  Yaniv Erlich; Arvind Narayanan
Journal:  Nat Rev Genet       Date:  2014-05-08       Impact factor: 53.242

4.  Methods for the de-identification of electronic health records for genomic research.

Authors:  Khaled El Emam
Journal:  Genome Med       Date:  2011-04-27       Impact factor: 11.117

Review 5.  Genomics and privacy: implications of the new reality of closed data for the field.

Authors:  Dov Greenbaum; Andrea Sboner; Xinmeng Jasmine Mu; Mark Gerstein
Journal:  PLoS Comput Biol       Date:  2011-12-01       Impact factor: 4.475

6.  Public access to genome-wide data: five views on balancing research with privacy and protection.

Authors:  George Church; Catherine Heeney; Naomi Hawkins; Jantina de Vries; Paula Boddington; Jane Kaye; Martin Bobrow; Bruce Weir
Journal:  PLoS Genet       Date:  2009-10-02       Impact factor: 5.917

7.  From the principles of genomic data sharing to the practices of data access committees.

Authors:  Mahsa Shabani; Bartha Maria Knoppers; Pascal Borry
Journal:  EMBO Mol Med       Date:  2015-05       Impact factor: 12.137
  7 in total
  9 in total

1.  Toward better governance of human genomic data.

Authors:  Kieran C O'Doherty; Mahsa Shabani; Edward S Dove; Heidi Beate Bentzen; Pascal Borry; Michael M Burgess; Don Chalmers; Jantina De Vries; Lisa Eckstein; Stephanie M Fullerton; Eric Juengst; Kazuto Kato; Jane Kaye; Bartha Maria Knoppers; Barbara A Koenig; Spero M Manson; Kimberlyn M McGrail; Amy L McGuire; Eric M Meslin; Dianne Nicol; Barbara Prainsack; Sharon F Terry; Adrian Thorogood; Wylie Burke
Journal:  Nat Genet       Date:  2021-01       Impact factor: 41.307

2.  Using game theory to thwart multistage privacy intrusions when sharing data.

Authors:  Zhiyu Wan; Yevgeniy Vorobeychik; Weiyi Xia; Yongtai Liu; Myrna Wooders; Jia Guo; Zhijun Yin; Ellen Wright Clayton; Murat Kantarcioglu; Bradley A Malin
Journal:  Sci Adv       Date:  2021-12-10       Impact factor: 14.136

3.  BAMboozle removes genetic variation from human sequence data for open data sharing.

Authors:  Christoph Ziegenhain; Rickard Sandberg
Journal:  Nat Commun       Date:  2021-10-28       Impact factor: 14.919

4.  Religious Perspectives on Precision Medicine in Singapore.

Authors:  Hui Jin Toh; Angela Ballantyne; Serene Ai Kiang Ong; Chitra Sankaran; Hung Yong Tay; Malminderjit Singh; Raza Zaidi; Roland Chia; Sarabjeet Singh; Swami Samachittananda; You Guang Shi; Zhixia Tan; Tamra Lysaght
Journal:  Asian Bioeth Rev       Date:  2021-09-06

5.  STAT: a fast, scalable, MinHash-based k-mer tool to assess Sequence Read Archive next-generation sequence submissions.

Authors:  Kenneth S Katz; Oleg Shutov; Richard Lapoint; Michael Kimelman; J Rodney Brister; Christopher O'Sullivan
Journal:  Genome Biol       Date:  2021-09-20       Impact factor: 13.583

Review 6.  Sociotechnical safeguards for genomic data privacy.

Authors:  Zhiyu Wan; James W Hazel; Ellen Wright Clayton; Yevgeniy Vorobeychik; Murat Kantarcioglu; Bradley A Malin
Journal:  Nat Rev Genet       Date:  2022-03-04       Impact factor: 59.581

Review 7.  Use of Real-World Evidence to Drive Drug Development Strategy and Inform Clinical Trial Design.

Authors:  Simon Dagenais; Leo Russo; Ann Madsen; Jen Webster; Lauren Becnel
Journal:  Clin Pharmacol Ther       Date:  2021-11-28       Impact factor: 6.903

8.  Before and after enforcement of GDPR: Personal data protection requests received by Croatian Personal Data Protection Agency from academic and research institutions.

Authors:  Livia Puljak; Anamarija Mladinić; Ron Iphofen; Zvonimir Koporc
Journal:  Biochem Med (Zagreb)       Date:  2020-08-05       Impact factor: 2.313

9.  COVID-19 and the boundaries of open science and innovation: Lessons of traceability from genomic data sharing and biosecurity.

Authors:  Jusaku Minari; Go Yoshizawa; Nariyoshi Shinomiya
Journal:  EMBO Rep       Date:  2020-10-21       Impact factor: 8.807
  9 in total

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