Literature DB >> 31098623

Co-production of a pictorial recovery tool for people with psycho-social disability informed by a participatory action research approach-a qualitative study set in India.

Kaaren Mathias1, Pooja Pillai2, Rakhal Gaitonde3, Kakul Shelly2, Sumeet Jain4.   

Abstract

Mental health problems are recognized as a leading cause of disability and have seen increased allocations of resources and services globally. There is a growing call for solutions supporting global mental health and recovery to be locally relevant and built on the knowledge and skills of people with mental health problems, particularly in low-income countries. Set in Dehradun district, North India, this study aimed to describe first, the process of co-production of a visual tool to support recovery for people affected by psycho-social disability; second, the key outputs developed and third, critical reflection on the process and outputs. The developmental process consisted of participatory action research and qualitative methods conducted by a team of action researchers and an experts by experience (EBE) group of community members. The team generated eight domains for recovery under three meta-domains of normalcy, belonging and contributing and the ensuing recovery tool developed pictures of activities for each domain. Challenges to using a participatory and emancipatory process were addressed by working with a mentor experienced in participatory methods, and by allocating time to concurrent critical reflection on power relationships. Findings underline the important contribution of an EBE group demonstrating their sophisticated and locally valid constructions of recovery and the need for an honest and critically reflective process in all co-productive initiatives. This study generated local conversations around recovery that helped knowledge flow from bottom-to-top and proposes that the grass-root experiences of participants in a disadvantaged environment are needed for meaningful social and health policy responses.
© The Author(s) 2019. Published by Oxford University Press. All rights reserved. For permissions, please email: journals.permissions@oup.com.

Entities:  

Keywords:  Asia; community-based participatory research; mental health; qualitative methods

Mesh:

Year:  2020        PMID: 31098623     DOI: 10.1093/heapro/daz043

Source DB:  PubMed          Journal:  Health Promot Int        ISSN: 0957-4824            Impact factor:   2.483


  3 in total

1.  Power analysis in health policy and systems research: a guide to research conceptualisation.

Authors:  Stephanie M Topp; Marta Schaaf; Veena Sriram; Kerry Scott; Sarah L Dalglish; Erica Marie Nelson; Rajasulochana Sr; Arima Mishra; Sumegha Asthana; Rakesh Parashar; Robert Marten; João Gutemberg Quintas Costa; Emma Sacks; Rajeev Br; Katherine Ann V Reyes; Shweta Singh
Journal:  BMJ Glob Health       Date:  2021-11

Review 2.  Participatory mental health interventions in low-income and middle-income countries: a realist review protocol.

Authors:  Cheyann J Heap; Hannah Maria Jennings; Kaaren Mathias; Himal Gaire; Farirai Gumbonzvanda; Nyaradzayi Gumbonzvanda; Garima Gupta; Sumeet Jain; Bidya Maharjan; Rakchhya Maharjan; Sujen Man Maharjan; Pashupati Mahat; Pooja Pillai; Martin Webber; Jerome Wright; Rochelle Burgess
Journal:  BMJ Open       Date:  2022-04-07       Impact factor: 2.692

3.  The Effectiveness of a Multi-Pronged Psycho-Social Intervention Among People With Mental Health and Epilepsy Problems - A Pre-Post Prospective Cohort Study Set in North India.

Authors:  Kaaren Mathias; Dale Corcoran; Pooja Pillai; Smita Deshpande; Miguel San Sebastian
Journal:  Int J Health Policy Manag       Date:  2021-09-01
  3 in total

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