Literature DB >> 31069106

'I'd like to think you could trust the government, but I don't really think we can': Australian women's attitudes to and experiences of My Health Record.

Deborah Lupton1.   

Abstract

The Australian government's Australian Digital Health Agency is working towards its goal of enrolling every Australian in My Health Record, its national electronic health record system. This article reports findings from a qualitative project involving interviews and focus groups with Australian women about their use of digital health across the range of technologies available to them, including their attitudes to and experiences of My Health Record. A feminist new materialism perspective informed the project, working to surface the affordances, affective forces and relational connections that contributed to the opening up or closing off potential agential capacities when people come together with digitised systems such as My Health Record. These findings demonstrate that people's personal experiences and feelings, the actions of others such as the agencies responsible for system implementation and function, their healthcare providers and broader social, cultural, technological and political factors are important in shaping their knowledge, interest in and acceptance of an electronic health record system. Even among this group of participants, who were experienced and active in finding and engaging with health information online, uncertainty and a lack of awareness of and interest in My Health Record were evident among many. Affordances such as technical difficulties were major barriers to enrolling and using the system successfully. No participants had yet found any benefit or use for it. Affective forces such as lack of trust and faith in the Australian government's general technological expertise and concerns about data privacy and security were also key in many participants' accounts.

Entities:  

Keywords:  Australia; My Health Record; digital health; digital sociology; electronic patient records; feminist new materialism; women

Year:  2019        PMID: 31069106      PMCID: PMC6492356          DOI: 10.1177/2055207619847017

Source DB:  PubMed          Journal:  Digit Health        ISSN: 2055-2076


  26 in total

1.  Digital technology use among disadvantaged Australians: implications for equitable consumer participation in digitally-mediated communication and information exchange with health services.

Authors:  Lareen Newman; Kate Biedrzycki; Fran Baum
Journal:  Aust Health Rev       Date:  2012-05       Impact factor: 1.990

2.  'Never heard of it'- understanding the public's lack of awareness of a new electronic patient record.

Authors:  Tanja Bratan; Katja Stramer; Trisha Greenhalgh
Journal:  Health Expect       Date:  2010-12       Impact factor: 3.377

3.  Ethical questions must be considered for electronic health records.

Authors:  Merle Spriggs; Michael V Arnold; Christopher M Pearce; Craig Fry
Journal:  J Med Ethics       Date:  2012-05-09       Impact factor: 2.903

4.  A qualitative study of Australians' opinions about personally controlled electronic health records.

Authors:  Elin C Lehnbom; Andrew McLachlan; Jo-Anne E Brien
Journal:  Stud Health Technol Inform       Date:  2012

5.  Comparison of user groups' perspectives of barriers and facilitators to implementing electronic health records: a systematic review.

Authors:  Carrie Anna McGinn; Sonya Grenier; Julie Duplantie; Nicola Shaw; Claude Sicotte; Luc Mathieu; Yvan Leduc; France Légaré; Marie-Pierre Gagnon
Journal:  BMC Med       Date:  2011-04-28       Impact factor: 8.775

6.  Introducing a nationally shared electronic patient record: case study comparison of Scotland, England, Wales and Northern Ireland.

Authors:  Trisha Greenhalgh; Libby Morris; Jeremy C Wyatt; Gwyn Thomas; Katey Gunning
Journal:  Int J Med Inform       Date:  2013-02-21       Impact factor: 4.046

7.  Adoption, non-adoption, and abandonment of a personal electronic health record: case study of HealthSpace.

Authors:  Trisha Greenhalgh; Susan Hinder; Katja Stramer; Tanja Bratan; Jill Russell
Journal:  BMJ       Date:  2010-11-16

8.  Improving access to electronic health records for people with intellectual disability: a qualitative study.

Authors:  Kate van Dooren; Nick Lennox; Madeline Stewart
Journal:  Aust J Prim Health       Date:  2013       Impact factor: 1.307

9.  Patients' attitudes to the summary care record and HealthSpace: qualitative study.

Authors:  Trisha Greenhalgh; Gary W Wood; Tanja Bratan; Katja Stramer; Susan Hinder
Journal:  BMJ       Date:  2008-05-29

10.  Introduction of shared electronic records: multi-site case study using diffusion of innovation theory.

Authors:  Trisha Greenhalgh; Katja Stramer; Tanja Bratan; Emma Byrne; Yara Mohammad; Jill Russell
Journal:  BMJ       Date:  2008-10-23
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  2 in total

Review 1.  Understanding digital health ecosystem from Australian citizens' perspective: A scoping review.

Authors:  Abraham Oshni Alvandi; Chris Bain; Frada Burstein
Journal:  PLoS One       Date:  2021-11-15       Impact factor: 3.240

2.  Digital Health Literacy as a Predictor of Awareness, Engagement, and Use of a National Web-Based Personal Health Record: Population-Based Survey Study.

Authors:  Christina Cheng; Emma Gearon; Melanie Hawkins; Crystal McPhee; Lisa Hanna; Roy Batterham; Richard H Osborne
Journal:  J Med Internet Res       Date:  2022-09-16       Impact factor: 7.076

  2 in total

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