Literature DB >> 31063275

Rare Disease Registries: Steps Forward.

Charlie Strange1.   

Abstract

Keywords:  alpha-1 antitrypsin deficiency; bronchiectasis; ciliary; immunodeficiency; registry

Year:  2019        PMID： 31063275      PMCID： PMC6596431          DOI： 10.15326/jcopdf.6.2.2019.0133

Source DB:  PubMed          Journal:  Chronic Obstr Pulm Dis        ISSN： 2372-952X


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  3 in total

1.  Adult Patients With Bronchiectasis: A First Look at the US Bronchiectasis Research Registry.

Authors:  Timothy R Aksamit; Anne E O'Donnell; Alan Barker; Kenneth N Olivier; Kevin L Winthrop; M Leigh Anne Daniels; Margaret Johnson; Edward Eden; David Griffith; Michael Knowles; Mark Metersky; Matthias Salathe; Byron Thomashow; Gregory Tino; Gerard Turino; Betsy Carretta; Charles L Daley
Journal:  Chest       Date:  2016-11-23       Impact factor: 9.410

2.  CT-Definable Subtypes of Chronic Obstructive Pulmonary Disease: A Statement of the Fleischner Society.

Authors:  David A Lynch; John H M Austin; James C Hogg; Philippe A Grenier; Hans-Ulrich Kauczor; Alexander A Bankier; R Graham Barr; Thomas V Colby; Jeffrey R Galvin; Pierre Alain Gevenois; Harvey O Coxson; Eric A Hoffman; John D Newell; Massimo Pistolesi; Edwin K Silverman; James D Crapo
Journal:  Radiology       Date:  2015-05-11       Impact factor: 11.105

3.  The Clinical Features of Bronchiectasis Associated with Alpha-1 Antitrypsin Deficiency, Common Variable Immunodeficiency and Primary Ciliary Dyskinesia--Results from the U.S. Bronchiectasis Research Registry.

Authors:  Edward Eden; Radmila Choate; Alan Barker; Doreen Addrizzo-Harris; Timothy R Aksamit; Charles L Daley; M Leigh Anne Daniels; Angela DiMango; Kevin Fennelly; David E Griffith; Margaret M Johnson; Michael R Knowles; Mark L Metersky; Peadar G Noone; Anne E O'Donnell; Kenneth N Olivier; Matthias A Salathe; Andreas Schmid; Byron Thomashow; Gregory Tino; Gerard M Turino; Kevin L Winthrop
Journal:  Chronic Obstr Pulm Dis       Date:  2019-04-09
  3 in total

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