Alba Realpe1, Farah Elahi1, Sandra Bucci2,3, Max Birchwood1, Ivo Vlaev4, David Taylor5, Andrew Thompson1. 1. Mental Health and Wellbeing Division, Warwick Medical School, University of Warwick, Coventry, UK. 2. Division of Psychology and Mental Health, School of Health Sciences, Faculty of Biology, Medicine and Health, Manchester Academic Health Sciences, Manchester, UK. 3. Greater Manchester Mental Health NHS Foundation Trust, Manchester, UK. 4. Behavioural Science Group, Warwick Business School, University of Warwick, Coventry, UK. 5. Department of Surgery & Cancer, Faculty of Medicine, Imperial College London, London, UK.
Abstract
AIMS: Co-design implies genuine partnership in the generation of knowledge between service users and researchers. Service user involvement in research has been encouraged in government policy, but it is rarely achieved, especially at trial initial stages. Co-designed with service users, we adapted existing manualised social cognition intervention for people with a first episode of psychosis to a virtual world environment. METHODS: We invited a group of young people who have used mental health services to co-design a virtual environment to deliver an accessible social cognition intervention to a hard to engage service user group. We used an iterative process with young service users and the design team that included developing initial ideas, creating a prototype and testing the virtual world. RESULTS: Twenty young service users of local mental healthcare services provided feedback on the design and delivery of the intervention. Reflecting the demographic of the sample, young people felt the virtual environment should be familiar, urban spaces, akin to therapy rooms or classrooms they have used in real-life situations rather than non-traditional therapy spaces that were initially proposed. CONCLUSION: The co-design process led to the development of a specific design, approach and protocol to be tested in a proof-of-concept trial. Young service users were integral to an agile and iterative design. Technological innovations should be routinely co-designed and co-produced if they are to realise their potential to deliver acceptable and affordable mental health interventions.
AIMS: Co-design implies genuine partnership in the generation of knowledge between service users and researchers. Service user involvement in research has been encouraged in government policy, but it is rarely achieved, especially at trial initial stages. Co-designed with service users, we adapted existing manualised social cognition intervention for people with a first episode of psychosis to a virtual world environment. METHODS: We invited a group of young people who have used mental health services to co-design a virtual environment to deliver an accessible social cognition intervention to a hard to engage service user group. We used an iterative process with young service users and the design team that included developing initial ideas, creating a prototype and testing the virtual world. RESULTS: Twenty young service users of local mental healthcare services provided feedback on the design and delivery of the intervention. Reflecting the demographic of the sample, young people felt the virtual environment should be familiar, urban spaces, akin to therapy rooms or classrooms they have used in real-life situations rather than non-traditional therapy spaces that were initially proposed. CONCLUSION: The co-design process led to the development of a specific design, approach and protocol to be tested in a proof-of-concept trial. Young service users were integral to an agile and iterative design. Technological innovations should be routinely co-designed and co-produced if they are to realise their potential to deliver acceptable and affordable mental health interventions.
Authors: John Torous; Sandra Bucci; Imogen H Bell; Lars V Kessing; Maria Faurholt-Jepsen; Pauline Whelan; Andre F Carvalho; Matcheri Keshavan; Jake Linardon; Joseph Firth Journal: World Psychiatry Date: 2021-10 Impact factor: 49.548
Authors: Elena Rodriguez-Villa; Abhijit R Rozatkar; Mohit Kumar; Vikram Patel; Ameya Bondre; Shalini S Naik; Siddharth Dutt; Urvakhsh M Mehta; Srilakshmi Nagendra; Deepak Tugnawat; Ritu Shrivastava; Harikeerthan Raghuram; Azaz Khan; John A Naslund; Snehil Gupta; Anant Bhan; Jagadisha Thirthall; Prabhat K Chand; Tanvi Lakhtakia; Matcheri Keshavan; John Torous Journal: Glob Ment Health (Camb) Date: 2021-08-24
Authors: Imogen Bell; Roos M C A Pot-Kolder; Stephen J Wood; Barnaby Nelson; Nicola Acevedo; Alexandra Stainton; Katie Nicol; James Kean; Shayden Bryce; Cali F Bartholomeusz; Amity Watson; Orli Schwartz; Rothanthi Daglas-Georgiou; Courtney C Walton; Donel Martin; Magenta Simmons; Isabel Zbukvic; Andrew Thompson; Jennifer Nicholas; Mario Alvarez-Jimenez; Kelly Allott Journal: Schizophr Res Cogn Date: 2022-03-10
Authors: Pinar Thorn; Nicole Tm Hill; Michelle Lamblin; Zoe Teh; Rikki Battersby-Coulter; Simon Rice; Sarah Bendall; Kerry L Gibson; Summer May Finlay; Ryan Blandon; Libby de Souza; Ashlee West; Anita Cooksey; Joe Sciglitano; Simon Goodrich; Jo Robinson Journal: JMIR Ment Health Date: 2020-05-11
Authors: Andrew Thompson; Farah Elahi; Alba Realpe; Max Birchwood; David Taylor; Ivo Vlaev; Fiona Leahy; Sandra Bucci Journal: Front Psychiatry Date: 2020-03-25 Impact factor: 4.157