Literature DB >> 30872922

Evaluation of quality of life of healthy siblings of children with chronic disease.

Meltem Dinleyici1, Figen Şahin Dağlı2.   

Abstract

The quality of life determination of children with chronic disease is closely related to treatment success. Quality of life assessment studies revealed that it was not limited to the individual, the quality of life of the family members also had to be assessed. Along with the child being diagnosed with chronic illness, some changes occur in the family structure, and in family roles. Quality of life assessment studies in healthy siblings generally indicate a global influence. These children live in different senses such as closure, aggression, depression, anxiety, guilt, and isolation. Psychosocial impact (short or long-term) of healthy siblings have been associated with disease type, severity, disease duration, age, sex, and ability to cope. Further comprehensive studies among healthy siblings of children with chronic disease about quality of life are needed. Building support groups (especially family support groups) to express feelings and thoughts freely for healthy siblings can positively affect the well-being and self-esteem of the child.

Entities:  

Keywords:  Chronic disease; healthy sibling; quality of life

Year:  2018        PMID: 30872922      PMCID: PMC6408193          DOI: 10.5152/TurkPediatriArs.2018.6778

Source DB:  PubMed          Journal:  Turk Pediatri Ars


  4 in total

1.  Instruments Measuring Self-Care in Children and Young Adults With Chronic Conditions: A Systematic Review.

Authors:  Valentina Biagioli; Giuseppina Spitaletta; Valeria Kania; Rachele Mascolo; Orsola Gawronski; Annachiara Liburdi; Giulia Manzi; Michele Salata; Ercole Vellone; Emanuela Tiozzo; Immacolata Dall'Oglio
Journal:  Front Pediatr       Date:  2022-03-28       Impact factor: 3.418

2.  Health-related quality of life amongst children with chronic kidney disease in Malaysia: performance of the Bahasa Melayu version of the PedsQL 3.0 ESRD Module : (PedsQL 3.0 VerBATIM: version in Bahasa Melayu. Translated for use in Malaysia).

Authors:  Kamila Abu Bakar; Nor Asiah Muhamad; Mohamad Alwi Sarpin; Syaniza Shaharudin; Sangeet Sidhu; Suet Li Yap; Tengku Hasnita Tengku Hussain; Hai Liang Tan; Fen Ni Ong; Wen Chian Gan; Mohammad Ikram Ilias; Juliana Othman; Caroline Siew Yin Eng
Journal:  Pediatr Nephrol       Date:  2022-10-22       Impact factor: 3.651

3.  Children as Next of Kin in Higher Education: An Exploratory Cross-Sectional Study Among Health, Social Care, and Teacher Education Programs.

Authors:  Kari Almendingen; Anne Kristine Bergem; Bente Sparboe-Nilsen; Lisbeth Gravdal Kvarme; Jūratė Šaltytė Benth
Journal:  J Multidiscip Healthc       Date:  2021-11-27

Review 4.  Self-Care in Pediatric Patients with Chronic Conditions: A Systematic Review of Theoretical Models.

Authors:  Immacolata Dall'Oglio; Giulia Gasperini; Claudia Carlin; Valentina Biagioli; Orsola Gawronski; Giuseppina Spitaletta; Teresa Grimaldi Capitello; Michele Salata; Valentina Vanzi; Gennaro Rocco; Emanuela Tiozzo; Ercole Vellone; Massimiliano Raponi
Journal:  Int J Environ Res Public Health       Date:  2021-03-28       Impact factor: 3.390

  4 in total

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