| Literature DB >> 35419323 |
Valentina Biagioli1, Giuseppina Spitaletta1, Valeria Kania2, Rachele Mascolo3, Orsola Gawronski1, Annachiara Liburdi1, Giulia Manzi1, Michele Salata4, Ercole Vellone5, Emanuela Tiozzo1, Immacolata Dall'Oglio1.
Abstract
Children and young adults (CYAs) with chronic conditions need to engage in self-care to improve their quality of life. This study aimed to retrieve the literature on instruments to assess self-care in CYAs living with chronic conditions and evaluate the psychometric proprieties of the instruments retrieved. A systematic literature review was conducted on six databases to identify peer-reviewed papers that described or used an evaluation instrument of self-care in CYAs with chronic conditions. Twenty-three articles describing 11 instruments of self-care were identified. Five instruments (45.45%) were developed for specific diseases, while six (54.54%) for various chronic illnesses. Most of the instruments were focused on treatment adherence within self-care maintenance (i.e., behaviors to maintain illness stability), excluding the monitoring of clinical parameters or the management of exacerbations. This review provides an overview of available instruments that measure self-care in CYAs with chronic conditions, which health professionals could use for patient education.Entities:
Keywords: adolescent; chronic disease; instruments; parent; pediatric; self-care; self-management; young adult
Year: 2022 PMID： 35419323 PMCID： PMC8995847 DOI： 10.3389/fped.2022.832453
Source DB: PubMed Journal: Front Pediatr ISSN： 2296-2360 Impact factor: 3.418