Literature DB >> 30818981

'I definitely feel more in control of my life': The perspectives of young autistic people and their parents on emerging adulthood.

Serena Cribb1, Lorcan Kenny2, Elizabeth Pellicano3.   

Abstract

Long-term outcomes studies often paint a discouraging picture of the lives lived by autistic adults. Yet, their outcomes are often measured against normative markers of traditional adult roles, which may not apply to autistic people making the transition to adulthood. Here, we investigated the transition experiences of a group of young autistic people who were followed from childhood. Twenty-six young people and their parents (n = 28) participated in semistructured interviews on the process of transition and their aspirations for the future. Parents often voiced serious concerns about the ongoing support their children would require and the severe lack of services designed to support them as adults. Yet, overall, young people reported feeling more in control of their own lives, including developing a sense of identity and personal autonomy, both of which may be rooted in young autistic people's executive skills and their ability to develop and maintain trusting relationships with others - two potential candidate areas for targeted support. These results call into question whether the traditional standards to which we often hold young autistic people are developmentally appropriate and suggest that the pressures of striving towards more normative ways of engaging in the world may be detrimental to their well-being.

Entities:  

Keywords:  autism; development; emerging adulthood; longitudinal; outcomes; qualitative

Year:  2019        PMID: 30818981     DOI: 10.1177/1362361319830029

Source DB:  PubMed          Journal:  Autism        ISSN: 1362-3613


  12 in total

1.  "Peas in a pod": Oral History Reflections on Autistic Identity in Family and Community by Late-Diagnosed Adults.

Authors:  Rozanna Lilley; Wenn Lawson; Gabrielle Hall; Joanne Mahony; Hayley Clapham; Melanie Heyworth; Samuel Arnold; Julian Trollor; Michael Yudell; Elizabeth Pellicano
Journal:  J Autism Dev Disord       Date:  2022-07-14

2.  Autistic Adolescents' and Their Parents' Visions for the Future: How Aligned are They?

Authors:  Anne V Kirby; Marissa L Diener; Evan E Dean; Amber Nowell Darlington; Alyssa Myers; Jarrett Henderson
Journal:  Autism Adulthood       Date:  2021-09-22

3.  Patterns of Continuity and Change in the Psychosocial Outcomes of Young Autistic People: a Mixed-Methods Study.

Authors:  Elizabeth Pellicano; Serena Cribb; Lorcan Kenny
Journal:  J Abnorm Child Psychol       Date:  2020-02

4.  The Role of Acceptance in the Transition to Adulthood: A Multi-Informant Comparison of Practitioners, Families, and Youth with Autism.

Authors:  Gloria K Lee; Sarah L Curtiss; Hung Jen Kuo; Jina Chun; Heekyung Lee; Danielle D Nimako
Journal:  J Autism Dev Disord       Date:  2021-05-03

5.  How should we support young people with ASD and mental health problems as they navigate the transition to adult life including access to adult healthcare services.

Authors:  Christopher King; Hannah Merrick; Ann Le Couteur
Journal:  Epidemiol Psychiatr Sci       Date:  2020-01-09       Impact factor: 6.892

6.  Documenting the untold histories of late-diagnosed autistic adults: a qualitative study protocol using oral history methodology.

Authors:  Elizabeth Pellicano; Wenn Lawson; Gabrielle Hall; Joanne Mahony; Rozanna Lilley; Catherine Davis; Samuel Arnold; Julian Trollor; Michael Yudell
Journal:  BMJ Open       Date:  2020-05-30       Impact factor: 2.692

7.  "We couldn't think in the box if we tried. We can't even find the damn box": A qualitative study of the lived experiences of autistic adults and relatives of autistic adults.

Authors:  Tracy L Finch; Joan Mackintosh; Alex Petrou; Helen McConachie; Ann Le Couteur; Deborah Garland; Jeremy R Parr
Journal:  PLoS One       Date:  2022-03-14       Impact factor: 3.240

Review 8.  Annual Research Review: Shifting from 'normal science' to neurodiversity in autism science.

Authors:  Elizabeth Pellicano; Jacquiline den Houting
Journal:  J Child Psychol Psychiatry       Date:  2021-11-03       Impact factor: 8.265

Review 9.  A capabilities approach to understanding and supporting autistic adulthood.

Authors:  Elizabeth Pellicano; Unsa Fatima; Gabrielle Hall; Melanie Heyworth; Wenn Lawson; Rozanna Lilley; Joanne Mahony; Marc Stears
Journal:  Nat Rev Psychol       Date:  2022-09-05

10.  Comparing the Executive Function Ability of Autistic and Non-autistic Adolescents with a Manualised Battery of Neuropsychological Tasks.

Authors:  Lorcan Kenny; Anna Remington; Elizabeth Pellicano
Journal:  J Autism Dev Disord       Date:  2021-07-20
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