Rachel A Hadler1, Nathan E Goldstein, David B Bekelman, Barbara Riegel, Larry A Allen, Robert M Arnold, Matthew E Harinstein, Dio Kavalieratos. 1. Rachel A. Hadler, MD Department of Anesthesiology and Critical Care, Perelman School of Medicine, University of Pennsylvania, Philadelphia. Nathan E. Goldstein, MD Brookdale Department of Geriatrics and Palliative Medicine, Icahn School of Medicine at Mount Sinai, New York, New York. David B. Bekelman, MD, MPH Division of General Internal Medicine, Department of Medicine, University of Colorado School of Medicine, Aurora. Barbara Riegel, PhD, RN, FAAN, FAHA School of Nursing, University of Pennsylvania, Philadelphia. Larry A. Allen, MD, MHS Division of Cardiology, Department of Medicine, University of Colorado School of Medicine, University of Colorado Hospital Cardiac and Vascular Center, Aurora. Robert M. Arnold, MD, FAAHPM Section of Palliative Care and Medical Ethics, Department of Medicine, University of Pittsburgh, Pennsylvania. Matthew E. Harinstein, MD, FACC Division of Cardiology, Department of Medicine, University of Pittsburgh Medical Center, Pennsylvania. Dio Kavalieratos, PhD Section of Palliative Care and Medical Ethics, Department of Medicine, University of Pittsburgh, Pennsylvania.
Abstract
BACKGROUND: Although cardiology organizations recommend early introduction of palliative care for patients with heart failure (HF), integration has remained challenging, particularly in patients with cardiac devices such as cardiac implantable electronic devices and left ventricular assist devices. Study authors suggest that patients often have limited and erroneous understanding of these devices and their implications for future care. OBJECTIVE: The aim of this study was to assess perceptions of cardiac devices in patients with HF and how these perceptions impacted advance care planning and future expectations. METHODS: This study used qualitative semistructured interviews with 18 community-dwelling patients with New York Heart Association stage II to IV HF. RESULTS: We interviewed 18 patients (mean ejection fraction, 38%; mean age, 64 years; 33% female; 83% white; 39% New York Heart Association class II, 39% class III, and 22% class IV). All had a cardiac implantable electronic device (6% permanent pacemaker, 56% implantable cardioverter-defibrillator, 28% biventricular implantable cardioverter-defibrillator); 11% had left ventricular assist devices. Patients with devices frequently misunderstood the impact of their device on cardiac function. A majority expressed the belief that the device would forestall further deterioration, regardless of whether this was the case. This anticipation of stability was often accompanied by the expectation that emerging technologies would continue to preempt decline. Citing this faith in technology, these patients frequently saw limited value in advance care planning. CONCLUSIONS: In our sample, patients with cardiac devices overestimated the impact of their devices on preventing disease progression and death and deprioritized advance care planning as a result.
BACKGROUND: Although cardiology organizations recommend early introduction of palliative care for patients with heart failure (HF), integration has remained challenging, particularly in patients with cardiac devices such as cardiac implantable electronic devices and left ventricular assist devices. Study authors suggest that patients often have limited and erroneous understanding of these devices and their implications for future care. OBJECTIVE: The aim of this study was to assess perceptions of cardiac devices in patients with HF and how these perceptions impacted advance care planning and future expectations. METHODS: This study used qualitative semistructured interviews with 18 community-dwelling patients with New York Heart Association stage II to IV HF. RESULTS: We interviewed 18 patients (mean ejection fraction, 38%; mean age, 64 years; 33% female; 83% white; 39% New York Heart Association class II, 39% class III, and 22% class IV). All had a cardiac implantable electronic device (6% permanent pacemaker, 56% implantable cardioverter-defibrillator, 28% biventricular implantable cardioverter-defibrillator); 11% had left ventricular assist devices. Patients with devices frequently misunderstood the impact of their device on cardiac function. A majority expressed the belief that the device would forestall further deterioration, regardless of whether this was the case. This anticipation of stability was often accompanied by the expectation that emerging technologies would continue to preempt decline. Citing this faith in technology, these patients frequently saw limited value in advance care planning. CONCLUSIONS: In our sample, patients with cardiac devices overestimated the impact of their devices on preventing disease progression and death and deprioritized advance care planning as a result.
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