Tamryn F Gray1, Marie T Nolan2, Marla L Clayman3, Jennifer A Wenzel4. 1. Department of Psychosocial Oncology and Palliative Care, Dana-Farber Cancer Institute, Harvard Medical School, Boston, MA, United States. Electronic address: tamryn_gray@dfci.harvard.edu. 2. School of Nursing, Johns Hopkins University, Baltimore, MD, United States; Berman Institute of Bioethics, Johns Hopkins University, Baltimore, MD, United States. 3. American Institutes for Research, Chicago, IL, United States. 4. School of Nursing, Johns Hopkins University, Baltimore, MD, United States; Department of Oncology, Johns Hopkins University School of Medicine, Baltimore, MD, United States.
Abstract
BACKGROUND: The decision partner concept emerged to describe someone who contributes to healthcare decision-making with a patient. There is a need for greater precision and consensus surrounding its conceptual definition and use in broader populations. OBJECTIVE: To define and describe the decision partner concept within the context of healthcare decision-making. DESIGN: A concept analysis. DATA SOURCES: We searched the following databases for articles published between 1990-2017: PsychINFO, PubMed, Embase, and CINAHL. We included qualitative, quantitative, or mixed methods studies that used the term decision partner in the context of healthcare decision-making. METHODS: We applied the Walker and Avant method to identify the antecedents, attributes, related concepts, consequences, and empirical referents of the concept, with major themes identified. RESULTS: From the 112 articles included in this concept analysis, 6 defining attributes of decision partner were identified: (1) has a relationship with the patient, (2) demonstrates a willingness to participate in decision-making, (3) articulates a clear understanding of both the patient's health condition and the decisions that must be made, (4) demonstrates decision-making self-efficacy; (5) exemplifies an emotional capacity to participate in decision-making, and (6) willing to fulfill several supportive roles including patient advocate and the "hub of information". CONCLUSIONS: A unifying definition and discussion of the decision partner concept has been developed. Our findings: (1) offer insights into refining the concept across various diseases and healthcare encounters, (2) contribute to developing theoretical models and empirical research to refine antecedents, attributes, consequences, (3) serve as a foundation to develop instruments to measure the concept and (4) highlight the need to design interventions that include and support decision partners in healthcare decision-making.
BACKGROUND: The decision partner concept emerged to describe someone who contributes to healthcare decision-making with a patient. There is a need for greater precision and consensus surrounding its conceptual definition and use in broader populations. OBJECTIVE: To define and describe the decision partner concept within the context of healthcare decision-making. DESIGN: A concept analysis. DATA SOURCES: We searched the following databases for articles published between 1990-2017: PsychINFO, PubMed, Embase, and CINAHL. We included qualitative, quantitative, or mixed methods studies that used the term decision partner in the context of healthcare decision-making. METHODS: We applied the Walker and Avant method to identify the antecedents, attributes, related concepts, consequences, and empirical referents of the concept, with major themes identified. RESULTS: From the 112 articles included in this concept analysis, 6 defining attributes of decision partner were identified: (1) has a relationship with the patient, (2) demonstrates a willingness to participate in decision-making, (3) articulates a clear understanding of both the patient's health condition and the decisions that must be made, (4) demonstrates decision-making self-efficacy; (5) exemplifies an emotional capacity to participate in decision-making, and (6) willing to fulfill several supportive roles including patient advocate and the "hub of information". CONCLUSIONS: A unifying definition and discussion of the decision partner concept has been developed. Our findings: (1) offer insights into refining the concept across various diseases and healthcare encounters, (2) contribute to developing theoretical models and empirical research to refine antecedents, attributes, consequences, (3) serve as a foundation to develop instruments to measure the concept and (4) highlight the need to design interventions that include and support decision partners in healthcare decision-making.
Authors: Lourdes R Carhuapoma; Winter M Thayer; Catherine E Elmore; Jane Gildersleeve; Tanmay Singh; Farah Shaukat; Melissa K Uveges; Tamryn Gray; Crystal Chu; Daniel Song; Patricia J Hollen; Jennifer Wenzel; Randy A Jones Journal: Trials Date: 2021-09-16 Impact factor: 2.728
Authors: Daniel Nadales Rodríguez; Guillermo Bermúdez-González; Ismael Pablo Soler-García Journal: Int J Environ Res Public Health Date: 2022-07-28 Impact factor: 4.614
Authors: Tamryn F Gray; Deborah Forst; Ryan D Nipp; Joseph A Greer; Jennifer S Temel; Areej El-Jawahri Journal: J Palliat Med Date: 2020-09-30 Impact factor: 2.947