Literature DB >> 30740327

Current research status on the psychological situation of adults with congenital heart disease.

Caroline Andonian1,2, Jürgen Beckmann2,3, Sabina Biber2, Peter Ewert1, Sebastian Freilinger1, Harald Kaemmerer1, Renate Oberhoffer1,2, Lars Pieper4, Rhoia Clara Neidenbach1.   

Abstract

Due to technological and medical advances the population of adults with congenital heart disease (ACHD) is growing. Worldwide, congenital heart disease (CHD) affects 1.35-1.5 million children each year and more than 90% reach adulthood. Given the heterogeneity of CHD, survivors are faced with not only complex medical but also psychological challenges which may manifest in mental health problems, such as depression, anxiety and posttraumatic stress disorder. This review focuses on the emotional dimension of CHD. More precisely, it summarizes the present state of research on the prevalence of emotional distress in ACHD. Theoretical models provide a framework for possible explanations of mental health issues in ACHD. Additionally, the review examines the relation between psychological processes and overall health considering the latest scientific findings on coping with chronic illness (illness identity). There is still insufficient knowledge on the psychosocial treatment of mental health issues in the growing population of ACHD. This review suggests a vital need to further investigate the psychological situation of ACHD on a large-scale basis in order to establish a holistic treatment approach to accommodate the patients' special needs.

Entities:  

Keywords:  Congenital heart disease (CHD); adults with congenital heart disease (ACHD); psychological situation, mental health, chronic disease, prevention

Year:  2018        PMID: 30740327      PMCID: PMC6331374          DOI: 10.21037/cdt.2018.12.06

Source DB:  PubMed          Journal:  Cardiovasc Diagn Ther        ISSN: 2223-3652


  37 in total

1.  Medical predictors for psychopathology in adults with operated congenital heart disease.

Authors:  E H M van Rijen; E M W J Utens; J W Roos-Hesselink; F J Meijboom; R T van Domburg; J R T C Roelandt; A J J C Bogers; F C Verhulst
Journal:  Eur Heart J       Date:  2004-09       Impact factor: 29.983

2.  Individual quality of life in adults with congenital heart disease: a paradigm shift.

Authors:  Philip Moons; Kristien Van Deyk; Kristel Marquet; Els Raes; Leentje De Bleser; Werner Budts; Sabina De Geest
Journal:  Eur Heart J       Date:  2004-12-07       Impact factor: 29.983

3.  Longitudinal development of psychopathology in an adult congenital heart disease cohort.

Authors:  Elisabeth H M van Rijen; Elisabeth M W J Utens; Jolien W Roos-Hesselink; Folkert J Meijboom; Ron T van Domburg; Jos R T C Roelandt; Ad J J C Bogers; Frank C Verhulst
Journal:  Int J Cardiol       Date:  2005-03-18       Impact factor: 4.164

4.  A meta-analytic review of benefit finding and growth.

Authors:  Vicki S Helgeson; Kerry A Reynolds; Patricia L Tomich
Journal:  J Consult Clin Psychol       Date:  2006-10

5.  Are cyanosed adults with congenital cardiac malformations depressed?

Authors:  J Popelová; Z Slavík; J Skovránek
Journal:  Cardiol Young       Date:  2001-07       Impact factor: 1.093

6.  Reactivation of posttraumatic stress in male disaster survivors: the role of residual symptoms.

Authors:  Hans Jakob Boe; Katrine H Holgersen; Are Holen
Journal:  J Anxiety Disord       Date:  2010-02-12

Review 7.  Environmental stress and psychiatric illness.

Authors:  O Agid; Y Kohn; B Lerer
Journal:  Biomed Pharmacother       Date:  2000-04       Impact factor: 6.529

8.  Depression and anxiety in adults with congenital heart disease: a pilot study.

Authors:  Jonas I Bromberg; Pamela J Beasley; Eugene J D'Angelo; Michael Landzberg; David Ray DeMaso
Journal:  Heart Lung       Date:  2003 Mar-Apr       Impact factor: 2.210

9.  Depression and anxiety in adult congenital heart disease: predictors and prevalence.

Authors:  Adrienne H Kovacs; Arwa S Saidi; Emily A Kuhl; Samuel F Sears; Candice Silversides; Jeanine L Harrison; Lephuong Ong; Jack Colman; Erwin Oechslin; Robert P Nolan
Journal:  Int J Cardiol       Date:  2008-08-15       Impact factor: 4.164

10.  Quality of life in adults with congenital heart disease.

Authors:  D A Lane; G Y H Lip; T A Millane
Journal:  Heart       Date:  2002-07       Impact factor: 5.994

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  11 in total

Review 1.  Overweight and obesity: an emerging problem in patients with congenital heart disease.

Authors:  Caroline Andonian; Fabian Langer; Jürgen Beckmann; Gert Bischoff; Peter Ewert; Sebastian Freilinger; Harald Kaemmerer; Renate Oberhoffer; Lars Pieper; Rhoia Clara Neidenbach
Journal:  Cardiovasc Diagn Ther       Date:  2019-10

2.  A convergent molecular network underlying autism and congenital heart disease.

Authors:  Sara Brin Rosenthal; Helen Rankin Willsey; Yuxiao Xu; Yuan Mei; Jeanselle Dea; Sheng Wang; Charlotte Curtis; Emily Sempou; Mustafa K Khokha; Neil C Chi; Arthur Jeremy Willsey; Kathleen M Fisch; Trey Ideker
Journal:  Cell Syst       Date:  2021-08-18       Impact factor: 10.304

3.  Proposed method for evaluation and categorization of functional capacity of children, adolescents, and adults with cardiac diseases to bring them in existing social justice system by creating the cardiac disability criteria.

Authors:  Smita Mishra; Rajesh Sharma
Journal:  Indian J Thorac Cardiovasc Surg       Date:  2020-01-24

4.  Systematic assessment of health care perception in adults with congenital heart disease in Germany.

Authors:  Rhoia Neidenbach; Stephan Achenbach; Caroline Andonian; Ulrike M M Bauer; Peter Ewert; Sebastian Freilinger; Ulrike Gundlach; Ann-Sophie Kaemmerer; Nicole Nagdyman; Kathrin Nebel; Renate Oberhoffer; Lars Pieper; Wibke Reinhard; Linda Sanftenberg; Fabian von Scheidt; Jörg Schelling; Lavinia Seidel; Michael Weyand; Harald Kaemmerer
Journal:  Cardiovasc Diagn Ther       Date:  2021-04

5.  Challenges for Adolescents With Congenital Heart Defects/Chronic Rheumatic Heart Disease and What They Need: Perspectives From Patients, Parents and Health Care Providers at the Institut Jantung Negara (National Heart Institute), Malaysia.

Authors:  Sue Kiat Tye; Geetha Kandavello; Syarifah Azizah Wan Ahmadul Badwi; Hariyati Sharima Abdul Majid
Journal:  Front Psychol       Date:  2021-01-27

6.  Health Care Policy and Congenital Heart Disease: 2020 Focus on Our 2030 Future.

Authors:  Devyani Chowdhury; Jonathan N Johnson; Carissa M Baker-Smith; Robert D B Jaquiss; Arjun K Mahendran; Valerie Curren; Aarti Bhat; Angira Patel; Audrey C Marshall; Stephanie Fuller; Bradley S Marino; Christina M Fink; Keila N Lopez; Lowell H Frank; Mishaal Ather; Natalie Torentinos; Olivia Kranz; Vivian Thorne; Ryan R Davies; Stuart Berger; Christopher Snyder; Arwa Saidi; Kenneth Shaffer
Journal:  J Am Heart Assoc       Date:  2021-10-08       Impact factor: 5.501

7.  'Well-being paradox' revisited: a cross-sectional study of quality of life in over 4000 adults with congenital heart disease.

Authors:  Caroline Sophie Andonian; Sebastian Freilinger; Stephan Achenbach; Peter Ewert; Ulrike Gundlach; Jürgen Hoerer; Harald Kaemmerer; Lars Pieper; Michael Weyand; Rhoia Clara Neidenbach; Jürgen Beckmann
Journal:  BMJ Open       Date:  2021-06-22       Impact factor: 2.692

8.  What Do We Know About Young Adult Cardiac Patients' Experience? A Systematic Review.

Authors:  Jonathan Journiac; Christel Vioulac; Anne Jacob; Coline Escarnot; Aurélie Untas
Journal:  Front Psychol       Date:  2020-07-07

9.  Assessment of the Psychological Situation in Adults with Congenital Heart Disease.

Authors:  Caroline Andonian; Jürgen Beckmann; Peter Ewert; Sebastian Freilinger; Harald Kaemmerer; Renate Oberhoffer-Fritz; Martin Sack; Rhoia Neidenbach
Journal:  J Clin Med       Date:  2020-03-13       Impact factor: 4.241

10.  Erectile Dysfunction in Men With Adult Congenital Heart Disease: A Prevalent but Neglected Issue.

Authors:  Alicia Jeanette Fischer; Christin Grundlach; Paul C Helm; Ulrike Mm Bauer; Helmut Baumgartner; Gerhard-Paul Diller
Journal:  Korean Circ J       Date:  2021-11-05       Impact factor: 3.243

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