Penélope Esther Palominos1,2, Andrese Aline Gasparin3, Nicole Pamplona Bueno de Andrade3, Ricardo Machado Xavier3,4, Rafael Mendonça da Silva Chakr3,4, Fernanda Igansi3, Laure Gossec5. 1. Universidade Federal do Rio Grande do Sul (UFRGS), Programa de Pós Graduação em Ciências Médicas (PPGCM), Rua Ramiro Barcelos 2400, segundo andar, Porto Alegre, 90035-903, Brazil. penelopepalominos@gmail.com. 2. Department of Rheumatology, Hospital de Clinicas de Porto Alegre, Rua Ramiro Barcelos 2350, sexto andar, Porto Alegre, 90035-903, Brazil. penelopepalominos@gmail.com. 3. Universidade Federal do Rio Grande do Sul (UFRGS), Programa de Pós Graduação em Ciências Médicas (PPGCM), Rua Ramiro Barcelos 2400, segundo andar, Porto Alegre, 90035-903, Brazil. 4. Department of Rheumatology, Hospital de Clinicas de Porto Alegre, Rua Ramiro Barcelos 2350, sexto andar, Porto Alegre, 90035-903, Brazil. 5. Sorbonne Universités, UPMC Univ Paris 06, Institut Pierre Louis d'Epidémiologie et de Santé Publique, GRC-UPMC 08 (EEMOIS); Department of Rheumatology, Pitié Salpêtrière Hospital, AP-HP, 47-83 Boulevard de l'Hôpital, 75013, Paris, France.
Abstract
OBJECTIVE: To assess the main fears and beliefs of people with rheumatoid arthritis (RA) and their effect on treatment outcomes; METHODS: A systematic literature review was conducted in Pubmed/Medline; original articles published up to May 2017, reporting fears and/or beliefs of adult patients with RA were analyzed. Fears and beliefs were collected by two independent researchers and grouped into categories. RESULTS: Among 474 references identified, 84 were analyzed, corresponding to 24,336 RA patients. Fears were reported in 38.4% of the articles (N = 32/84): most studies described fears related to pharmacological therapy (50.0%, N = 16/32) and fear of disability (28.1%, N = 9/32). Beliefs were reported in 88.0% of articles (N = 74/84) and were found to moderate the patient-perceived impact of RA in 44.6% (N = 33/74), mainly the emotional impact (18.9%, N = 14/74); measures of function, quality of life, fatigue and pain were also found to be affected by patients' beliefs in 8.1% (N = 6/74), 6.8% (N = 5/74), 2.7% (N = 2/74) and 2.7% (N = 2/74) of the articles, respectively. Beliefs about therapy were linked to adherence in 17.6% of articles (N = 13/74) and beliefs about cause of RA predicted coping patterns in 12.2% of publications (N = 9/74). Only 9.5% (N = 8/84) of articles reported fears and/or beliefs of patients living outside Europe and North America: there was only one work which recruited patients in Latin America and no article included patients from Africa. CONCLUSION: In RA, patients' beliefs are linked to impact of disease and non-adherence. Further research is needed on fears/ beliefs of patients living outside Europe and North America.
OBJECTIVE: To assess the main fears and beliefs of people with rheumatoid arthritis (RA) and their effect on treatment outcomes; METHODS: A systematic literature review was conducted in Pubmed/Medline; original articles published up to May 2017, reporting fears and/or beliefs of adult patients with RA were analyzed. Fears and beliefs were collected by two independent researchers and grouped into categories. RESULTS: Among 474 references identified, 84 were analyzed, corresponding to 24,336 RApatients. Fears were reported in 38.4% of the articles (N = 32/84): most studies described fears related to pharmacological therapy (50.0%, N = 16/32) and fear of disability (28.1%, N = 9/32). Beliefs were reported in 88.0% of articles (N = 74/84) and were found to moderate the patient-perceived impact of RA in 44.6% (N = 33/74), mainly the emotional impact (18.9%, N = 14/74); measures of function, quality of life, fatigue and pain were also found to be affected by patients' beliefs in 8.1% (N = 6/74), 6.8% (N = 5/74), 2.7% (N = 2/74) and 2.7% (N = 2/74) of the articles, respectively. Beliefs about therapy were linked to adherence in 17.6% of articles (N = 13/74) and beliefs about cause of RA predicted coping patterns in 12.2% of publications (N = 9/74). Only 9.5% (N = 8/84) of articles reported fears and/or beliefs of patients living outside Europe and North America: there was only one work which recruited patients in Latin America and no article included patients from Africa. CONCLUSION: In RA, patients' beliefs are linked to impact of disease and non-adherence. Further research is needed on fears/ beliefs of patients living outside Europe and North America.
Authors: M J H Voshaar; B J F van den Bemt; M A F J van de Laar; A M van Dulmen; J E Vriezekolk Journal: BMC Health Serv Res Date: 2022-01-13 Impact factor: 2.655
Authors: Erik Hulander; Linnea Bärebring; Anna Turesson Wadell; Inger Gjertsson; Philip C Calder; Anna Winkvist; Helen M Lindqvist Journal: J Nutr Date: 2021-12-03 Impact factor: 4.798