Literature DB >> 30631218

Patient-Centered Outcomes Research: Stakeholder Perspectives and Ethical and Regulatory Oversight Issues.

Emily A Largent1, Joel S Weissman2, Avni Gupta2, Melissa Abraham3, Ronen Rozenblum4, Holly Fernandez Lynch5, I Glenn Cohen6.   

Abstract

Entities:  

Year:  2018        PMID： 30631218      PMCID： PMC6324926     

Source DB:  PubMed          Journal:  IRB        ISSN： 0193-7758


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  19 in total

1.  Patients as partners in managing chronic disease. Partnership is a prerequisite for effective and efficient health care.

Authors:  H Holman; K Lorig
Journal:  BMJ       Date:  2000-02-26

2.  Medscape's response to the Institute of Medicine Report: Crossing the quality chasm: a new health system for the 21st century.

Authors:  M Leavitt
Journal:  MedGenMed       Date:  2001-03-05

Review 3.  Interventions to improve research participants' understanding in informed consent for research: a systematic review.

Authors:  James Flory; Ezekiel Emanuel
Journal:  JAMA       Date:  2004-10-06       Impact factor: 56.272

Review 4.  Qualitative and mixed methods provide unique contributions to outcomes research.

Authors:  Leslie A Curry; Ingrid M Nembhard; Elizabeth H Bradley
Journal:  Circulation       Date:  2009-03-17       Impact factor: 29.690

5.  Patient-centred healthcare, social media and the internet: the perfect storm?

Authors:  Ronen Rozenblum; David W Bates
Journal:  BMJ Qual Saf       Date:  2013-02-01       Impact factor: 7.035

6.  Ethics and regulatory complexities for pragmatic clinical trials.

Authors:  Jeremy Sugarman; Robert M Califf
Journal:  JAMA       Date:  2014-06-18       Impact factor: 56.272

7.  Patient Advocacy Organizations, Industry Funding, and Conflicts of Interest.

Authors:  Susannah L Rose; Janelle Highland; Matthew T Karafa; Steven Joffe
Journal:  JAMA Intern Med       Date:  2017-03-01       Impact factor: 21.873

8.  Using Social Media as a Research Recruitment Tool: Ethical Issues and Recommendations.

Authors:  Luke Gelinas; Robin Pierce; Sabune Winkler; I Glenn Cohen; Holly Fernandez Lynch; Barbara E Bierer
Journal:  Am J Bioeth       Date:  2017-03       Impact factor: 11.229

9.  Patient and family engagement: a framework for understanding the elements and developing interventions and policies.

Authors:  Kristin L Carman; Pam Dardess; Maureen Maurer; Shoshanna Sofaer; Karen Adams; Christine Bechtel; Jennifer Sweeney
Journal:  Health Aff (Millwood)       Date:  2013-02       Impact factor: 6.301

10.  Launching PCORnet, a national patient-centered clinical research network.

Authors:  Rachael L Fleurence; Lesley H Curtis; Robert M Califf; Richard Platt; Joe V Selby; Jeffrey S Brown
Journal:  J Am Med Inform Assoc       Date:  2014-05-12       Impact factor: 4.497
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  3 in total

1.  A proposed framework for patient engagement throughout the broader research enterprise.

Authors:  Camila L Strassle; Steven D Pearson
Journal:  J Comp Eff Res       Date:  2020-04-07       Impact factor: 1.744

2.  Engaging Stakeholders in the Design and Conduct of Embedded Pragmatic Clinical Trials for Alzheimer's Disease and Alzheimer's Disease-Related Dementias.

Authors:  Jill Harrison; Katie Maslow; Ellen Tambor; Louise Phillips; Lori Frank; Laurie Herndon; Gary Epstein-Lubow
Journal:  J Am Geriatr Soc       Date:  2020-07       Impact factor: 5.562

3.  Integration of stakeholder engagement from development to dissemination in genomic medicine research: Approaches and outcomes from the CSER Consortium.

Authors:  Julianne M O'Daniel; Sara Ackerman; Lauren R Desrosiers; Shannon Rego; Sara J Knight; Lonna Mollison; Grace Byfield; Katherine P Anderson; Maria I Danila; Carol R Horowitz; Galen Joseph; Grace Lamoure; Nangel M Lindberg; Carmit K McMullen; Kathleen F Mittendorf; Michelle A Ramos; Mimsie Robinson; Catherine Sillari; Ebony B Madden
Journal:  Genet Med       Date:  2022-02-25       Impact factor: 8.864
  3 in total

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