A Halvorsen1,2, A L Pettersen3, S M Nilsen3,4, K Krizak Halle3, E Elmenhorst Schaanning5, T Rekand6,7. 1. Department of Medical Quality Registries, St Olavs hospital, Trondheim University Hospital, Trondheim, Norway. annette.halvorsen@stolav.no. 2. Clinic of Physical Medicine and Rehabilitation, Department of Spinal Cord Injuries, St. Olavs Hospital, Trondheim University Hospital, Trondheim, Norway. annette.halvorsen@stolav.no. 3. Department of Medical Quality Registries, St Olavs hospital, Trondheim University Hospital, Trondheim, Norway. 4. Center for Health Care Improvement, St. Olavs Hospital, Trondheim University Hospital, Trondheim, Norway. 5. Department of Spinal Cord Injury, Follow up (inpatient), Sunnaas Rehabilitation Hospital, Nesodden, Norway. 6. Department of Neurology, Haukeland University Hospital, Bergen, Norway. 7. Sahlgrenska Academy, Institute for Physiology and Neuroscience, University of Gothenburg, Gothenburg, Sweden.
Abstract
STUDY DESIGN: A registry-based cross-sectional study. OBJECTIVES: To analyse the epidemiological and demographic characteristics of persons with traumatic spinal cord injury (TSCI) in Norway. SETTING: TSCI patients admitted for primary rehabilitation to one of the three specialised spinal cord injury (SCI) departments (located in Bergen, Trondheim, and Oslo) and consented to the Norwegian Spinal Cord Injury Registry (NorSCIR). METHODS: Analysis of data from NorSCIR during a 5-year period (2012-2016) was performed. Data were collected by using the International SCI Core Data Set as recommended by the International Spinal Cord Society (ISCoS). RESULTS: The lowest incidence of TSCI was 11.4/million (2012), and the highest incidence was 15.9/million (2014). In the study period, 349 individuals were registered with TSCI. In total, 76% were male, and the mean age was 47 (SD ± 19) years. We observed dominance in the 60-74 years age group. The distribution between tetraplegia and paraplegia was 48%/42%. For those initially classified as American Spinal Cord Injury Association Impairment Scale (AIS) grade A (complete injury), 77% remained grade A at discharge. Considerable changes during primary rehabilitation after incomplete lesions were observed. Most patients (68%) were discharged home after primary rehabilitation. Falls were the main cause of TSCI (47%) and occurred more often during the weekend. CONCLUSION: Through a National Medical Quality Registry based on internationally provided data sets, we are able to present systematic and updated data from Norway.
STUDY DESIGN: A registry-based cross-sectional study. OBJECTIVES: To analyse the epidemiological and demographic characteristics of persons with traumatic spinal cord injury (TSCI) in Norway. SETTING: TSCI patients admitted for primary rehabilitation to one of the three specialised spinal cord injury (SCI) departments (located in Bergen, Trondheim, and Oslo) and consented to the Norwegian Spinal Cord Injury Registry (NorSCIR). METHODS: Analysis of data from NorSCIR during a 5-year period (2012-2016) was performed. Data were collected by using the International SCI Core Data Set as recommended by the International Spinal Cord Society (ISCoS). RESULTS: The lowest incidence of TSCI was 11.4/million (2012), and the highest incidence was 15.9/million (2014). In the study period, 349 individuals were registered with TSCI. In total, 76% were male, and the mean age was 47 (SD ± 19) years. We observed dominance in the 60-74 years age group. The distribution between tetraplegia and paraplegia was 48%/42%. For those initially classified as American Spinal Cord Injury Association Impairment Scale (AIS) grade A (complete injury), 77% remained grade A at discharge. Considerable changes during primary rehabilitation after incomplete lesions were observed. Most patients (68%) were discharged home after primary rehabilitation. Falls were the main cause of TSCI (47%) and occurred more often during the weekend. CONCLUSION: Through a National Medical Quality Registry based on internationally provided data sets, we are able to present systematic and updated data from Norway.
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