Camilla M Larsen1,2,3, Birgit Juul-Kristensen4, Helge Kasch5,6, Jan Hartvigsen4,7, Lars H Frich8,9,10, Eleanor Boyle4, Lasse Østengaard11,12, Fin Biering-Sørensen13. 1. Department of Sports Science and Clinical Biomechanics, University of Southern Denmark, Odense, Denmark. cmlarsen@health.sdu.dk. 2. Health Sciences Research Centre, UCL University College, Odense, Denmark. cmlarsen@health.sdu.dk. 3. OPEN, Odense Patient data Explorative Network, Odense University Hospital, Odense, Denmark. cmlarsen@health.sdu.dk. 4. Department of Sports Science and Clinical Biomechanics, University of Southern Denmark, Odense, Denmark. 5. Spinal Cord Injury Centre of Western Denmark, Department of Neurology, Viborg Hospital, Viborg, Denmark. 6. Institute of Clinical Medicine, Aarhus University, Aarhus, Denmark. 7. Nordic Institute of Chiropractic and Clinical Biomechanics, Odense, Denmark. 8. Department of Orthopaedic Surgery and Traumatology, Odense University Hospital, Odense, Denmark. 9. Department of Clinical Research, University of Southern Denmark, Odense, Denmark. 10. Department of Neurobiology Research, Institute of Molecular Medicine, University of Southern Denmark, Odense, Denmark. 11. University Library of Southern Denmark, University of Southern Denmark, Odense, Denmark. 12. Centre for Evidence-Based Medicine Odense, University of Southern Denmark, Odense, Denmark. 13. Department for Spinal Cord Injuries, Rigshospitalet, University of Copenhagen, Copenhagen, Denmark.
Abstract
STUDY DESIGN: Cross-sectional study. OBJECTIVES: To describe the socio-demographics, injury characteristics, prevalence of shoulder and neck symptoms, weekly participation in leisure time physical activity (LTPA) and quality of life (QoL) of individuals with spinal cord injury in Denmark (SCI). SETTING: Nation-wide community survey, Denmark. METHODS: Individuals with SCI for >2 years were included from three SCI rehabilitation departments. Questionnaire data regarding socio-demographic details, SCI injury characteristics, medical history, shoulder and neck symptoms, LTPA and QoL were collected. RESULTS: Of 2454 potential participants, 1517 (62%) responded to the survey (mean age = 56.2, SD 16.1, 37% female, 42% tetraplegia, 23% complete SCI, mean time since injury = 16.9, SD 13.5). 75% used some form of assistive mobility device. Responders and non-responders showed no sex or injury type/severity differences. Shoulder and neck symptoms within the past 3 months were reported by 63 and 67% respectively, with 51% reporting shoulder symptoms within the past week. Among those with symptoms, 61% had experienced shoulder symptoms and 56% neck symptoms, for more than 30 days during the previous 3 months. Symptoms often prevented participants from performing their usual activities (due to shoulder symptoms 46%, neck symptoms 41%). CONCLUSIONS: A high prevalence of self-reported shoulder and neck symptoms was found, which may limit physical function and social activities. We succeeded in generating the Danish Spinal Cord Injury Shoulder (DanSCIS) dataset, which comprised a substantial proportion of Danish adults with SCI. Future studies using data from this cohort will investigate patterns and associations between shoulder/neck symptoms, use of assistive mobility devices, LTPA and QoL.
STUDY DESIGN: Cross-sectional study. OBJECTIVES: To describe the socio-demographics, injury characteristics, prevalence of shoulder and neck symptoms, weekly participation in leisure time physical activity (LTPA) and quality of life (QoL) of individuals with spinal cord injury in Denmark (SCI). SETTING: Nation-wide community survey, Denmark. METHODS: Individuals with SCI for >2 years were included from three SCI rehabilitation departments. Questionnaire data regarding socio-demographic details, SCI injury characteristics, medical history, shoulder and neck symptoms, LTPA and QoL were collected. RESULTS: Of 2454 potential participants, 1517 (62%) responded to the survey (mean age = 56.2, SD 16.1, 37% female, 42% tetraplegia, 23% complete SCI, mean time since injury = 16.9, SD 13.5). 75% used some form of assistive mobility device. Responders and non-responders showed no sex or injury type/severity differences. Shoulder and neck symptoms within the past 3 months were reported by 63 and 67% respectively, with 51% reporting shoulder symptoms within the past week. Among those with symptoms, 61% had experienced shoulder symptoms and 56% neck symptoms, for more than 30 days during the previous 3 months. Symptoms often prevented participants from performing their usual activities (due to shoulder symptoms 46%, neck symptoms 41%). CONCLUSIONS: A high prevalence of self-reported shoulder and neck symptoms was found, which may limit physical function and social activities. We succeeded in generating the Danish Spinal Cord Injury Shoulder (DanSCIS) dataset, which comprised a substantial proportion of Danish adults with SCI. Future studies using data from this cohort will investigate patterns and associations between shoulder/neck symptoms, use of assistive mobility devices, LTPA and QoL.
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