Literature DB >> 30570362

Multidisciplinary care for people with Parkinson's disease: the new kids on the block!

Danique L M Radder1, Nienke M de Vries1, Niels P Riksen2, Sarah J Diamond3, Ditza Gross4, Daniel R Gold5, John Heesakkers6, Emily Henderson7,8, Adrianus L A J Hommel1,9, Herma H Lennaerts2,10, Jane Busch11,12, Ray E Dorsey13, John Andrejack14, Bastiaan R Bloem1.   

Abstract

INTRODUCTION: Parkinson's disease (PD) is a chronic multisystem disorder that causes a wide variety of motor and non-motor symptoms. Over time, the progressive nature of the disease increases the risk of complications such as falls and loss of independence, having a profound impact on quality of life. The complexity and heterogeneity of symptoms therefore warrant a holistic, multidisciplinary approach. Specific healthcare professionals, e.g. the movement disorders neurologist and the PD nurse specialist, are considered essential members of this multidisciplinary team. However, with our increasing knowledge about different aspects of the disease, other disciplines are also being recognized as important contributors to the healthcare team. Areas covered: The authors describe a selection of these relatively newly-recognized disciplines, including the specialist in vascular medicine, gastroenterologist, pulmonologist, neuro-ophthalmologist, urologist, geriatrician/elderly care physician, palliative care specialist and the dentist. Furthermore, they share the view of a person with PD on how patients and caregivers should be involved in the multidisciplinary team. Finally, they have included a perspective on the new role of the movement disorder neurologist, with care delivery via 'tele-neurology'. Expert commentary: Increased awareness about the potential role of these 'new' professionals will further improve disease management and quality of life of PD patients.

Entities:  

Keywords:  Parkinson’s disease; multidisciplinary care; non-motor symptoms; professional disciplines; self-management; tele-neurology; telemedicine

Year:  2019        PMID: 30570362     DOI: 10.1080/14737175.2019.1561285

Source DB:  PubMed          Journal:  Expert Rev Neurother        ISSN: 1473-7175            Impact factor:   4.618


  12 in total

1.  The Role of Parkinson Nurses for Personalizing Care in Parkinson's Disease: A Systematic Review and Meta-Analysis.

Authors:  Marlena van Munster; Johanne Stümpel; Franziska Thieken; Florin Ratajczak; Olivier Rascol; Margherita Fabbri; Timo Clemens; Katarzyna Czabanowska; Tiago A Mestre; David J Pedrosa
Journal:  J Parkinsons Dis       Date:  2022       Impact factor: 5.520

Review 2.  A Stage-Based Approach to Therapy in Parkinson's Disease.

Authors:  Claudia Carrarini; Mirella Russo; Fedele Dono; Martina Di Pietro; Marianna G Rispoli; Vincenzo Di Stefano; Laura Ferri; Filomena Barbone; Michela Vitale; Astrid Thomas; Stefano Luca Sensi; Marco Onofrj; Laura Bonanni
Journal:  Biomolecules       Date:  2019-08-20

3.  Sex-Specific Patient Journeys in Early Parkinson's Disease in the Netherlands.

Authors:  Floris Pieter Vlaanderen; Yvonne de Man; Jesse H Krijthe; Marit A C Tanke; A S Groenewoud; Patrick P T Jeurissen; Sabine Oertelt-Prigione; Marten Munneke; Bastiaan R Bloem; Marjan J Meinders
Journal:  Front Neurol       Date:  2019-07-30       Impact factor: 4.003

Review 4.  Palliative Care in Movement Disorders: an Evolving Field.

Authors:  Zachary A Macchi; Christopher G Tarolli; Benzi M Kluger
Journal:  Curr Neurol Neurosci Rep       Date:  2021-01-28       Impact factor: 5.081

5.  Implementation fidelity of a nurse-led RCT-tested complex intervention, care coordination for health promotion and activities in Parkinson's disease (CHAPS) in meeting challenges in care management.

Authors:  Karen I Connor; Hilary C Siebens; Brian S Mittman; David A Ganz; Frances Barry; Donna K McNeese-Smith; Eric M Cheng; Barbara G Vickrey
Journal:  BMC Neurol       Date:  2022-01-24       Impact factor: 2.474

Review 6.  Frameworks for Parkinson's Disease Rehabilitation Addressing When, What, and How.

Authors:  Miriam R Rafferty; Ella Nettnin; Jennifer G Goldman; Jillian MacDonald
Journal:  Curr Neurol Neurosci Rep       Date:  2021-02-22       Impact factor: 5.081

Review 7.  What People with Parkinson's Disease Want.

Authors:  John Andrejack; Soania Mathur
Journal:  J Parkinsons Dis       Date:  2020       Impact factor: 5.568

Review 8.  Multimorbidity and Frailty: Tackling Complexity in Parkinson's Disease.

Authors:  Emma Tenison; Emily J Henderson
Journal:  J Parkinsons Dis       Date:  2020       Impact factor: 5.568

9.  Quality and extent of implementation of a nurse-led care management intervention: care coordination for health promotion and activities in Parkinson's disease (CHAPS).

Authors:  Karen I Connor; Hilary C Siebens; Brian S Mittman; David A Ganz; Frances Barry; E J Ernst; Lisa K Edwards; Michael G McGowan; Donna K McNeese-Smith; Eric M Cheng; Barbara G Vickrey
Journal:  BMC Health Serv Res       Date:  2020-08-10       Impact factor: 2.655

Review 10.  Moving towards Integrated and Personalized Care in Parkinson's Disease: A Framework Proposal for Training Parkinson Nurses.

Authors:  Marlena van Munster; Johanne Stümpel; Franziska Thieken; David J Pedrosa; Angelo Antonini; Diane Côté; Margherita Fabbri; Joaquim J Ferreira; Evžen Růžička; David Grimes; Tiago A Mestre
Journal:  J Pers Med       Date:  2021-06-30
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