Literature DB >> 30570332

Impacts of early powered mobility provision on disability identity: A case study.

Heather Feldner1.   

Abstract

BACKGROUND/
PURPOSE: Providing powered mobility technology to people with disabilities is a common rehabilitation practice. However, the relationship between powered mobility introduction and identity development, when considered in the context of lived experiences of children with disabilities and their families, is not well understood. Investigating this relationship is timely given the emergence of alternative, community-based early mobility opportunities using adapted mobility toys whose impact may contrast experiences using powered wheelchairs typically provided in rehabilitation settings.
METHOD: Using a qualitative, ethnographic case study approach, in-depth interview and field observation data were collected with 2 children and families, 1 who received a traditional powered wheelchair and the other who received an adapted mobility toy. A grounded theory approach guided the data analysis, and emerging themes were discussed until consensus was reached between Heather Feldner and families.
RESULTS: Findings revealed four themes: (1) dys/function of mobility technology; (2) daily Life, play, and participation; (3) emerging self/advocacy; and (4) complex family/industry interplay.
CONCLUSION: Similarities and differences were present within the situated experiences of each family. Experiences were foregrounded by instances of emerging identity development throughout provision processes that were influenced by caregiver perceptions of disability (positive vs. negative), aesthetics and function (medical vs. adventure), and perceived intent of the devices (an opportunity for freedom vs. prolonging need for undesired mobility equipment). These findings highlight the varied dynamics and spheres of influence this transaction may have on the developing identity of children with disabilities, which may ultimately help inform future models of provision and rehabilitation practices. (PsycINFO Database Record (c) 2019 APA, all rights reserved).

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Year:  2018        PMID: 30570332      PMCID: PMC6768560          DOI: 10.1037/rep0000259

Source DB:  PubMed          Journal:  Rehabil Psychol        ISSN: 0090-5550


  45 in total

1.  Changing philosophical perspectives on the management of children with physical disabilities--their effect on the use of powered mobility.

Authors:  Lesley Wiart; J Darrah
Journal:  Disabil Rehabil       Date:  2002-06-15       Impact factor: 3.033

2.  Pediatric powered wheelchairs: results of a national survey of providers.

Authors:  Paula Guerette; Donita Tefft; Jan Furumasu
Journal:  Assist Technol       Date:  2005

3.  Towards a geography of fitness: an ethnographic case study of the gym in British bodybuilding culture.

Authors:  Gavin J Andrews; Mark I Sudwell; Andrew C Sparkes
Journal:  Soc Sci Med       Date:  2005-02       Impact factor: 4.634

4.  Rethinking disability and what to do about it: disability studies and its implications for occupational therapy.

Authors:  Gary Kielhofner
Journal:  Am J Occup Ther       Date:  2005 Sep-Oct

5.  Effects of ordinary and adaptive toys on pre-school children with developmental disabilities.

Authors:  Hsieh-Chun Hsieh
Journal:  Res Dev Disabil       Date:  2007-10-23

6.  The use and impact of assistive devices and other environmental modifications on everyday activities and care in young children with cerebral palsy.

Authors:  Sigrid Ostensjø; Eva Brogren Carlberg; Nina K Vøllestad
Journal:  Disabil Rehabil       Date:  2005-07-22       Impact factor: 3.033

7.  Disabled children's perceptions of technical aids, assistance and peers in play situations.

Authors:  Lisa Skär
Journal:  Scand J Caring Sci       Date:  2002-03

8.  Mothers' perceptions of their children's use of powered mobility.

Authors:  Lesley Wiart; Johanna Darrah; Vivien Hollis; Al Cook; Laura May
Journal:  Phys Occup Ther Pediatr       Date:  2004       Impact factor: 2.360

9.  Relevance of the Pediatric Powered Wheelchair Screening Test for children with cerebral palsy.

Authors:  Jan Furumasu; Paula Guerette; Donita Tefft
Journal:  Dev Med Child Neurol       Date:  2004-07       Impact factor: 5.449

10.  Ambulatory capacity in cerebral palsy: prognostic criteria and consequences for intervention.

Authors:  M Bottos; C Gericke
Journal:  Dev Med Child Neurol       Date:  2003-11       Impact factor: 5.449

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  4 in total

1.  Powered mobility interventions for very young children with mobility limitations to aid participation and positive development: the EMPoWER evidence synthesis.

Authors:  Nathan Bray; Niina Kolehmainen; Jennifer McAnuff; Louise Tanner; Lorna Tuersley; Fiona Beyer; Aimee Grayston; Dor Wilson; Rhiannon Tudor Edwards; Jane Noyes; Dawn Craig
Journal:  Health Technol Assess       Date:  2020-10       Impact factor: 4.014

2.  Active mobility, active participation: a systematic review of modified ride-on car use by children with disabilities.

Authors:  C M Hospodar; H A Feldner; S W Logan
Journal:  Disabil Rehabil Assist Technol       Date:  2021-08-26

3.  In the Driver's Seat: A Randomized, Crossover Clinical Trial Protocol Comparing Home and Community Use of the Permobil Explorer Mini and a Modified Ride-On Car by Children With Cerebral Palsy.

Authors:  Heather A Feldner; Samuel W Logan; Lisa K Kenyon
Journal:  Phys Ther       Date:  2022-07-04

4.  Perceived Barriers of Modified Ride-On Car Use of Young Children With Disabilities: A Content Analysis.

Authors:  Samuel W Logan; Heather A Feldner; Kathleen R Bogart; Michele A Catena; Christina M Hospodar; Joseline Raja Vora; William D Smart; William V Massey
Journal:  Pediatr Phys Ther       Date:  2020-04       Impact factor: 1.452

  4 in total

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