Literature DB >> 30518225

Competence and Compassion: Key Elements of Professional Care at the End of Life From Caregiver's Perspective.

Ángela María Ortega-Galán1, María Dolores Ruiz-Fernández2, María Inés Carmona-Rega3, José Cabrera-Troya4, Rocío Ortíz-Amo2, Olivia Ibáñez-Masero5.   

Abstract

In the act of caring for and helping people in the end-of-life process, the professional who provides care and assistance must know how to maintain a relationship of closeness, empathy, and compassion for the pain and suffering of the person who is going to die. The objective was to understand, elaborate on, and characterize the key elements of end-of-life care of patients from a caregiver's perspective through a qualitative phenomenological multicenter study. Participants were caregivers who had lost a family member at least 2 months but less than 2 years in the past. The techniques used were 5 discussion groups and 41 in-depth interviews, which included a total of 81 participants. To analyze the information, a protocol developed by Giorgi was followed. Two dimensions or units of meaning, with subdimensions, emerged: (1) Technical competence, with the subdimensions "Control of symptoms" and "Continuity of care," and (2) Compassion, with the subdimensions "Effective/affective communication," "Attitudes of kindness and closeness toward the patient and the family," and "Generosity and personalized flexibility of care." Assistance at the end of life requires the proper preparation of professionals who care for these patients, in addition to a compassionate attitude on the part of professionals and the people accompanying the dying person, that fosters a more humanized and dignified treatment in the dying process.

Entities:  

Keywords:  caregiver; compassion; competence; end of life; professional care; qualitative study

Mesh:

Year:  2018        PMID: 30518225     DOI: 10.1177/1049909118816662

Source DB:  PubMed          Journal:  Am J Hosp Palliat Care        ISSN: 1049-9091            Impact factor:   2.500


  3 in total

1.  Spanish Medical Interpreters' Management of Challenges in End of Life Discussions.

Authors:  Mary G Rhodes; Kathlyn E Fletcher; Francois Blumenfeld-Kouchner; Elizabeth A Jacobs
Journal:  Patient Educ Couns       Date:  2021-01-21

2.  Communicating Health Information at the End of Life: The Caregivers' Perspectives.

Authors:  Olivia Ibañez-Masero; Inés María Carmona-Rega; María Dolores Ruiz-Fernández; Rocío Ortiz-Amo; José Cabrera-Troya; Ángela María Ortega-Galán
Journal:  Int J Environ Res Public Health       Date:  2019-07-11       Impact factor: 3.390

3.  A Survey of Patient Perspectives on Approach to Health Care: Focus on Physician Competency and Compassion.

Authors:  Kevin Heinze; Pasithorn A Suwanabol; C Ann Vitous; Paul Abrahamse; Kristen Gibson; Bonnie Lansing; Lona Mody
Journal:  J Patient Exp       Date:  2020-10-28
  3 in total

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