Literature DB >> 30447872

Contours of "here": Phenomenology of space for assisted living residents approaching end of life.

Ann E Vandenberg1, Mary M Ball2, Candace L Kemp3, Patrick J Doyle4, Meredith Fritz5, Sean Halpin6, Lee Hundley5, Molly M Perkins7.   

Abstract

Informed by theory from environmental gerontology, this study investigates how assisted living residents who are approaching end of life navigate and experience space. Since its development, environmental gerontology has moved beyond the concept of person-environment fit to encompass aspects of place attachment and place integration, processes by which inhabited impersonal space becomes a place of individual personal meaning and this person-place relationship evolves with changing needs. Our study is a secondary data analysis of in-depth interviews completed with the first 15 residents (mean age 88, range 65-103; 8 white and 7 black) recruited from four diverse assisted living communities in metropolitan Atlanta. Using interpretative phenomenological analysis, we identify five overarching themes within and across assisted living communities and their subthemes. Findings show that participants experience a neutral theme of shrinking space, negative themes of confinement and vulnerability, and positive themes of safety and intimacy. Results dovetail with other phenomenologically based environmental gerontology research from community-dwelling populations that indicate behavioral changes to accommodate aging and health decline. Findings have implications for interventions to improve place integration in AL and enhance residents' quality of life at end of life, including developing strategies to promote small meaningful journeys within context of shrinking life space.
Copyright © 2018 Elsevier Inc. All rights reserved.

Entities:  

Keywords:  Assisted living; End-of-life care; Environmental gerontology; Phenomenology; Place integration

Mesh:

Year:  2018        PMID: 30447872      PMCID: PMC6242343          DOI: 10.1016/j.jaging.2018.03.001

Source DB:  PubMed          Journal:  J Aging Stud        ISSN: 0890-4065


  29 in total

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Authors:  U Lindenberger; M Marsiske; P B Baltes
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Authors:  Patricia S Baker; Eric V Bodner; Richard M Allman
Journal:  J Am Geriatr Soc       Date:  2003-11       Impact factor: 5.562

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Journal:  J Aging Stud       Date:  2016-02-26

Review 5.  The Fundamentals of Person-Centered Care for Individuals With Dementia.

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Journal:  Gerontologist       Date:  2018-01-18

6.  Do Family Proxies Get It Right? Concordance in Reports of Nursing Home Residents' Everyday Preferences.

Authors:  Allison R Heid; Lauren R Bangerter; Katherine M Abbott; Kimberly Van Haitsma
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7.  Relational Autonomy in Assisted Living: A Focus on Diverse Care Settings for Older Adults.

Authors:  Molly M Perkins; Mary M Ball; Frank J Whittington; Carole Hollingsworth
Journal:  J Aging Stud       Date:  2012-01-30

8.  Older People's Perspectives Regarding the Use of Sensor Monitoring in Their Home.

Authors:  Margriet Pol; Fenna van Nes; Margo van Hartingsveldt; Bianca Buurman; Sophia de Rooij; Ben Kröse
Journal:  Gerontologist       Date:  2014-11-10

9.  Loss of self: a fundamental form of suffering in the chronically ill.

Authors:  K Charmaz
Journal:  Sociol Health Illn       Date:  1983-07

10.  Evaluation of the Iowa pain thermometer and other selected pain intensity scales in younger and older adult cohorts using controlled clinical pain: a preliminary study.

Authors:  Keela Herr; Kevin F Spratt; Linda Garand; Li Li
Journal:  Pain Med       Date:  2007 Oct-Nov       Impact factor: 3.750

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  7 in total

1.  Individualization and the Health Care Mosaic in Assisted Living.

Authors:  Candace L Kemp; Mary M Ball; Molly M Perkins
Journal:  Gerontologist       Date:  2019-07-16

2.  Communicative Competence: Responding to Residents' Health Changes in Assisted Living.

Authors:  Candace L Kemp; Mary M Ball; Kendra Jason; Joy Anna Dillard Appel; Andrea F Fitzroy
Journal:  Gerontologist       Date:  2020-05-15

3.  Ethics of Health Information Sharing and Social Relationships at End of Life in Assisted Living.

Authors:  Emma Cooke; Molly M Perkins; Patrick Doyle; Kathy Kinlaw; Kevin Wack; Ann E Vandenberg
Journal:  J Appl Gerontol       Date:  2021-11-05

4.  Barriers and Facilitators to Exercise Participation Among Frail Older African American Assisted Living Residents.

Authors:  Alexis A Bender; Sean N Halpin; Candace L Kemp; Molly M Perkins
Journal:  J Appl Gerontol       Date:  2019-12-13

5.  Assisted Living Administrators' Approaches to Advance Care Planning.

Authors:  Elise S Abken; Molly M Perkins; Alexis A Bender
Journal:  J Appl Gerontol       Date:  2021-01-27

6.  Optimizing Quality of Life With Cognitive Impairment: A Study of End-of-Life Care in Assisted Living.

Authors:  Laura Arneson; Alexis A Bender; Maggi N Robert; Molly M Perkins
Journal:  J Am Med Dir Assoc       Date:  2019-11-26       Impact factor: 4.669

7.  Assisted Living Residents With Dementia: Being Out in the World and Negotiating Connections.

Authors:  Joy M Ciofi; Candace L Kemp; Alexis A Bender
Journal:  Gerontologist       Date:  2022-02-09
  7 in total

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