Literature DB >> 30404845

Partnering with families of children with medical complexity to evaluate interventions.

Nora Fayed1, Meghan Gardecki2, Eyal Cohen2.   

Abstract

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Year:  2018        PMID: 30404845      PMCID: PMC6472462          DOI: 10.1503/cmaj.180372

Source DB:  PubMed          Journal:  CMAJ        ISSN: 0820-3946            Impact factor:   8.262


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  9 in total

Review 1.  Patient-important activity and participation outcomes in clinical trials involving children with chronic conditions.

Authors:  Nora Fayed; Olaf Kraus de Camargo; Inam Elahi; Ankita Dubey; Ricardo M Fernandes; Amy Houtrow; Eyal Cohen
Journal:  Qual Life Res       Date:  2013-09-13       Impact factor: 4.147

2.  Excess risk of severe acute illness in children with chronic health conditions.

Authors:  N P Dosa; N M Boeing; N Ms; R K Kanter
Journal:  Pediatrics       Date:  2001-03       Impact factor: 7.124

Review 3.  Children with medical complexity: an emerging population for clinical and research initiatives.

Authors:  Eyal Cohen; Dennis Z Kuo; Rishi Agrawal; Jay G Berry; Santi K M Bhagat; Tamara D Simon; Rajendu Srivastava
Journal:  Pediatrics       Date:  2011-02-21       Impact factor: 7.124

4.  Hospital-reported medical errors in children.

Authors:  Anthony D Slonim; Bonnie J LaFleur; Wendy Ahmed; Jill G Joseph
Journal:  Pediatrics       Date:  2003-03       Impact factor: 7.124

Review 5.  Stress in families with medically fragile children.

Authors:  Clark E Ratliffe; Rosanne C Harrigan; Janice Haley; Alice Tse; Tom Olson
Journal:  Issues Compr Pediatr Nurs       Date:  2002 Jul-Sep

6.  How can the principles of complexity science be applied to improve the coordination of care for complex pediatric patients?

Authors:  A G Matlow; J G Wright; B Zimmerman; K Thomson; M Valente
Journal:  Qual Saf Health Care       Date:  2006-04

7.  Health among caregivers of children with health problems: findings from a Canadian population-based study.

Authors:  Jamie C Brehaut; Dafna E Kohen; Rochelle E Garner; Anton R Miller; Lucyna M Lach; Anne F Klassen; Peter L Rosenbaum
Journal:  Am J Public Health       Date:  2008-12-04       Impact factor: 9.308

8.  The Patient-Reported Outcomes Measurement Information System (PROMIS): progress of an NIH Roadmap cooperative group during its first two years.

Authors:  David Cella; Susan Yount; Nan Rothrock; Richard Gershon; Karon Cook; Bryce Reeve; Deborah Ader; James F Fries; Bonnie Bruce; Mattias Rose
Journal:  Med Care       Date:  2007-05       Impact factor: 2.983

9.  Patterns and costs of health care use of children with medical complexity.

Authors:  Eyal Cohen; Jay G Berry; Ximena Camacho; Geoff Anderson; Walter Wodchis; Astrid Guttmann
Journal:  Pediatrics       Date:  2012-11-26       Impact factor: 7.124

  9 in total
  4 in total

1.  Complex care for kids Ontario: protocol for a mixed-methods randomised controlled trial of a population-level care coordination initiative for children with medical complexity.

Authors:  Julia Orkin; Carol Y Chan; Nora Fayed; Jia Lu Lilian Lin; Nathalie Major; Audrey Lim; Erin R Peebles; Myla E Moretti; Joanna Soscia; Roxana Sultan; Andrew R Willan; Martin Offringa; Astrid Guttmann; Leah Bartlett; Ronik Kanani; Erin Culbert; Karolyn Hardy-Brown; Michelle Gordon; Marty Perlmutar; Eyal Cohen
Journal:  BMJ Open       Date:  2019-08-01       Impact factor: 2.692

2.  Assessing the engagement of children and families in selecting patient-reported outcomes (PROs) and developing their measures: a systematic review.

Authors:  Malcolm McNeill; Samantha Noyek; Eshetu Engeda; Nora Fayed
Journal:  Qual Life Res       Date:  2020-11-06       Impact factor: 4.147

3.  Building I-INTERACT-North: Participatory Action Research Design of an Online Transdiagnostic Parent-Child Interaction Therapy Program to Optimize Congenital and Neurodevelopmental Risk.

Authors:  Meghan K Ford; Samantha D Roberts; Brendan F Andrade; Mary Desrocher; Shari L Wade; Sara Ahola Kohut; Tricia S Williams
Journal:  J Clin Psychol Med Settings       Date:  2022-05-03

4.  The impact of the COVID-19 pandemic on children with medical complexity.

Authors:  Catherine Diskin; Francine Buchanan; Eyal Cohen; Tammie Dewan; Tessa Diaczun; Michelle Gordon; Esther Lee; Charlotte MooreHepburn; Nathalie Major; Julia Orkin; Hema Patel; Peter J Gill
Journal:  BMC Pediatr       Date:  2022-08-23       Impact factor: 2.567

  4 in total

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