Andy Nguyen1, Kenneth A Katz1, Kieron S Leslie1, Erin H Amerson1. 1. Andy Nguyen is with the Department of Medicine, Mount Auburn Hospital, Cambridge, MA, and Harvard Medical School, Boston, MA. Kenneth A. Katz is with the Department of Dermatology, Kaiser Permanente, San Francisco, CA. Kieron S. Leslie and Erin H. Amerson are with the Department of Dermatology, University of California, San Francisco.
Abstract
OBJECTIVES: To describe collection and reporting of gender data, including for transgender individuals and other gender minorities, in HIV and sexually transmitted infection (STI) surveillance in the United States. METHODS: We performed a cross-sectional study of the top 50 US jurisdictions in 2015 for incident infections of HIV, gonorrhea, chlamydia, or primary and secondary syphilis. For each jurisdiction, we described gender-reporting options on HIV and STI data collection forms (also called confidential morbidity report forms) and data surveillance reports, which present aggregate data at either the county or the state level. RESULTS: Seventy-one jurisdictions were among the top 50 for at least 1 infection, and we included them. Gender minority categories appeared on 60 of 71 (85%) HIV confidential morbidity report forms and 33 of 70 (47%) STI confidential morbidity report forms, and in 22 of 71 (31%) HIV surveillance reports and 8 of 71 (11%) STI surveillance reports. CONCLUSIONS: Collection and reporting of gender data were suboptimal and inconsistent. Gender minority data were collected more often than reported, suggesting barriers to reporting. Health departments should standardize collection and reporting of gender data in HIV and STI surveillance to better inform prevention and control efforts.
OBJECTIVES: To describe collection and reporting of gender data, including for transgender individuals and other gender minorities, in HIV and sexually transmitted infection (STI) surveillance in the United States. METHODS: We performed a cross-sectional study of the top 50 US jurisdictions in 2015 for incident infections of HIV, gonorrhea, chlamydia, or primary and secondary syphilis. For each jurisdiction, we described gender-reporting options on HIV and STI data collection forms (also called confidential morbidity report forms) and data surveillance reports, which present aggregate data at either the county or the state level. RESULTS: Seventy-one jurisdictions were among the top 50 for at least 1 infection, and we included them. Gender minority categories appeared on 60 of 71 (85%) HIV confidential morbidity report forms and 33 of 70 (47%) STI confidential morbidity report forms, and in 22 of 71 (31%) HIV surveillance reports and 8 of 71 (11%) STI surveillance reports. CONCLUSIONS: Collection and reporting of gender data were suboptimal and inconsistent. Gender minority data were collected more often than reported, suggesting barriers to reporting. Health departments should standardize collection and reporting of gender data in HIV and STI surveillance to better inform prevention and control efforts.
Authors: Sari L Reisner; Tonia Poteat; JoAnne Keatley; Mauro Cabral; Tampose Mothopeng; Emilia Dunham; Claire E Holland; Ryan Max; Stefan D Baral Journal: Lancet Date: 2016-06-17 Impact factor: 79.321
Authors: Madeline B Deutsch; Jamison Green; JoAnne Keatley; Gal Mayer; Jennifer Hastings; Alexandra M Hall Journal: J Am Med Inform Assoc Date: 2013-04-30 Impact factor: 4.497
Authors: Diana M Tordoff; Brian Minalga; Bennie Beck Gross; Aleks Martin; Billy Caracciolo; Lindley A Barbee; Jennifer E Balkus; Christine M Khosropour Journal: Sex Transm Dis Date: 2022-02-01 Impact factor: 2.830
Authors: Diana M Tordoff; Sahar Zangeneh; Christine M Khosropour; Sara N Glick; Raymond Scott McClelland; Dobromir Dimitrov; Sari Reisner; Ann Duerr Journal: J Acquir Immune Defic Syndr Date: 2022-04-15 Impact factor: 3.771