Rochelle Watson1,2,3, Jamie Bryant4,5,6, Robert Sanson-Fisher1,2,3, Heidi Turon1,2,3, Lisa Hyde1,2,3, Anne Herrmann1,2,3. 1. Health Behaviour Research Collaborative, School of Medicine and Public Health, Faculty of Health and Medicine, University of Newcastle, W4, HMRI Building, Callaghan, NSW, 2308, Australia. 2. Priority Research Centre for Health Behaviour, University of Newcastle, Callaghan, Australia. 3. Hunter Medical Research Institute, New Lambton Heights, Australia. 4. Health Behaviour Research Collaborative, School of Medicine and Public Health, Faculty of Health and Medicine, University of Newcastle, W4, HMRI Building, Callaghan, NSW, 2308, Australia. Jamie.Bryant@newcastle.edu.au. 5. Priority Research Centre for Health Behaviour, University of Newcastle, Callaghan, Australia. Jamie.Bryant@newcastle.edu.au. 6. Hunter Medical Research Institute, New Lambton Heights, Australia. Jamie.Bryant@newcastle.edu.au.
Abstract
PURPOSE: To explore the experiences of haematological cancer outpatients in obtaining information about their cancer and its treatment. METHODS: A cross-sectional survey of adult haematological cancer outpatients was conducted. Participants completed two pen-and-paper questionnaires: the first examined demographics and disease characteristics; the second, completed four weeks later, asked about the cancer information received. Participants indicated whether they received the information they needed about medical procedures and self-management, experiences regarding doctor-patient communication, and self-efficacy in seeking information and support. Where possible, items were derived from Australian psychosocial cancer care guidelines. RESULTS: Two hundred and ninety-three (84%) patients consented to participate, with 170 (58%) completing both questionnaires. Most participants reported receiving information in accordance with guidelines. Areas identified as requiring improvement included difficulty recalling information (28%); information overload (26%); insufficient opportunity to ask questions (23%); and insufficient information about managing anxiety related to medical procedures (20%). CONCLUSION: While many haematological cancer patients report receiving adequate information, there is room for improvement. Implementation of evidence-based strategies, such as decision aids or audiotapes of the consultation, may help to improve information experiences. PRACTICE IMPLICATIONS: A patient-centred approach to information provision is essential for ensuring information addresses the needs and preferences of the patient.
PURPOSE: To explore the experiences of haematological cancer outpatients in obtaining information about their cancer and its treatment. METHODS: A cross-sectional survey of adult haematological cancer outpatients was conducted. Participants completed two pen-and-paper questionnaires: the first examined demographics and disease characteristics; the second, completed four weeks later, asked about the cancer information received. Participants indicated whether they received the information they needed about medical procedures and self-management, experiences regarding doctor-patient communication, and self-efficacy in seeking information and support. Where possible, items were derived from Australian psychosocial cancer care guidelines. RESULTS: Two hundred and ninety-three (84%) patients consented to participate, with 170 (58%) completing both questionnaires. Most participants reported receiving information in accordance with guidelines. Areas identified as requiring improvement included difficulty recalling information (28%); information overload (26%); insufficient opportunity to ask questions (23%); and insufficient information about managing anxiety related to medical procedures (20%). CONCLUSION: While many haematological cancerpatients report receiving adequate information, there is room for improvement. Implementation of evidence-based strategies, such as decision aids or audiotapes of the consultation, may help to improve information experiences. PRACTICE IMPLICATIONS: A patient-centred approach to information provision is essential for ensuring information addresses the needs and preferences of the patient.
Entities:
Keywords:
Cancer; Communication; Information provision; Patient experiences
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