Literature DB >> 30339657

Acceptability and Feasibility of a Disease-specific Patient Portal in Adolescents With Sickle Cell Disease.

Katherine M Kidwell1, James Peugh1, Emilie Westcott1, Cara Nwankwo1, Maria T Britto2,3, Charles T Quinn4, Lori E Crosby1.   

Abstract

OBJECTIVE: To examine the acceptability, feasibility, and efficacy of a health care portal. OBSERVATIONS: Adolescents and young adults with sickle cell disease were taught how to use sickle cell disease conditions page in MyChart and completed questionnaires at baseline, postintervention (T2, 6 wk after baseline) and after 3 months (T3). In total, 44 participants (M age=18.82, SD=2.72) viewed an average of 58.07 pages from T1 to T2. The portal was highly accepted (90.32%). Efficacy data indicated that portal use was associated with improved patient-provider communication.
CONCLUSIONS: Electronic portals are promising tools for improving medical self-management.

Entities:  

Mesh：

Year:  2019        PMID： 30339657      PMCID： PMC6472992          DOI： 10.1097/MPH.0000000000001341

Source DB:  PubMed          Journal:  J Pediatr Hematol Oncol        ISSN： 1077-4114            Impact factor:   1.289


  11 in total

1.  Improved survival of children and adolescents with sickle cell disease.

Authors:  Charles T Quinn; Zora R Rogers; Timothy L McCavit; George R Buchanan
Journal:  Blood       Date:  2010-03-01       Impact factor: 22.113

2.  The anxious wait: assessing the impact of patient accessible EHRs for breast cancer patients.

Authors:  David Wiljer; Kevin J Leonard; Sara Urowitz; Emma Apatu; Christine Massey; Naa Kwarley Quartey; Pamela Catton
Journal:  BMC Med Inform Decis Mak       Date:  2010-09-01       Impact factor: 2.796

Review 3.  Adolescents with a chronic condition: challenges living, challenges treating.

Authors:  Susan M Sawyer; Sarah Drew; Michele S Yeo; Maria T Britto
Journal:  Lancet       Date:  2007-04-28       Impact factor: 79.321

4.  Use of a patient-accessible electronic medical record in a practice for congestive heart failure: patient and physician experiences.

Authors:  Mark A Earnest; Stephen E Ross; Loretta Wittevrongel; Laurie A Moore; Chen-Tan Lin
Journal:  J Am Med Inform Assoc       Date:  2004-06-07       Impact factor: 4.497

5.  Practice-linked online personal health records for type 2 diabetes mellitus: a randomized controlled trial.

Authors:  Richard W Grant; Jonathan S Wald; Jeffrey L Schnipper; Tejal K Gandhi; Eric G Poon; E John Orav; Deborah H Williams; Lynn A Volk; Blackford Middleton
Journal:  Arch Intern Med       Date:  2008-09-08

6.  The Transition Readiness Assessment Questionnaire (TRAQ): its factor structure, reliability, and validity.

Authors:  David L Wood; Gregory S Sawicki; M David Miller; Carmen Smotherman; Katryne Lukens-Bull; William C Livingood; Maria Ferris; Dale F Kraemer
Journal:  Acad Pediatr       Date:  2014 Jul-Aug       Impact factor: 3.107

Review 7.  Electronic patient portals: evidence on health outcomes, satisfaction, efficiency, and attitudes: a systematic review.

Authors:  Caroline Lubick Goldzweig; Greg Orshansky; Neil M Paige; Ali Alexander Towfigh; David A Haggstrom; Isomi Miake-Lye; Jessica M Beroes; Paul G Shekelle
Journal:  Ann Intern Med       Date:  2013-11-19       Impact factor: 25.391

8.  Patients' continuing use of an online health record: a quantitative evaluation of 14,000 patient years of access data.

Authors:  Richard G Phelps; Joanne Taylor; Keith Simpson; Jasmine Samuel; A Neil Turner
Journal:  J Med Internet Res       Date:  2014-10-24       Impact factor: 5.428

Review 9.  Patient and provider attitudes toward the use of patient portals for the management of chronic disease: a systematic review.

Authors:  Clemens Scott Kruse; Darcy A Argueta; Lynsey Lopez; Anju Nair
Journal:  J Med Internet Res       Date:  2015-02-20       Impact factor: 5.428

10.  Web-based collaborative care for type 2 diabetes: a pilot randomized trial.

Authors:  James D Ralston; Irl B Hirsch; James Hoath; Mary Mullen; Allen Cheadle; Harold I Goldberg
Journal:  Diabetes Care       Date:  2008-11-18       Impact factor: 17.152
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  4 in total

1.  A program of transition to adult care for sickle cell disease.

Authors:  Anjelica C Saulsberry; Jerlym S Porter; Jane S Hankins
Journal:  Hematology Am Soc Hematol Educ Program       Date:  2019-12-06

Review 2.  A scoping review of transition interventions for young adults with sickle cell disease.

Authors:  Adrienne Viola; Jerlym Porter; Jelaina Shipman; Ellen Brooks; Cecilia Valrie
Journal:  Pediatr Blood Cancer       Date:  2021-06-05       Impact factor: 3.167

3.  Patient Engagement as Measured by Inpatient Portal Use: Methodology for Log File Analysis.

Authors:  Timothy Huerta; Naleef Fareed; Jennifer L Hefner; Cynthia J Sieck; Christine Swoboda; Robert Taylor; Ann Scheck McAlearney
Journal:  J Med Internet Res       Date:  2019-03-25       Impact factor: 5.428

4.  Assessment of: self-management skills towards transition readiness and patient portal use among Hispanic adolescent and young adult patients.

Authors:  Sophie Allende-Richter; Melanie Ramirez; Zana Khoury; Fabienne Bourgeois; Alexandra Epee-Bounya; Kitty O'Hare
Journal:  BMJ Paediatr Open       Date:  2020-04-26
  4 in total

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