| Literature DB >> 30336897 |
Maria Brenner1, Miriam P O'Shea2, Rebecca McHugh2, Anne Clancy3, Philip Larkin4, Daniela Luzi5, Fabrizio Pecoraro5, Elena Montañana Olaso2, Sapfo Lignou6, Manna Alma7, Rose-Marie Satherley6, Oscar Tamburis5, Austin Warters2, Ingrid Wolfe8, Carol Hilliard9, Jay Berry10, Denise Alexander11, Michael Rigby12, Mitch Blair12.
Abstract
This Viewpoint presents and discusses the development of the first core principles and standards for effective, personalised care of children living with complex care needs in Europe. These principles and standards emerged from an analysis of data gathered on several areas, including the integration of care for the child at the acute-community interface, the referral-discharge interface, the social care interface, nursing preparedness for practice, and experiences of the child and family. The three main principles, underpinned by a child-centric approach, are access to care, co-creation of care, and effective integrated governance. Collectively, the principles and standards offer a means to benchmark existing services for children living with complex care needs, to influence policy in relation to service delivery for these children, and to provide a suite of indicators with which to assess future service developments in this area.Entities:
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Year: 2018 PMID: 30336897 DOI: 10.1016/S2352-4642(18)30270-0
Source DB: PubMed Journal: Lancet Child Adolesc Health ISSN: 2352-4642