Literature DB >> 30336897

Principles for provision of integrated complex care for children across the acute-community interface in Europe.

Maria Brenner1, Miriam P O'Shea2, Rebecca McHugh2, Anne Clancy3, Philip Larkin4, Daniela Luzi5, Fabrizio Pecoraro5, Elena Montañana Olaso2, Sapfo Lignou6, Manna Alma7, Rose-Marie Satherley6, Oscar Tamburis5, Austin Warters2, Ingrid Wolfe8, Carol Hilliard9, Jay Berry10, Denise Alexander11, Michael Rigby12, Mitch Blair12.   

Abstract

This Viewpoint presents and discusses the development of the first core principles and standards for effective, personalised care of children living with complex care needs in Europe. These principles and standards emerged from an analysis of data gathered on several areas, including the integration of care for the child at the acute-community interface, the referral-discharge interface, the social care interface, nursing preparedness for practice, and experiences of the child and family. The three main principles, underpinned by a child-centric approach, are access to care, co-creation of care, and effective integrated governance. Collectively, the principles and standards offer a means to benchmark existing services for children living with complex care needs, to influence policy in relation to service delivery for these children, and to provide a suite of indicators with which to assess future service developments in this area.
Copyright © 2018 Elsevier Ltd. All rights reserved.

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Year:  2018        PMID: 30336897     DOI: 10.1016/S2352-4642(18)30270-0

Source DB:  PubMed          Journal:  Lancet Child Adolesc Health        ISSN: 2352-4642


  8 in total

1.  Development of a suite of metrics and indicators for children's nursing using consensus methodology.

Authors:  Maria Brenner; Catherine Browne; Anne Gallen; Susanna Byrne; Ciara White; Mary Nolan
Journal:  J Clin Nurs       Date:  2019-04-04       Impact factor: 3.036

Review 2.  A systematic concept analysis of 'technology dependent': challenging the terminology.

Authors:  Maria Brenner; Denise Alexander; Mary Brigid Quirke; Jessica Eustace-Cook; Piet Leroy; Jay Berry; Martina Healy; Carmel Doyle; Kate Masterson
Journal:  Eur J Pediatr       Date:  2020-07-24       Impact factor: 3.183

3.  Well siblings' experiences of living with a child following a traumatic brain injury: a systematic review protocol.

Authors:  Katie Hill; Maria Brenner
Journal:  Syst Rev       Date:  2019-04-02

4.  Increasing the Focus on Children's Complex and Integrated Care Needs: A Position Paper of the European Academy of Pediatrics.

Authors:  Maria Brenner; Josephine Greene; Carmel Doyle; Berthold Koletzko; Stefano Del Torso; Ivan Bambir; Ann De Guchtenaere; Theofilos Polychronakis; Laura Reali; Adamos A Hadjipanayis
Journal:  Front Pediatr       Date:  2021-12-01       Impact factor: 3.418

5.  Exploring the Use of a Facebook-Based Support Group for Caregivers of Children and Youth With Complex Care Needs: Qualitative Descriptive Study.

Authors:  Katherine Jennifer Kelly; Shelley Doucet; Alison Luke; Rima Azar; William Montelpare
Journal:  JMIR Pediatr Parent       Date:  2022-06-07

6.  Enhancing care of children with complex healthcare needs: an improvement project in a community health organisation in Ireland.

Authors:  Maria Brenner; Amanda Doyle; Thelma Begley; Carmel Doyle; Katie Hill; Maryanne Murphy
Journal:  BMJ Open Qual       Date:  2021-02

7.  Integrated health Services for Children: a qualitative study of family perspectives.

Authors:  Rose-Marie Satherley; Raghu Lingam; Judith Green; Ingrid Wolfe
Journal:  BMC Health Serv Res       Date:  2021-02-23       Impact factor: 2.655

8.  Transition of children with life-limiting conditions to adult care and healthcare use: a systematic review.

Authors:  Stuart W Jarvis; Daniel Roberts; Kate Flemming; Gerry Richardson; Lorna K Fraser
Journal:  Pediatr Res       Date:  2021-03-02       Impact factor: 3.756

  8 in total

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