Literature DB >> 30335558

Online Communities as Sources of Peer Support for People Living With Cancer: A Commentary.

Tanya Gupta1, Lidia Schapira1.   

Abstract

Online communities are virtual spaces dedicated to hosting conversations between individuals with a common interest. Information can be shared and obtained incrementally, as users can periodically post both questions and responses to other users' questions. Although online communities have been used frequently by patients for a myriad of health issues, much remains to be learned about these resources. In this commentary, we explore the emerging role of online communities as forums for information exchange and sources of support for patients with cancer and caregivers. We discuss selected examples of online communities launched by research institutions, advocacy groups, philanthropic organizations, start-ups, and novel enterprises featuring collaborations between industry, health care professionals, and advocates. We explore the risks and benefits of online communities as perceived by oncology clinicians and provide practical recommendations for improving communication between clinicians and patients about the use of online resources.

Entities:  

Year:  2018        PMID: 30335558     DOI: 10.1200/JOP.18.00261

Source DB:  PubMed          Journal:  J Oncol Pract        ISSN: 1554-7477            Impact factor:   3.840


  7 in total

1.  Acceptability and Appropriateness of Digital PrEP Interventions for Black and Latina Cisgender Women: Perspectives From Service Providers in Los Angeles County.

Authors:  Dilara K Üsküp; Omar Nieto; Elena Rosenberg-Carlson; Sung-Jae Lee; Norweeta G Milburn; Ronald A Brooks
Journal:  J Acquir Immune Defic Syndr       Date:  2022-07-01       Impact factor: 3.771

2.  Development and Evaluation of the Canteen Connect Online Health Community: Using a Participatory Design Approach in Meeting the Needs of Young People Impacted by Cancer.

Authors:  Jennifer Cohen; Pandora Patterson; Melissa Noke; Kristina Clarke; Olga Husson
Journal:  Cancers (Basel)       Date:  2021-12-23       Impact factor: 6.639

3.  Opportunities to expand access to mental health services: A case for the role of online peer support communities.

Authors:  Rutvij Merchant; Aleah Goldin; Deepa Manjanatha; Claire Harter; Judy Chandler; Amanda Lipp; Theresa Nguyen; John A Naslund
Journal:  Psychiatr Q       Date:  2022-02-28

4.  The experiences of family members of deceased organ donors and suggestions to improve the donation process: a qualitative study.

Authors:  Aimee J Sarti; Stephanie Sutherland; Maureen Meade; Sam Shemie; Angele Landriault; Brandi Vanderspank-Wright; Sabira Valiani; Sean Keenan; Matthew J Weiss; Kim Werestiuk; Andreas H Kramer; Joann Kawchuk; Stephen Beed; Sonny Dhanani; Giuseppe Pagliarello; Michaël Chassé; Ken Lotherington; Mary Gatien; Kim Parsons; Jennifer A Chandler; Peter Nickerson; Pierre Cardinal
Journal:  CMAJ       Date:  2022-08-08       Impact factor: 16.859

5.  Information Patients With Melanoma Spontaneously Report About Health-Related Quality of Life on Web-Based Forums: Case Study.

Authors:  Rachel R J Kalf; Diana M J Delnoij; Bettina Ryll; Marcel L Bouvy; Wim G Goettsch
Journal:  J Med Internet Res       Date:  2021-12-07       Impact factor: 5.428

6.  Recall, perceptions and determinants of receiving physical activity advice amongst cancer survivors: a mixed-methods survey.

Authors:  Samuel T Orange; Stephen E Gilbert; Morven C Brown; John M Saxton
Journal:  Support Care Cancer       Date:  2021-04-22       Impact factor: 3.603

7.  How to be together and carry on our project activities during COVID-19 pandemic in Rome.

Authors:  Andrea De Salvo; Matteo Amicucci; Italo Ciaralli; Domitilla Secco; Evelina Miele; Francesca Bevilacqua; Giuseppe Maria Milano
Journal:  Pediatr Blood Cancer       Date:  2020-08-03       Impact factor: 3.838

  7 in total

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