| Literature DB >> 35940617 |
Aimee J Sarti1, Stephanie Sutherland2, Maureen Meade2, Sam Shemie2, Angele Landriault2, Brandi Vanderspank-Wright2, Sabira Valiani2, Sean Keenan2, Matthew J Weiss2, Kim Werestiuk2, Andreas H Kramer2, Joann Kawchuk2, Stephen Beed2, Sonny Dhanani2, Giuseppe Pagliarello2, Michaël Chassé2, Ken Lotherington2, Mary Gatien2, Kim Parsons2, Jennifer A Chandler2, Peter Nickerson2, Pierre Cardinal2.
Abstract
BACKGROUND: Decisions about organ donation are stressful for family members of potential organ donors. We sought to comprehensively explore the donation process from interviews conducted with family members of patients admitted to pediatric and adult intensive care units in Canada.Entities:
Mesh:
Year: 2022 PMID: 35940617 PMCID: PMC9365431 DOI: 10.1503/cmaj.220508
Source DB: PubMed Journal: CMAJ ISSN: 0820-3946 Impact factor: 16.859
Figure 1:Flow chart for family member recruitment process. Note: ODO = organ donation organization.
Figure 2:Qualitative themes and subthemes.
Twenty suggestions for improving the organ donation process, derived from interviews with family members of pediatric and adult organ donors
| Qualitative theme | Suggestions |
|---|---|
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| Shared experiences | Have another person, who has lived a similar experience, available to provide support at the hospital. These people might be selected from a virtual donor network (e.g., donation champions). |
| Specific moments | Clarity of information from health care professionals, including:
Early and clear education about the distinction between brain death and coma Advance notification about testing and test-based time requirements |
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| Awareness of recipient(s) status | Routinely offer updates to family members about the status of the transplanted organs and their recipient(s). |
| Mutual connection | Provide the opportunity for contact with recipient(s), if both parties are mutually agreeable. |
| Planned encounters | Facilitate meetings between donor families and recipient(s), when mutually agreeable. |
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| Organ recovery update | Provide information after the donation surgery on the outcome of the surgery, what organs were recovered and, if applicable, when and why certain organs were not recovered. |
| Early mental health checks | Offer a mental health appointment shortly after donation, as there are substantial difficulties in accessing needed mental health services for family members. |
| Continued connection | Increase follow-up opportunities from the organ donation organization, hospital or another organization working with bereaved people, both immediate and long term (i.e., 3 or more yr after death of the donor). |