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Literature DB >> 30309935

Return of results and data to study participants.

Susan M Wolf¹, Barbara J Evans².

Abstract

Entities: Species

Mesh：

Year: 2018 PMID： 30309935 DOI： 10.1126/science.aav0005

Source DB: PubMed Journal: Science ISSN： 0036-8075 Impact factor: 47.728

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Cited

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12 in total

Review 1. International Society of Psychiatric Genetics Ethics Committee: Issues facing us.

Authors: Gabriel Lázaro-Muñoz; Maya Sabatello; Laura Huckins; Holly Peay; Franziska Degenhardt; Bettina Meiser; Todd Lencz; Takahiro Soda; Anna Docherty; David Crepaz-Keay; Jehannine Austin; Roseann E Peterson; Lea K Davis
Journal: Am J Med Genet B Neuropsychiatr Genet Date: 2019-05-23 Impact factor: 3.568

2. Integrating Rules for Genomic Research, Clinical Care, Public Health Screening and DTC Testing: Creating Translational Law for Translational Genomics.

Authors: Susan M Wolf; Pilar N Ossorio; Susan A Berry; Henry T Greely; Amy L McGuire; Michelle A Penny; Sharon F Terry
Journal: J Law Med Ethics Date: 2020-03 Impact factor: 1.718

3. Issues in the Use of Human Tissues to Support Precision Medicine.

Authors: William E Grizzle
Journal: J Health Care Poor Underserved Date: 2019

4. THE GENETIC INFORMATION NONDISCRIMINATION ACT AT AGE 10: GINA'S CONTROVERSIAL ASSERTION THAT DATA TRANSPARENCY PROTECTS PRIVACY AND CIVIL RIGHTS.

Authors: Barbara J Evans
Journal: William Mary Law Rev Date: 2019

5. Stakeholder Perspectives on Returning Nonactionable Apolipoprotein L1 (APOL1) Genetic Results to African American Research Participants.

Authors: Kathleen M West; Kerri L Cavanaugh; Erika Blacksher; Stephanie M Fullerton; Ebele M Umeukeje; Bessie Young; Wylie Burke
Journal: J Empir Res Hum Res Ethics Date: 2021-12-06 Impact factor: 1.978

Review 6. The Project Baseline Health Study: a step towards a broader mission to map human health.

Authors: Kristine Arges; Themistocles Assimes; Vikram Bajaj; Suresh Balu; Mustafa R Bashir; Laura Beskow; Rosalia Blanco; Robert Califf; Paul Campbell; Larry Carin; Victoria Christian; Scott Cousins; Millie Das; Marie Dockery; Pamela S Douglas; Ashley Dunham; Julie Eckstrand; Dominik Fleischmann; Emily Ford; Elizabeth Fraulo; John French; Sanjiv S Gambhir; Geoffrey S Ginsburg; Robert C Green; Francois Haddad; Adrian Hernandez; John Hernandez; Erich S Huang; Glenn Jaffe; Daniel King; Lynne H Koweek; Curtis Langlotz; Yaping J Liao; Kenneth W Mahaffey; Kelly Marcom; William J Marks; David Maron; Reid McCabe; Shannon McCall; Rebecca McCue; Jessica Mega; David Miller; Lawrence H Muhlbaier; Rajan Munshi; L Kristin Newby; Ezra Pak-Harvey; Bray Patrick-Lake; Michael Pencina; Eric D Peterson; Fatima Rodriguez; Scarlet Shore; Svati Shah; Steven Shipes; George Sledge; Susie Spielman; Ryan Spitler; Terry Schaack; Geeta Swamy; Martin J Willemink; Charlene A Wong
Journal: NPJ Digit Med Date: 2020-06-05

Return of results and data to study participants.

Review 1. International Society of Psychiatric Genetics Ethics Committee: Issues facing us.

2. Integrating Rules for Genomic Research, Clinical Care, Public Health Screening and DTC Testing: Creating Translational Law for Translational Genomics.

3. Issues in the Use of Human Tissues to Support Precision Medicine.

4. THE GENETIC INFORMATION NONDISCRIMINATION ACT AT AGE 10: GINA'S CONTROVERSIAL ASSERTION THAT DATA TRANSPARENCY PROTECTS PRIVACY AND CIVIL RIGHTS.

5. Stakeholder Perspectives on Returning Nonactionable Apolipoprotein L1 (APOL1) Genetic Results to African American Research Participants.

Review 6. The Project Baseline Health Study: a step towards a broader mission to map human health.

Review 7. At the Research-Clinical Interface: Returning Individual Genetic Results to Research Participants.

8. MCR: Open-Source Software to Automate Compilation of Health Study Report-Back.

9. A FAUSTIAN BARGAIN THAT UNDERMINES RESEARCH PARTICIPANTS' PRIVACY RIGHTS AND RETURN OF RESULTS.

10. Structure and Function of Oral Microbial Community in Periodontitis Based on Integrated Data.