Literature DB >> 30306313

Online and Social Media Resources for Patients with MDS.

Nour Abuhadra1, Aziz Nazha2.   

Abstract

PURPOSE OF REVIEW: The number of online resources for patients with MDS is exponentially increasing; this is in large part due to the advent of social media which has introduced multiple avenues for information exchange and communication. Whether this information is targeted towards the patient population or not, the wealth of information online represents a new era of patient engagement in their health care. This review aims to highlight the different online resources being used in the field of MDS. RECENT
FINDINGS: Patients with MDS have access to the opinions of thought leaders in the field, advances in research and clinical trials, and the latest updates at national conferences and leading journals through social media. Social media is a powerful educational resource for patients with MDS when used conscientiously.

Entities:  

Keywords:  MDS; Social media; Twitter

Mesh:

Year:  2018        PMID: 30306313     DOI: 10.1007/s11899-018-0486-2

Source DB:  PubMed          Journal:  Curr Hematol Malig Rep        ISSN: 1558-8211            Impact factor:   3.952


  27 in total

1.  Scientists in the Twitterverse.

Authors:  Neil Savage
Journal:  Cell       Date:  2015-07-16       Impact factor: 41.582

2.  Social Media: Portrait of an Emerging Tool in Medical Education.

Authors:  Durga Roy; Jacob Taylor; Christine C Cheston; Tabor E Flickinger; Margaret S Chisolm
Journal:  Acad Psychiatry       Date:  2015-03-24

3.  Physicians, social media, and conflict of interest.

Authors:  Matthew Decamp
Journal:  J Gen Intern Med       Date:  2012-11-06       Impact factor: 5.128

4.  Social Media and Physician Conflict of Interest.

Authors:  Cian P McCarthy; Matthew DeCamp; John W McEvoy
Journal:  Am J Med       Date:  2018-03-09       Impact factor: 4.965

5.  Editorial overview: Emerging importance of social media for real-time communication in the modern medical era.

Authors:  Naveen Pemmaraju
Journal:  Semin Hematol       Date:  2017-08-25       Impact factor: 3.851

Review 6.  Analysis of First-Year Twitter Metrics of a Rare Disease Community for Blastic Plasmacytoid Dendritic Cell Neoplasm (BPDCN) on Social Media: #BPDCN.

Authors:  Naveen Pemmaraju; Audun Utengen; Vikas Gupta; Michael A Thompson; Andrew A Lane
Journal:  Curr Hematol Malig Rep       Date:  2017-12       Impact factor: 3.952

7.  A Pilot Study of the Telomerase Inhibitor Imetelstat for Myelofibrosis.

Authors:  Ayalew Tefferi; Terra L Lasho; Kebede H Begna; Mrinal M Patnaik; Darci L Zblewski; Christy M Finke; Rebecca R Laborde; Emnet Wassie; Lauren Schimek; Curtis A Hanson; Naseema Gangat; Xiaolin Wang; Animesh Pardanani
Journal:  N Engl J Med       Date:  2015-09-03       Impact factor: 91.245

8.  Patients' perspectives of accessibility and digital delivery of factual content provided by official medical and surgical specialty society websites: a qualitative assessment.

Authors:  Darren Ow; David Wetherell; Nathan Papa; Damien Bolton; Nathan Lawrentschuk
Journal:  Interact J Med Res       Date:  2015-03-27

Review 9.  Unraveling Myelodysplastic Syndromes: Current Knowledge and Future Directions.

Authors:  Ali N Chamseddine; Elias Jabbour; Hagop M Kantarjian; Zachary S Bohannan; Guillermo Garcia-Manero
Journal:  Curr Oncol Rep       Date:  2016-01       Impact factor: 5.945

Review 10.  Social media: a review and tutorial of applications in medicine and health care.

Authors:  Francisco Jose Grajales; Samuel Sheps; Kendall Ho; Helen Novak-Lauscher; Gunther Eysenbach
Journal:  J Med Internet Res       Date:  2014-02-11       Impact factor: 5.428

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