Literature DB >> 30267251

It's a Battle and a Blessing: The Experience and Needs of Custodial Grandparents of Children with Autism Spectrum Disorder.

Jennifer L Hillman1, Connie M Anderson2.   

Abstract

We know little about custodial grandparents of children with autism spectrum disorder (ASD) who offer a vital social safety net. 117 custodial grandparents of children with ASD from 37 states completed an online survey with open-ended questions about their "greatest challenges and joys" as grandparent. Grounded theory analysis revealed four categories of experience (Issues with Adult Children, Caregiving Burden, Coping, & Wisdom) explained by 15 themes. Grandparents' stressors encompassed custody issues, ASD problem behaviors like tantrums and eloping, insufficient ASD services, financial burden, 24/7 caregiving demands, social isolation, and fears for the future. Grandparents' coping included celebrations of progress, unconditional love, faith, and a positive focus. Grandparents' wisdom included patience and insight. Recommendations to support these caregivers are provided.

Entities:  

Keywords:  Autism spectrum disorder; Caregiving; Coping; Custodial grandparents; Disabilities; Grandchildren; Kin networks; Respite; Strength-based approach; Tantrums; Wisdom

Mesh：

Year:  2019        PMID： 30267251     DOI： 10.1007/s10803-018-3761-0

Source DB:  PubMed          Journal:  J Autism Dev Disord        ISSN： 0162-3257


  16 in total

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Authors:  Samuel D Gosling; Simine Vazire; Sanjay Srivastava; Oliver P John
Journal:  Am Psychol       Date:  2004 Feb-Mar

2.  Enrichment, stress, and growth from parenting an individual with an autism spectrum disorder.

Authors:  Kenneth W Phelps; Susan L McCammon; Karl L Wuensch; Jeannie A Golden
Journal:  J Intellect Dev Disabil       Date:  2009-06

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4.  Relationship between children's sleep and mental health in mothers of children with and without autism.

Authors:  Danelle Hodge; Charles D Hoffman; Dwight P Sweeney; Matt L Riggs
Journal:  J Autism Dev Disord       Date:  2013-04

Review 5.  Social comparison activity under threat: downward evaluation and upward contacts.

Authors:  S E Taylor; M Lobel
Journal:  Psychol Rev       Date:  1989-10       Impact factor: 8.934

6.  Food selectivity, mealtime behavior problems, spousal stress, and family food choices in children with and without autism spectrum disorder.

Authors:  C Curtin; K Hubbard; S E Anderson; E Mick; A Must; L G Bandini
Journal:  J Autism Dev Disord       Date:  2015-10

7.  Grandparents' Experience of Autism Spectrum Disorder: Identifying Primary Themes and Needs.

Authors:  Jennifer L Hillman; Michele C Wentzel; Connie M Anderson
Journal:  J Autism Dev Disord       Date:  2017-10

8.  The impact of parenting stress: a meta-analysis of studies comparing the experience of parenting stress in parents of children with and without autism spectrum disorder.

Authors:  Stephanie A Hayes; Shelley L Watson
Journal:  J Autism Dev Disord       Date:  2013-03

9.  Evidence of resilience in families of children with autism.

Authors:  M Bayat
Journal:  J Intellect Disabil Res       Date:  2007-09

10.  Respite Care for Single Mothers of Children with Autism Spectrum Disorders.

Authors:  Tina Taylor Dyches; Ruthann Christensen; James M Harper; Barbara Mandleco; Susanne Olsen Roper
Journal:  J Autism Dev Disord       Date:  2016-03
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  2 in total

1.  Exploring the Moderating Role of Benefit Finding on the Relationship Between Child Problematic Behaviours and Psychological Distress in Caregivers of Children with ASD.

Authors:  Brian Lovell; Mark A Wetherell
Journal:  J Autism Dev Disord       Date:  2020-02

2.  The Relationship Between Resilience and Posttraumatic Growth Among the Primary Caregivers of Children With Developmental Disabilities: The Mediating Role of Positive Coping Style and Self-Efficacy.

Authors:  Wan Lu; Chen Xu; Xiankang Hu; Ju Liu; Qianhui Zhang; Li Peng; Min Li; Wenzao Li
Journal:  Front Psychol       Date:  2022-01-04
  2 in total

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