Literature DB >> 28688077

Grandparents' Experience of Autism Spectrum Disorder: Identifying Primary Themes and Needs.

Jennifer L Hillman1, Michele C Wentzel2, Connie M Anderson3.   

Abstract

Limited information is available regarding the first person perspective of grandparents of children with Autism Spectrum Disorders (ASD). In the present study, 1870 grandparents of a child with ASD participated in a nationwide, online, anonymous, 30-minute survey and responded to open-ended questions including their "greatest challenges and greatest joys" as the grandparent of a child on the autism spectrum. A grounded theory approach to qualitative analysis revealed four overarching categories: a Desire for Connection, Barriers to Care, Celebration of Progress, and Personal Reactions. Despite the presence of significant challenges grandparents often experienced positivity in their role, and engaged in radical acceptance of their grandchild as well as transformative insight and advocacy. Specific recommendations are offered to help address grandparents' needs and capitalize upon their resilience.

Entities:  

Keywords:  Autism spectrum disorder; Communication; Coping; Depression; Grandchildren; Grandparents; Inappropriate behavior; Resilience; Tantrums

Mesh：

Year:  2017        PMID： 28688077     DOI： 10.1007/s10803-017-3211-4

Source DB:  PubMed          Journal:  J Autism Dev Disord        ISSN： 0162-3257


  26 in total

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Authors:  Danelle Hodge; Charles D Hoffman; Dwight P Sweeney; Matt L Riggs
Journal:  J Autism Dev Disord       Date:  2013-04

3.  Families in a state of flux: the experience of grandparents in autism spectrum disorder.

Authors:  J K Margetts; A Le Couteur; S Croom
Journal:  Child Care Health Dev       Date:  2006-09       Impact factor: 2.508

4.  Food selectivity, mealtime behavior problems, spousal stress, and family food choices in children with and without autism spectrum disorder.

Authors:  C Curtin; K Hubbard; S E Anderson; E Mick; A Must; L G Bandini
Journal:  J Autism Dev Disord       Date:  2015-10

5.  Children on the autism spectrum: grandmother involvement and family functioning.

Authors:  Alison Sullivan; Greta Winograd; Jay Verkuilen; Marian C Fish
Journal:  J Appl Res Intellect Disabil       Date:  2012-07-09

6.  Gender and coping: the parents of children with high functioning autism.

Authors:  David E Gray
Journal:  Soc Sci Med       Date:  2003-02       Impact factor: 4.634

7.  Locus of control fails to mediate between stress and anxiety and depression in parents of children with a developmental disorder.

Authors:  Sarah Hamlyn-Wright; Riccardo Draghi-Lorenz; Jason Ellis
Journal:  Autism       Date:  2007-11

8.  Grandparents of grandchildren with autism spectrum disorders (ASD): strengthening relationships through technology activities.

Authors:  Scott D Wright; Valerie D'Astous; Cheryl A Wright; Marissa L Diener
Journal:  Int J Aging Hum Dev       Date:  2012

9.  Respite Care for Single Mothers of Children with Autism Spectrum Disorders.

Authors:  Tina Taylor Dyches; Ruthann Christensen; James M Harper; Barbara Mandleco; Susanne Olsen Roper
Journal:  J Autism Dev Disord       Date:  2016-03

10.  Prevalence and Characteristics of Autism Spectrum Disorder Among Children Aged 8 Years--Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2012.

Authors:  Deborah L Christensen; Jon Baio; Kim Van Naarden Braun; Deborah Bilder; Jane Charles; John N Constantino; Julie Daniels; Maureen S Durkin; Robert T Fitzgerald; Margaret Kurzius-Spencer; Li-Ching Lee; Sydney Pettygrove; Cordelia Robinson; Eldon Schulz; Chris Wells; Martha S Wingate; Walter Zahorodny; Marshalyn Yeargin-Allsopp
Journal:  MMWR Surveill Summ       Date:  2016-04-01
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  5 in total

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Journal:  J Autism Dev Disord       Date:  2019-05

2.  Couples' Experiences of Parenting a Child After an Autism Diagnosis: A Qualitative Study.

Authors:  Naomi Downes; Jérôme Lichtlé; Kristopher Lamore; Marie-Joëlle Orêve; Emilie Cappe
Journal:  J Autism Dev Disord       Date:  2020-10-16

3.  It's a Battle and a Blessing: The Experience and Needs of Custodial Grandparents of Children with Autism Spectrum Disorder.

Authors:  Jennifer L Hillman; Connie M Anderson
Journal:  J Autism Dev Disord       Date:  2019-01

4.  Needs of Grandparents of Preschool-Aged Children with ASD in Sweden.

Authors:  Rano Zakirova Engstrand; Lise Roll-Pettersson; Mara Westling Allodi; Tatja Hirvikoski
Journal:  J Autism Dev Disord       Date:  2020-06

5.  Group Psychoeducational Intervention for Grandparents of Young Children with ASD: An Open Feasibility Study.

Authors:  Rano Zakirova-Engstrand; Lise Roll-Pettersson; Kristina Andersson; Helena Larsson; Mara Allodi Westling; Tatja Hirvikoski
Journal:  J Autism Dev Disord       Date:  2021-07-10
  5 in total

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