Petra Karlsson1, Anna Bech2, Helen Stone3, Cecily Vale4, Suzan Griffin5,6, Elegast Monbaliu7, Margaret Wallen1,8,9. 1. a Cerebral Palsy Alliance, The University of Sydney , Sydney , Australia. 2. b Speech Pathologist, Cerebral Palsy Alliance , Sydney , Australia. 3. c Team Leader Northern Beaches Child & Family Health Services , Sydney , Australia. 4. d Speech and Language Therapist, NHS Oxleas Foundation Trust , London , UK. 5. e Person with lived experiences of cerebral palsy and eye-gaze control technology , Sydney , Australia. 6. f Research partner, Cerebral Palsy Alliance , Sydney , Australia. 7. g Department Rehabilitation Sciences Campus Brugge , Research group Neuromotor Rehabilitations , KU Leuven , Belgium. 8. h Australian Catholic University , Sydney , Australia. 9. i Honorary Research Fellow, Cerebral Palsy Alliance, The University of Sydney , Sydney , Australia.
Abstract
PURPOSE: This study aims to identify eye-gaze control technology outcomes, parent perception of the technology and support received, and gauge the feasibility of available measures. METHODS: Five children with dyskinetic cerebral palsy, mean age 4 years, 4 months (1 year, 0 months); n = 4 males; trialled two eye-gaze control technology systems, each for six weeks. Parents completed pre- and post-questionnaires. RESULTS: Parents found the 6-week home-based trial period to be the right length. Written guidelines and instructions about set-up, calibration, and play and learning activities were perceived as important. Children demonstrated improvements in goal achievement and performance. Parents found questionnaires on quality of life, participation, behaviours involved in mastering a skill and communication outcomes challenging to complete resulting in substantial missing data. CONCLUSION: Eye-gaze control technology warrants further investigation for young children with dyskinetic cerebral palsy in a large international study.
PURPOSE: This study aims to identify eye-gaze control technology outcomes, parent perception of the technology and support received, and gauge the feasibility of available measures. METHODS: Five children with dyskinetic cerebral palsy, mean age 4 years, 4 months (1 year, 0 months); n = 4 males; trialled two eye-gaze control technology systems, each for six weeks. Parents completed pre- and post-questionnaires. RESULTS: Parents found the 6-week home-based trial period to be the right length. Written guidelines and instructions about set-up, calibration, and play and learning activities were perceived as important. Children demonstrated improvements in goal achievement and performance. Parents found questionnaires on quality of life, participation, behaviours involved in mastering a skill and communication outcomes challenging to complete resulting in substantial missing data. CONCLUSION: Eye-gaze control technology warrants further investigation for young children with dyskinetic cerebral palsy in a large international study.
Authors: Petra Karlsson; Tom Griffiths; Michael T Clarke; Elegast Monbaliu; Kate Himmelmann; Saranda Bekteshi; Abigail Allsop; René Pereksles; Claire Galea; Margaret Wallen Journal: BMC Neurol Date: 2021-02-10 Impact factor: 2.474
Authors: Yu-Hsin Hsieh; Maria Borgestig; Deepika Gopalarao; Joy McGowan; Mats Granlund; Ai-Wen Hwang; Helena Hemmingsson Journal: Int J Environ Res Public Health Date: 2021-05-12 Impact factor: 3.390