Literature DB >> 33568101

Stakeholder consensus for decision making in eye-gaze control technology for children, adolescents and adults with cerebral palsy service provision: findings from a Delphi study.

Petra Karlsson1, Tom Griffiths2,3, Michael T Clarke3, Elegast Monbaliu4, Kate Himmelmann5, Saranda Bekteshi4, Abigail Allsop6, René Pereksles7, Claire Galea6, Margaret Wallen8.   

Abstract

BACKGROUND: Limited research exists to guide clinical decisions about trialling, selecting, implementing and evaluating eye-gaze control technology. This paper reports on the outcomes of a Delphi study that was conducted to build international stakeholder consensus to inform decision making about trialling and implementing eye-gaze control technology with people with cerebral palsy.
METHODS: A three-round online Delphi survey was conducted. In Round 1, 126 stakeholders responded to questions identified through an international stakeholder Advisory Panel and systematic reviews. In Round 2, 63 respondents rated the importance of 200 statements generated by in Round 1. In Round 3, 41 respondents rated the importance of the 105 highest ranked statements retained from Round 2.
RESULTS: Stakeholders achieved consensus on 94 of the original 200 statements. These statements related to person factors, support networks, the environment, and technical aspects to consider during assessment, trial, implementation and follow-up. Findings reinforced the importance of an individualised approach and that information gathered from the user, their support network and professionals are central when measuring outcomes. Information required to support an application for funding was obtained.
CONCLUSION: This Delphi study has identified issues which are unique to eye-gaze control technology and will enhance its implementation with people with cerebral palsy.

Entities:  

Keywords:  Accessibility; Assistive technology; Augmentative and alternative communication; Cerebral palsy; Clinical decision-making; Disabilities; Eye-gaze control technology

Mesh:

Year:  2021        PMID: 33568101      PMCID: PMC7874479          DOI: 10.1186/s12883-021-02077-z

Source DB:  PubMed          Journal:  BMC Neurol        ISSN: 1471-2377            Impact factor:   2.474


  47 in total

Review 1.  Research guidelines for the Delphi survey technique.

Authors:  F Hasson; S Keeney; H McKenna
Journal:  J Adv Nurs       Date:  2000-10       Impact factor: 3.187

2.  Gaze-controlled communication technology for children with severe multiple disabilities: Parents and professionals' perception of gains, obstacles, and prerequisites.

Authors:  Eva Holmqvist; Gunilla Thunberg; Marie Peny Dahlstrand
Journal:  Assist Technol       Date:  2017-05-04

3.  Personnel roles in the AAC assessment process.

Authors:  Cathy Binger; Laura Ball; Aimee Dietz; Jennifer Kent-Walsh; Joanne Lasker; Shelley Lund; Miechelle McKelvey; Wendy Quach
Journal:  Augment Altern Commun       Date:  2012-12       Impact factor: 2.214

4.  Gaze-based assistive technology used in daily life by children with severe physical impairments - parents' experiences.

Authors:  Maria Borgestig; Patrik Rytterström; Helena Hemmingsson
Journal:  Dev Neurorehabil       Date:  2016-08-18       Impact factor: 2.308

5.  Parent Perception of Two Eye-Gaze Control Technology Systems in Young Children with Cerebral Palsy: Pilot Study.

Authors:  Petra Karlsson; Margaret Wallen
Journal:  Stud Health Technol Inform       Date:  2017

Review 6.  Practical Considerations for Using Online Methods to Engage Patients in Guideline Development.

Authors:  Sean Grant; Glen S Hazlewood; Holly L Peay; Ann Lucas; Ian Coulter; Arlene Fink; Dmitry Khodyakov
Journal:  Patient       Date:  2018-04       Impact factor: 3.883

7.  Spectrum of visual disorders in a population-based cerebral palsy cohort.

Authors:  David Dufresne; Lynn Dagenais; Michael I Shevell
Journal:  Pediatr Neurol       Date:  2013-12-05       Impact factor: 3.372

8.  Evaluation of computer-access solutions for students with quadriplegic athetoid cerebral palsy.

Authors:  David W K Man; Mei-Sheung Louisa Wong
Journal:  Am J Occup Ther       Date:  2007 May-Jun

9.  Speech problems affect more than one in two children with cerebral palsy: Swedish population-based study.

Authors:  A Nordberg; C Miniscalco; A Lohmander; K Himmelmann
Journal:  Acta Paediatr       Date:  2012-11-27       Impact factor: 2.299

10.  GRIPP2 reporting checklists: tools to improve reporting of patient and public involvement in research.

Authors:  S Staniszewska; J Brett; I Simera; K Seers; C Mockford; S Goodlad; D G Altman; D Moher; R Barber; S Denegri; A Entwistle; P Littlejohns; C Morris; R Suleman; V Thomas; C Tysall
Journal:  Res Involv Engagem       Date:  2017-08-02
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  2 in total

1.  A trained communication partner's use of responsive strategies in aided communication with three adults with Rett syndrome: A case report.

Authors:  Helena Wandin; Per Lindberg; Karin Sonnander
Journal:  Front Psychol       Date:  2022-09-29

2.  Communicative Interaction with and without Eye-Gaze Technology between Children and Youths with Complex Needs and Their Communication Partners.

Authors:  Yu-Hsin Hsieh; Maria Borgestig; Deepika Gopalarao; Joy McGowan; Mats Granlund; Ai-Wen Hwang; Helena Hemmingsson
Journal:  Int J Environ Res Public Health       Date:  2021-05-12       Impact factor: 3.390

  2 in total

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