Literature DB >> 30235093

In Defense of "Denial": Difficulty Knowing When Beliefs Are Unrealistic and Whether Unrealistic Beliefs Are Bad.

J S Blumenthal-Barby1, Peter A Ubel2.   

Abstract

Bioethicists often draw sharp distinctions between hope and states like denial, self-deception, and unrealistic optimism. But what, exactly, is the difference between hope and its more suspect cousins? One common way of drawing the distinction focuses on accuracy of belief about the desired outcome: Hope, though perhaps sometimes misplaced, does not involve inaccuracy in the way that these other states do. Because inaccurate beliefs are thought to compromise informed decision making, bioethicists have considered these states to be ones where intervention is needed either to correct the person's mental state or to persuade the person to behave differently, or even to deny the person certain options (e.g., another round of chemotherapy). In this article, we argue that it is difficult to determine whether a patient is really in denial, self-deceived, or unrealistically optimistic. Moreover, even when we are confident that beliefs are unrealistic, they are not always as harmful as critics contend. As a result, we need to be more permissive in our approach to patients who we believe are unrealistically optimistic, in denial, or self-deceived-that is, unless patients significantly misunderstand their situation and thus make decisions that are clearly bad for them (especially in light of their own values and goals), we should not intervene by trying to change their mental states or persuade them to behave differently, or by paternalistically denying them certain options (e.g., a risky procedure).

Entities:  

Keywords:  population; public health; race and culture/ethnicity

Mesh:

Year:  2018        PMID: 30235093     DOI: 10.1080/15265161.2018.1498934

Source DB:  PubMed          Journal:  Am J Bioeth        ISSN: 1526-5161            Impact factor:   11.229


  7 in total

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Authors:  Babina Nayak; Jee-Young Moon; Mimi Kim; Baruch Fischhoff; Marlyse F Haward
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2.  Medicine's collision with false hope: The False Hope Harms (FHH) argument.

Authors:  Marleen Eijkholt
Journal:  Bioethics       Date:  2020-03-05       Impact factor: 1.898

3.  Oncologists' reflections on patient rights and access to compassionate use drugs: A qualitative interview study from an academic cancer center.

Authors:  Jeremiah Stout; Cambray Smith; Jan Buckner; Alex A Adjei; Mark Wentworth; Jon C Tilburt; Zubin Master
Journal:  PLoS One       Date:  2021-12-17       Impact factor: 3.240

4.  Moral Distress in Healthcare Providers Who Take Care of Critical Pediatric Patients throughout Italy-Cultural Adaptation and Validation of the Italian Pediatric Instrument.

Authors:  Chiara Grasso; Davide Massidda; Karolina Zaneta Maslak; Cinzia Favara-Scacco; Francesco Antonio Grasso; Carmela Bencivenga; Valerio Confalone; Elisabetta Lampugnani; Andrea Moscatelli; Marta Somaini; Simonetta Tesoro; Giulia Lamiani; Marinella Astuto
Journal:  Int J Environ Res Public Health       Date:  2022-03-24       Impact factor: 3.390

5.  Pediatric Deep Brain Stimulation for Dystonia: Current State and Ethical Considerations.

Authors:  Katrina A MuÑoz; Jennifer Blumenthal-Barby; Eric A Storch; Laura Torgerson; Gabriel LÁzaro-MuÑoz
Journal:  Camb Q Healthc Ethics       Date:  2020-10       Impact factor: 1.566

6.  Comparison of Patient and Expert Perceptions of the Attainment of Research Milestones in Parkinson's Disease.

Authors:  Patrick Bodilly Kane; Daniel M Benjamin; Roger A Barker; Anthony E Lang; Todd Sherer; Jonathan Kimmelman
Journal:  Mov Disord       Date:  2020-10-01       Impact factor: 10.338

7.  Epistemic Beliefs: Relationship to Future Expectancies and Quality of Life in Cancer Patients.

Authors:  Paul K J Han; Elizabeth Scharnetzki; Eric Anderson; John DiPalazzo; Tania D Strout; Caitlin Gutheil; F Lee Lucas; Emily Edelman; Jens Rueter
Journal:  J Pain Symptom Manage       Date:  2021-12-22       Impact factor: 3.612

  7 in total

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