Literature DB >> 30235037

Newborn Screening and Health Communications.

Adrianna Evans1, Natasha Bonhomme1, Andrea Goodman1, Sharon F Terry1.   

Abstract

Mesh:

Year:  2018        PMID: 30235037     DOI: 10.1089/gtmb.2018.0234

Source DB:  PubMed          Journal:  Genet Test Mol Biomarkers        ISSN: 1945-0257


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  3 in total

1.  Unmet needs in PKU and the disease impact on the day-to-day lives in Brazil: Results from a survey with 228 patients and their caregivers.

Authors:  Ana Maria Martins; Andre Luiz Santos Pessoa; Andrea Amaro Quesada; Erlane Marques Ribeiro
Journal:  Mol Genet Metab Rep       Date:  2020-07-22

2.  Empowering newborn screening programs in African countries through establishment of an international collaborative effort.

Authors:  Bradford L Therrell; Michele A Lloyd-Puryear; Kwaku Ohene-Frempong; Russell E Ware; Carmencita D Padilla; Emmanuela E Ambrose; Amina Barkat; Hassan Ghazal; Charles Kiyaga; Tisungane Mvalo; Obiageli Nnodu; Karim Ouldim; Mohamed Chérif Rahimy; Brígida Santos; Léon Tshilolo; Careema Yusuf; Guisou Zarbalian; Michael S Watson
Journal:  J Community Genet       Date:  2020-05-15

3.  The Value of Cognitive Pretesting: Improving Validity and Revealing Blind Spots through the Development of a Newborn Screening Parent Experiences Survey.

Authors:  Norma-Jean Simon; Anne Atkins; Brianne Miller; Natasha Bonhomme; Beth Tarini
Journal:  Int J Neonatal Screen       Date:  2021-07-08
  3 in total

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