| Literature DB >> 32415570 |
Bradford L Therrell1, Michele A Lloyd-Puryear2, Kwaku Ohene-Frempong3, Russell E Ware4, Carmencita D Padilla5, Emmanuela E Ambrose6, Amina Barkat7, Hassan Ghazal8, Charles Kiyaga9, Tisungane Mvalo10, Obiageli Nnodu11, Karim Ouldim12, Mohamed Chérif Rahimy13, Brígida Santos14, Léon Tshilolo15, Careema Yusuf16, Guisou Zarbalian16, Michael S Watson2.
Abstract
In an effort to explore new knowledge and to develop meaningful collaborations for improving child health, the First Pan African Workshop on Newborn Screening was convened in June 2019 in Rabat, Morocco. Participants included an informal network of newborn screening stakeholders from across Africa and global experts in newborn screening and sickle cell disease. Over 150 attendees, representing 20 countries, were present including 11 African countries. The agenda focused on newborn screening rationale, techniques, system development, implementation barriers, ongoing research, and collaborations both globally and across Africa. We provide an overview of the workshop and a description of the newborn screening activities in the 11 African countries represented at the workshop, with a focus on sickle cell disease.Entities:
Keywords: Newborn screening; Pan-African; Public health; Rabat declaration; Sickle cell disease
Year: 2020 PMID: 32415570 PMCID: PMC7295888 DOI: 10.1007/s12687-020-00463-7
Source DB: PubMed Journal: J Community Genet ISSN: 1868-310X