Literature DB >> 30203558

The sickle cell disease implementation consortium: Translating evidence-based guidelines into practice for sickle cell disease.

Lisa D DiMartino1, Ana A Baumann2, Lewis L Hsu3, Julie Kanter4, Victor R Gordeuk3, Jeffrey Glassberg5, Marsha J Treadwell6, Cathy L Melvin7, Joseph Telfair8, Lisa M Klesges9, Allison King10, Ted Wun11, Nirmish Shah12, Robert W Gibson13, Jane S Hankins14.   

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Year:  2018        PMID: 30203558      PMCID: PMC6503654          DOI: 10.1002/ajh.25282

Source DB:  PubMed          Journal:  Am J Hematol        ISSN: 0361-8609            Impact factor:   13.265


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  16 in total

1.  Proportion of adults with sickle cell anemia and pain crises receiving hydroxyurea.

Authors:  Nicolas Stettler; Colleen M McKiernan; Court Q Melin; Oluwakayode O Adejoro; Nancy B Walczak
Journal:  JAMA       Date:  2015-04-28       Impact factor: 56.272

2.  News from NIH: a center for translation research and implementation science.

Authors:  George A Mensah; Michael Engelgau; Catherine Stoney; Helena Mishoe; Peter Kaufmann; Michelle Freemer; Lawrence Fine
Journal:  Transl Behav Med       Date:  2015-06       Impact factor: 3.046

3.  Pediatric to Adult Care Transition: Perspectives of Young Adults With Sickle Cell Disease.

Authors:  Jerlym S Porter; Kimberly M Wesley; Mimi S Zhao; Rebecca J Rupff; Jane S Hankins
Journal:  J Pediatr Psychol       Date:  2017-10-01

4.  Managing Clinical Knowledge for Health Care Improvement.

Authors:  E A Balas; S A Boren
Journal:  Yearb Med Inform       Date:  2000

Review 5.  Recent treatment guidelines for managing adult patients with sickle cell disease: challenges in access to care, social issues, and adherence.

Authors:  Patricia Adams-Graves; Lanetta Bronte-Jordan
Journal:  Expert Rev Hematol       Date:  2016-05-24       Impact factor: 2.929

Review 6.  Reducing Health Inequities in the U.S.: Recommendations From the NHLBI's Health Inequities Think Tank Meeting.

Authors:  Uchechukwu K A Sampson; Robert M Kaplan; Richard S Cooper; Ana V Diez Roux; James S Marks; Michael M Engelgau; Emmanuel Peprah; Helena Mishoe; L Ebony Boulware; Kaytura L Felix; Robert M Califf; John M Flack; Lisa A Cooper; J Nadine Gracia; Jeffrey A Henderson; Karina W Davidson; Jerry A Krishnan; Tené T Lewis; Eduardo Sanchez; Naomi L Luban; Viola Vaccarino; Winston F Wong; Jackson T Wright; David Meyers; Olugbenga G Ogedegbe; Letitia Presley-Cantrell; David A Chambers; Deshirée Belis; Glen C Bennett; Josephine E Boyington; Tony L Creazzo; Janet M de Jesus; Chitra Krishnamurti; Mia R Lowden; Antonello Punturieri; Susan T Shero; Neal S Young; Shimian Zou; George A Mensah
Journal:  J Am Coll Cardiol       Date:  2016-08-02       Impact factor: 24.094

7.  Examining the characteristics and beliefs of hydroxyurea users and nonusers among adults with sickle cell disease.

Authors:  Carlton Haywood; Mary Catherine Beach; Shawn Bediako; C Patrick Carroll; Lakshmi Lattimer; Dasheema Jarrett; Sophie Lanzkron
Journal:  Am J Hematol       Date:  2011-01       Impact factor: 10.047

8.  Emergency department management of acute pain episodes in sickle cell disease.

Authors:  Paula Tanabe; Randall Myers; Amy Zosel; Jane Brice; Altaf H Ansari; Julia Evans; Zoran Martinovich; Knox H Todd; Judith A Paice
Journal:  Acad Emerg Med       Date:  2007-03-26       Impact factor: 3.451

Review 9.  Management of sickle cell disease: summary of the 2014 evidence-based report by expert panel members.

Authors:  Barbara P Yawn; George R Buchanan; Araba N Afenyi-Annan; Samir K Ballas; Kathryn L Hassell; Andra H James; Lanetta Jordan; Sophie M Lanzkron; Richard Lottenberg; William J Savage; Paula J Tanabe; Russell E Ware; M Hassan Murad; Jonathan C Goldsmith; Eduardo Ortiz; Robinson Fulwood; Ann Horton; Joylene John-Sowah
Journal:  JAMA       Date:  2014-09-10       Impact factor: 56.272

10.  An introduction to implementation science for the non-specialist.

Authors:  Mark S Bauer; Laura Damschroder; Hildi Hagedorn; Jeffrey Smith; Amy M Kilbourne
Journal:  BMC Psychol       Date:  2015-09-16
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  21 in total

1.  Understanding sickle cell disease: impact of surveillance and gaps in knowledge.

Authors:  Mandip Kaur; Mary Brown; Ted W Love; Alexis Thompson; Marsha Treadwell; Kim Smith-Whitley
Journal:  Blood Adv       Date:  2020-02-11

2.  Intentional and unintentional nonadherence to hydroxyurea among people with sickle cell disease: a qualitative study.

Authors:  Jason R Hodges; Shannon M Phillips; Sarah Norell; Chinonyelum Nwosu; Hamda Khan; Lingzi Luo; Sherif M Badawy; Allison King; Paula Tanabe; Marsha Treadwell; Lucia Rojas Smith; Cecelia Calhoun; Jane S Hankins; Jerlym Porter
Journal:  Blood Adv       Date:  2020-09-22

3.  Pregnancy outcomes with hydroxyurea use in women with sickle cell disease.

Authors:  Barbara L Kroner; Jane S Hankins; Norma Pugh; Abdullah Kutlar; Allison A King; Nirmish R Shah; Julie Kanter; Jeffrey Glassberg; Marsha Treadwell; Victor R Gordeuk
Journal:  Am J Hematol       Date:  2022-02-17       Impact factor: 10.047

4.  Transition for Adolescents and Young Adults With Sickle Cell Disease in a US Midwest Urban Center: A Multilevel Perspective on Barriers, Facilitators, and Future Directions.

Authors:  Cecelia Calhoun; Lingzi Luo; Ana A Baumann; Anna Bauer; Evelyn Shen; Virginia McKay; Cole Hooley; Aimee James; Allison A King
Journal:  J Pediatr Hematol Oncol       Date:  2021-09-22       Impact factor: 1.170

5.  A Survey-Based Needs Assessment of Barriers to Optimal Sickle Cell Disease Care in the Emergency Department.

Authors:  Elizabeth A Linton; Dania A Goodin; Jane S Hankins; Julie Kanter; Liliana Preiss; Jena Simon; Kimberly Souffront; Paula Tanabe; Robert Gibson; Lewis L Hsu; Allison King; Lynne D Richardsona; Jeffrey A Glassberg
Journal:  Ann Emerg Med       Date:  2020-09       Impact factor: 5.721

6.  Empowering newborn screening programs in African countries through establishment of an international collaborative effort.

Authors:  Bradford L Therrell; Michele A Lloyd-Puryear; Kwaku Ohene-Frempong; Russell E Ware; Carmencita D Padilla; Emmanuela E Ambrose; Amina Barkat; Hassan Ghazal; Charles Kiyaga; Tisungane Mvalo; Obiageli Nnodu; Karim Ouldim; Mohamed Chérif Rahimy; Brígida Santos; Léon Tshilolo; Careema Yusuf; Guisou Zarbalian; Michael S Watson
Journal:  J Community Genet       Date:  2020-05-15

7.  Development of the InCharge Health Mobile App to Improve Adherence to Hydroxyurea in Patients With Sickle Cell Disease: User-Centered Design Approach.

Authors:  Nicole M Alberts; Sherif M Badawy; Jerlym S Porter; Jane S Hankins; Jason Hodges; Jeremie H Estepp; Chinonyelum Nwosu; Hamda Khan; Matthew P Smeltzer; Ramin Homayouni; Sarah Norell; Lisa Klesges
Journal:  JMIR Mhealth Uhealth       Date:  2020-05-08       Impact factor: 4.773

8.  Publication of data collection forms from NHLBI funded sickle cell disease implementation consortium (SCDIC) registry.

Authors:  Jeffrey A Glassberg; Elizabeth A Linton; Katrina Burson; Tabitha Hendershot; Joseph Telfair; Julie Kanter; Victor R Gordeuk; Allison A King; Cathy L Melvin; Nirmish Shah; Jane S Hankins; Axel Yannick Epié; Lynne D Richardson
Journal:  Orphanet J Rare Dis       Date:  2020-07-07       Impact factor: 4.123

9.  Severe Persistent Pain and Inflammatory Biomarkers in Sickle Cell Disease: An Exploratory Study.

Authors:  Mitchell R Knisely; Paula J Tanabe; Julia K L Walker; Qing Yang; Nirmish R Shah
Journal:  Biol Res Nurs       Date:  2021-06-30       Impact factor: 2.318

10.  Severe Pain Profiles and Associated Sociodemographic and Clinical Characteristics in Individuals With Sickle Cell Disease.

Authors:  Mitchell R Knisely; Paula J Tanabe; Qing Yang; Rita Masese; Meilin Jiang; Nirmish R Shah
Journal:  Clin J Pain       Date:  2021-09-01       Impact factor: 3.423

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