Armen C Arevian1, Benjamin Springgate2, Felica Jones3, Sarah L Starks1, Bowen Chung4, Ashley Wennerstrom5, Loretta Jones6, Sheryl H Kataoka1, Krystal Griffith1, Olivia K Sugarman2, Pluscedia Williams6, Catherine Haywood7, Angela Kirkland5, Diana Meyers8, Ryan Pasternak2, Rubinee Simmasalam2, Lingqi Tang1, Enrico G Castillo9, Anish Mahajan10, Max Stevens11, Kenneth B Wells1. 1. UCLA Semel Institute for Neuroscience and Human Behavior, Los Angeles, CA. 2. LSU Health Sciences Center New Orleans School of Medicine, New Orleans, LA. 3. Healthy African American Families II, Los Angeles, CA. 4. Los Angeles County Department of Mental Health Services; Harbor-UCLA Medical Center; UCLA Semel Institute for Neuroscience and Human Behavior, Los Angeles, CA. 5. Tulane University School of Medicine, New Orleans, LA. 6. Healthy African American Families II; Charles R Drew University of Medicine and Science, Los Angeles, CA. 7. Louisiana Community Health Outreach Network, New Orleans, LA. 8. St. Anna's Episcopal Church New Orleans, LA. 9. UCLA David Geffen School of Medicine; Los Angeles County Department of Mental Health, Los Angeles, CA. 10. Harbor-UCLA Medical Center, Los Angeles, CA. 11. Los Angeles County Chief Executive Office, Los Angeles, CA.
Abstract
Objective: We describe the rationale, development, and progress on the Community and Patient Partnered Research Network (CPPRN). The CPPRN builds on more than a decade of partnered work and is designed to promote health equity by developing partnered research on behavioral health and social risk factors in Los Angeles and New Orleans. Setting: A community-academic partnership across Los Angeles County and New Orleans. Methods: Review of rationale, history, structure, activities and progress in applying community partnered participatory research (CPPR) to CPPRN. Findings: Patient and community stakeholders participated in all phases of development, including local and national activities. Key developments include partnered planning efforts, progress on aggregating a large, de-identified dataset across county agencies, and development of an information technology-supported screening approach for behavioral and social determinants in health care, social, and community-based settings. Conclusion: The CPPRN represents a promising approach for research data networks, balancing the potential benefit of information technology and data analytic approaches while addressing potential risks and priorities of relevant stakeholders.
Objective: We describe the rationale, development, and progress on the Community and Patient Partnered Research Network (CPPRN). The CPPRN builds on more than a decade of partnered work and is designed to promote health equity by developing partnered research on behavioral health and social risk factors in Los Angeles and New Orleans. Setting: A community-academic partnership across Los Angeles County and New Orleans. Methods: Review of rationale, history, structure, activities and progress in applying community partnered participatory research (CPPR) to CPPRN. Findings: Patient and community stakeholders participated in all phases of development, including local and national activities. Key developments include partnered planning efforts, progress on aggregating a large, de-identified dataset across county agencies, and development of an information technology-supported screening approach for behavioral and social determinants in health care, social, and community-based settings. Conclusion: The CPPRN represents a promising approach for research data networks, balancing the potential benefit of information technology and data analytic approaches while addressing potential risks and priorities of relevant stakeholders.
Entities:
Keywords:
Behavioral Health; Community Engagement; PCORnet; Patient-Powered Research Network; Research Network
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