Literature DB >> 30202181

The Community and Patient Partnered Research Network (CPPRN): Application of Patient-Centered Outcomes Research to Promote Behavioral Health Equity.

Armen C Arevian1, Benjamin Springgate2, Felica Jones3, Sarah L Starks1, Bowen Chung4, Ashley Wennerstrom5, Loretta Jones6, Sheryl H Kataoka1, Krystal Griffith1, Olivia K Sugarman2, Pluscedia Williams6, Catherine Haywood7, Angela Kirkland5, Diana Meyers8, Ryan Pasternak2, Rubinee Simmasalam2, Lingqi Tang1, Enrico G Castillo9, Anish Mahajan10, Max Stevens11, Kenneth B Wells1.   

Abstract

Objective: We describe the rationale, development, and progress on the Community and Patient Partnered Research Network (CPPRN). The CPPRN builds on more than a decade of partnered work and is designed to promote health equity by developing partnered research on behavioral health and social risk factors in Los Angeles and New Orleans. Setting: A community-academic partnership across Los Angeles County and New Orleans.
Methods: Review of rationale, history, structure, activities and progress in applying community partnered participatory research (CPPR) to CPPRN. Findings: Patient and community stakeholders participated in all phases of development, including local and national activities. Key developments include partnered planning efforts, progress on aggregating a large, de-identified dataset across county agencies, and development of an information technology-supported screening approach for behavioral and social determinants in health care, social, and community-based settings.
Conclusion: The CPPRN represents a promising approach for research data networks, balancing the potential benefit of information technology and data analytic approaches while addressing potential risks and priorities of relevant stakeholders.

Entities:  

Keywords:  Behavioral Health; Community Engagement; PCORnet; Patient-Powered Research Network; Research Network

Mesh:

Year:  2018        PMID: 30202181      PMCID: PMC6128331          DOI: 10.18865/ed.28.S2.295

Source DB:  PubMed          Journal:  Ethn Dis        ISSN: 1049-510X            Impact factor:   1.847


  22 in total

1.  Witness for Wellness: preliminary findings from a community-academic participatory research mental health initiative.

Authors:  Ricky N Bluthenthal; Loretta Jones; Nicole Fackler-Lowrie; Marcia Ellison; Theodore Booker; Felica Jones; Sharon McDaniel; Moraya Moini; Kamau R Williams; Ruth Klap; Paul Koegel; Kenneth B Wells
Journal:  Ethn Dis       Date:  2006       Impact factor: 1.847

2.  Innovative approaches to obtaining community feedback in the Witness for Wellness experience.

Authors:  Kavita K Patel; Paul Koegel; Ted Booker; Loretta Jones; Kenneth Wells
Journal:  Ethn Dis       Date:  2006       Impact factor: 1.847

3.  New evidence regarding racial and ethnic disparities in mental health: policy implications.

Authors:  Thomas G McGuire; Jeanne Miranda
Journal:  Health Aff (Millwood)       Date:  2008 Mar-Apr       Impact factor: 6.301

4.  The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection.

Authors:  J E Ware; C D Sherbourne
Journal:  Med Care       Date:  1992-06       Impact factor: 2.983

5.  Transforming Evidence Generation to Support Health and Health Care Decisions.

Authors:  Robert M Califf; Melissa A Robb; Andrew B Bindman; Josephine P Briggs; Francis S Collins; Patrick H Conway; Trinka S Coster; Francesca E Cunningham; Nancy De Lew; Karen B DeSalvo; Christine Dymek; Victor J Dzau; Rachael L Fleurence; Richard G Frank; J Michael Gaziano; Petra Kaufmann; Michael Lauer; Peter W Marks; J Michael McGinnis; Chesley Richards; Joe V Selby; David J Shulkin; Jeffrey Shuren; Andrew M Slavitt; Scott R Smith; B Vindell Washington; P Jon White; Janet Woodcock; Jonathan Woodson; Rachel E Sherman
Journal:  N Engl J Med       Date:  2016-12-15       Impact factor: 91.245

6.  [Validation of the Alcohol Use Disorders Identification Test (AUDIT) in primary care].

Authors:  G Rubio Valladolid; J Bermejo Vicedo; M C Caballero Sánchez-Serrano; J Santo-Domingo Carrasco
Journal:  Rev Clin Esp       Date:  1998-01       Impact factor: 1.556

7.  Building community resilience through mental health infrastructure and training in post-Katrina New Orleans.

Authors:  Benjamin F Springgate; Ashley Wennerstrom; Diana Meyers; Charles E Allen; Steven D Vannoy; Wayne Bentham; Kenneth B Wells
Journal:  Ethn Dis       Date:  2011       Impact factor: 1.847

8.  The vision, valley, and victory of community engagement.

Authors:  Loretta Jones; Kenneth Wells; Keith Norris; Barbara Meade; Paul Koegel
Journal:  Ethn Dis       Date:  2009       Impact factor: 1.847

9.  How a therapy-based quality improvement intervention for depression affected life events and psychological well-being over time: a 9-year longitudinal analysis.

Authors:  Cathy Donald Sherbourne; Maria Orlando Edelen; Annie Zhou; Chloe Bird; Naihua Duan; Kenneth B Wells
Journal:  Med Care       Date:  2008-01       Impact factor: 2.983

10.  Patient-powered research networks aim to improve patient care and health research.

Authors:  Rachael L Fleurence; Anne C Beal; Susan E Sheridan; Lorraine B Johnson; Joe V Selby
Journal:  Health Aff (Millwood)       Date:  2014-07       Impact factor: 6.301

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  2 in total

1.  Medicaid Utilization Before and After a Natural Disaster in the 2016 Baton Rouge-Area Flood.

Authors:  Stephen W Phillippi; Kaylin Beiter; Casey L Thomas; Olivia K Sugarman; Ashley Wennerstrom; Kenneth B Wells; Edward Trapido
Journal:  Am J Public Health       Date:  2019-09       Impact factor: 9.308

2.  Depression Remission From Community Coalitions Versus Individual Program Support for Services: Findings From Community Partners in Care, Los Angeles, California, 2010-2016.

Authors:  Armen C Arevian; Felica Jones; Lingqi Tang; Cathy D Sherbourne; Loretta Jones; Jeanne Miranda
Journal:  Am J Public Health       Date:  2019-06       Impact factor: 9.308

  2 in total

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