Literature DB >> 30183457

Perceived Risks and Benefits in IPV and HIV Research: Listening to the Voices of HIV-Positive African American Women.

Nicole M Overstreet1, Mukadder Okuyan1, Celia B Fisher2.   

Abstract

African American women living with HIV were asked to reflect on the perceived risks and benefits of research participation after completing a study examining socially sensitive issues in their lives, including intimate partner violence (IPV) and HIV. Administration of standardized quantitative instruments yielded positive responses to the research experience. However, qualitative assessments of perceived risks and benefits revealed more nuanced responses. For example, confidentiality concerns were more prominent in open-ended responses as was participants' positive attitudes toward monetary compensation. In addition, some women reported that study participation provided them with new insights about their experiences with IPV. Findings suggest that empirical studies on research protections involving potentially distressing and socially sensitive experiences with vulnerable populations require both quantitative and qualitative assessments of perceived risks and benefits. We discuss implications of our findings for ethics practices in trauma-related research among populations with multiple social vulnerabilities.

Entities:  

Keywords:  African American women; HIV; intimate partner violence; research ethics

Mesh:

Year:  2018        PMID: 30183457      PMCID: PMC6231959          DOI: 10.1177/1556264618797557

Source DB:  PubMed          Journal:  J Empir Res Hum Res Ethics        ISSN: 1556-2646            Impact factor:   1.742


  47 in total

1.  Abuse Impedes Prevention: The Intersection of Intimate Partner Violence and HIV/STI Risk Among Young African American Women.

Authors:  Puja Seth; Gina M Wingood; LaShun S Robinson; Jerris L Raiford; Ralph J DiClemente
Journal:  AIDS Behav       Date:  2015-08

2.  Marginalized populations and drug addiction research: realism, mistrust, and misconception.

Authors:  Celia B Fisher; Matthew Oransky; Meena Mahadevan; Merrill Singer; Greg Mirhej; Derrick Hodge
Journal:  IRB       Date:  2008 May-Jun

3.  Ethics in violence against women research: the sensitive, the dangerous, and the overlooked.

Authors:  Lisa Aronson Fontes
Journal:  Ethics Behav       Date:  2004

4.  A legacy of distrust: African Americans and medical research.

Authors:  V N Gamble
Journal:  Am J Prev Med       Date:  1993 Nov-Dec       Impact factor: 5.043

5.  Intimate partner violence and human immunodeficiency virus risk among black and Hispanic women.

Authors:  Mercedes M Morales-Alemán; Kathy Hageman; Zaneta J Gaul; Binh Le; Gabriela Paz-Bailey; Madeline Y Sutton
Journal:  Am J Prev Med       Date:  2014-11-18       Impact factor: 5.043

6.  Why female sex workers participate in HIV research: the illusion of voluntariness.

Authors:  Elizabeth Reed; Celia B Fisher; Kim M Blankenship; Brooke S West; Kaveh Khoshnood
Journal:  AIDS Care       Date:  2016-12-28

7.  Peruvian Female Sex Workers' Ethical Perspectives on Their Participation in an HPV Vaccine Clinical Trial.

Authors:  Brandon Brown; Mariam Davtyan; Celia B Fisher
Journal:  Ethics Behav       Date:  2014-08-14

8.  Self-Consent for HIV Prevention Research Involving Sexual and Gender Minority Youth: Reducing Barriers Through Evidence-Based Ethics.

Authors:  Celia B Fisher; Miriam R Arbeit; Melissa S Dumont; Kathryn Macapagal; Brian Mustanski
Journal:  J Empir Res Hum Res Ethics       Date:  2016-03-07       Impact factor: 1.742

9.  The Intimate Partner Violence Stigmatization Model and Barriers to Help-Seeking.

Authors:  Nicole M Overstreet; Diane M Quinn
Journal:  Basic Appl Soc Psych       Date:  2013-02-04

10.  Participation in trauma research: is there evidence of harm?

Authors:  Michael G Griffin; Patricia A Resick; Angela E Waldrop; Mindy B Mechanic
Journal:  J Trauma Stress       Date:  2003-06
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  4 in total

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Authors:  Charlene Minaya; Dean McKay; Hannah Benton; Judite Blanc; Azizi A Seixas
Journal:  Behav Sci (Basel)       Date:  2022-06-10

2.  Risks and Benefits of Adolescent Girls' Participation in Online Sexting Survey Research.

Authors:  Xiangyu Tao; Elise Bragard; Celia B Fisher
Journal:  Arch Sex Behav       Date:  2021-08-10

3.  Considerations for Increasing Racial, Ethnic, Gender, and Sexual Diversity in HIV Cure-Related Research with Analytical Treatment Interruptions: A Qualitative Inquiry.

Authors:  Karine Dubé; John Kanazawa; Chadwick Campbell; Cheriko A Boone; Allysha C Maragh-Bass; Danielle M Campbell; Moisés Agosto-Rosario; Jamila K Stockman; Dázon Dixon Diallo; Tonia Poteat; Mallory Johnson; Parya Saberi; John A Sauceda
Journal:  AIDS Res Hum Retroviruses       Date:  2021-05-31       Impact factor: 2.205

4.  Web-based and mHealth interventions for intimate partner violence prevention: a systematic review protocol.

Authors:  Elizabeth J Anderson; Jean McClelland; Caitlin Meyer Krause; Keegan C Krause; David O Garcia; Mary P Koss
Journal:  BMJ Open       Date:  2019-08-10       Impact factor: 2.692

  4 in total

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