Literature DB >> 30168263

The potential for coproduction to add value to research.

Dr Gary Hickey1.   

Abstract

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Year:  2018        PMID: 30168263      PMCID: PMC6117482          DOI: 10.1111/hex.12821

Source DB:  PubMed          Journal:  Health Expect        ISSN: 1369-6513            Impact factor:   3.377


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Coproduction has a rich history and has been applied and developed in a range of disciplines.1 The term has been used for several decades1 and is usually associated with the design and improvement of services.2, 3 It offers the potential to evolve and improve public involvement in research—a means of further ensuring that the public are active collaborators in research4. Much of the drive comes from a perceived opportunity for coproduction to more closely align research and innovation with the values, needs and expectations of society.5 Given the various ways in which coproduction has been interpreted and applied, it is hardly surprising that it is a contested concept with much confusion about what it is and how one “does” it.6 For example, for some coproduction is simply “good” public involvement in research, for some it is a vogue term that has been applied loosely to existing approaches to public involvement in research, and for still others it is a particular methodology.7 Despite this lack of clarity, research is being coproduced with the public and just as public involvement in research generally is now an international phenomena8 so is the coproduction of research. The National Institute for Health Research (funded by the Department of Health and Social Care to improve the health and wealth of the nation through research) has committed to exploring how coproduced research might work in practice in health and social care research in England.9 To this end, INVOLVE has led on the development of guidance which is intended to provide greater clarity about what it means to coproduce research.10 There is no one set way of coproducing research. Rather, it is principle‐driven and can take a variety of formats including partnerships between academia and organizations representing the public as well as members of the public being employed by organizations which undertake research, for example universities. The key principle involved in coproducing research is the sharing of power in key decisions. No longer do researchers and/or practitioners only own the decisions and the research. Relationships need to be valued and developed and maintained. Efforts need to be made to address power differentials. “Co‐producing a research project is an approach in which researchers, practitioners and the public work together, sharing power and responsibility from the start to the end of the project, including the generation of knowledge.” 10 On the one hand, coproduction can be viewed as another approach to public involvement which sits alongside other approaches such as consultation, collaboration and user‐controlled research.11 In practice of course there are often blurred boundaries between these approaches—and research can be a dance moving back and forth between approaches. For example, consultative approaches can merge into collaboration, and vice versa. Any framework then that seeks to distinguish between approaches is best seen as an analytical tool through which we can view and understand our world. However, coproduction is also an approach to research that goes beyond public involvement—it has principles that apply across the team and underpin the way the research is undertaken. Guidance on principles and key features are useful in helping us move towards clarity but they do not show us “how” to coproduce or the various challenges that coproducing research presents. How, for example, do we share power when it is often a principal investigator who is accountable for decisions? How do we build the relationships in a research team that ensure that power differentials are addressed? Some suggest that coproduction represents a paradigm shift in research12 changing how we determine what to research, how it is undertaken, and how knowledge is generated. It challenges power structures and the way in which research is currently funded and governed; power is shared across those involved in the research; and plans are more likely to be emergent. It challenges what we mean by impacts—in coproduced research as much emphasis is placed on impacts that emerge from the process of undertaking the research, for example expanded social networks, as there is on the impacts of the outcomes of the research. It challenges what we mean by knowledge and research—the collection and analysis of empirical data is just one form of the generation of knowledge. This edition of Health Expectations is timely, providing some examples of patient/consumer involvement and engagement in research. The Editorial team also wish to solicit papers for a special issue of Health Expectations on Patient and Public Involvement and Engagement (PPIE) in health service provision and research. These paper submissions may include high‐quality systematic review and original research papers reporting aspects of PPIE and coproduction with a particular focus on developing and emerging economies. If your research meets the above criteria, please consider submitting your work to Health Expectations. For further information, please see https://onlinelibrary.wiley.com/journal/13697625.
  3 in total

Review 1.  A systematic review of the impact of patient and public involvement on service users, researchers and communities.

Authors:  Jo Brett; Sophie Staniszewska; Carole Mockford; Sandra Herron-Marx; John Hughes; Colin Tysall; Rashida Suleman
Journal:  Patient       Date:  2014       Impact factor: 3.883

2.  One small step….

Authors:  Richard Stephens; Sophie Staniszewska
Journal:  Res Involv Engagem       Date:  2015-06-25

Review 3.  Reviewing progress in public involvement in NIHR research: developing and implementing a new vision for the future.

Authors:  Sophie Staniszewska; Simon Denegri; Rachel Matthews; Virginia Minogue
Journal:  BMJ Open       Date:  2018-07-30       Impact factor: 2.692

  3 in total
  21 in total

1.  Virtual Community Engagement Studio (V-CES): Engaging Mothers With Mental Health and Substance Use Conditions in Research.

Authors:  Yaara Zisman-Ilani; Jennifer Buell; Shayna Mazel; Shannon Hennig; Joanne Nicholson
Journal:  Front Psychiatry       Date:  2022-06-15       Impact factor: 5.435

2.  Co-production of an intervention to increase retention of early career nurses: Acceptability and feasibility.

Authors:  Judy Brook; Dr Julie-Ann MacLaren; Debra Salmon
Journal:  Nurse Educ Pract       Date:  2020-08-15       Impact factor: 2.281

3.  The burden of proof: The process of involving young people in research.

Authors:  Gail Dovey-Pearce; Sophie Walker; Sophie Fairgrieve; Monica Parker; Tim Rapley
Journal:  Health Expect       Date:  2019-02-15       Impact factor: 3.377

4.  The role of patients and carers in diffusing a health-care innovation: A case study of "My Medication Passport".

Authors:  Susan Barber; Catherine French; Rachel Matthews; Derryn Lovett; Tom Rollinson; Fran Husson; Margaret Turley; Julie Reed
Journal:  Health Expect       Date:  2019-05-26       Impact factor: 3.377

5.  Using a 'rich picture' to facilitate systems thinking in research coproduction.

Authors:  Kathleen P Conte; Seanna Davidson
Journal:  Health Res Policy Syst       Date:  2020-01-31

6.  Co-production in local government: process, codification and capacity building of new knowledge in collective reflection spaces. Workshops findings from a UK mixed methods study.

Authors:  Peter van der Graaf; Mandy Cheetham; Sam Redgate; Clare Humble; Ashley Adamson
Journal:  Health Res Policy Syst       Date:  2021-01-29

7.  Development of the School-Aged Life Impact Burn Recovery Evaluation (SA-LIBRE5-12) Profile: A Conceptual Framework.

Authors:  Camerin A Rencken; Silvanys L Rodríguez-Mercedes; Khushbu F Patel; Gabrielle G Grant; Erin M Kinney; Robert L Sheridan; Keri J S Brady; Tina L Palmieri; Petra M Warner; Renata B Fabia; Jeffrey C Schneider; Frederick J Stoddard; Lewis E Kazis; Colleen M Ryan
Journal:  J Burn Care Res       Date:  2021-11-24       Impact factor: 1.845

Review 8.  The CORBEL matrix on informed consent in clinical studies: a multidisciplinary approach of Research Infrastructures Building Enduring Life-science Services.

Authors:  Cinzia Colombo; Michaela Th Mayrhofer; Christine Kubiak; Serena Battaglia; Mihaela Matei; Marialuisa Lavitrano; Sara Casati; Victoria Chico; Irene Schluender; Tamara Carapina; Paola Mosconi
Journal:  BMC Med Ethics       Date:  2021-07-17       Impact factor: 2.652

9.  Co-creation and User Perspectives for Upper Limb Prosthetics.

Authors:  Hannah Jones; Sigrid Dupan; Matthew Dyson; Agamemnon Krasoulis; Laurence P J Kenney; Margaret Donovan-Hall; Kaveh Memarzadeh; Sarah Day; Maxford Coutinho; Kianoush Nazarpour
Journal:  Front Neurorobot       Date:  2021-07-09       Impact factor: 2.650

10.  Producing co-production: Reflections on the development of a complex intervention.

Authors:  Mary Madden; Steph Morris; Margaret Ogden; David Lewis; Duncan Stewart; Jim McCambridge
Journal:  Health Expect       Date:  2020-03-31       Impact factor: 3.377

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