Winnie W Chung1, Crystle-Joie G Agbayani2, Ariana Martinez3, Vu Le4, Haydee Cortes3, Kim Har1, Zeev N Kain5, Michelle A Fortier6. 1. Department of Pediatric Psychology, CHOC Children's Hospital, Orange, CA, USA. 2. UCI Center on Stress and Health, University of California-Irvine School of Medicine, USA; Department of Psychology and Social Behavior, University of California-Irvine, USA. 3. UCI Center on Stress and Health, University of California-Irvine School of Medicine, USA; Department of Anesthesiology & Perioperative Care, University of California-Irvine School of Medicine, USA. 4. Department of Neurology, University of California-Irvine, USA. 5. UCI Center on Stress and Health, University of California-Irvine School of Medicine, USA; Department of Anesthesiology & Perioperative Care, University of California-Irvine School of Medicine, USA; Child Study Center, Yale University, New Haven, CT, USA. 6. Department of Pediatric Psychology, CHOC Children's Hospital, Orange, CA, USA; UCI Center on Stress and Health, University of California-Irvine School of Medicine, USA; Department of Anesthesiology & Perioperative Care, University of California-Irvine School of Medicine, USA. Electronic address: mfortier@uci.edu.
Abstract
BACKGROUND AND METHODS: Despite advances in health care, the majority of children undergoing cancer treatment experience pain, particularly in the home setting. Mobile health tools provide a promising avenue to deliver pain management education and information to parents of children receiving cancer treatment. The current study describes the development and formative evaluation of a novel intervention, Cancer-Tailored Intervention for Pain and Symptoms (C-TIPS), which provides empirically-based pharmacological and non-pharmacological pain management information and coping skills training to parents of pediatric cancer patients. C-TIPS is a web-based application including a tailoring algorithm, customization tools, guided diaphragmatic breathing training, relaxation practice, and educational material (COPE modules). Thirty parents of children undergoing chemotherapy treatment for cancer participated in this initial mixed methods pilot study. Participants completed quantitative measures assessing their stress and relaxation ratings and satisfaction with C-TIPS. Formative evaluation and qualitative data were collected using individual and group interviews. RESULTS: Parents reported high satisfaction with both the educational and skills training modules of C-TIPS (ps < 0.001). Parent self-reported stress significantly reduced (p = 0.004) and relaxation increased (p = 0.05) following participation with the skills training module. CONCLUSIONS: C-TIPS is a feasible and well-received web-based intervention that promises to improve pain management in children undergoing cancer treatment, improve stress management in parents, and increase parents' knowledge and understanding of their child's cancer treatment. Results from the current study will help make improvements to C-TIPS in preparation for a randomized-controlled trial of this innovative program.
RCT Entities:
BACKGROUND AND METHODS: Despite advances in health care, the majority of children undergoing cancer treatment experience pain, particularly in the home setting. Mobile health tools provide a promising avenue to deliver pain management education and information to parents of children receiving cancer treatment. The current study describes the development and formative evaluation of a novel intervention, Cancer-Tailored Intervention for Pain and Symptoms (C-TIPS), which provides empirically-based pharmacological and non-pharmacological pain management information and coping skills training to parents of pediatric cancerpatients. C-TIPS is a web-based application including a tailoring algorithm, customization tools, guided diaphragmatic breathing training, relaxation practice, and educational material (COPE modules). Thirty parents of children undergoing chemotherapy treatment for cancer participated in this initial mixed methods pilot study. Participants completed quantitative measures assessing their stress and relaxation ratings and satisfaction with C-TIPS. Formative evaluation and qualitative data were collected using individual and group interviews. RESULTS: Parents reported high satisfaction with both the educational and skills training modules of C-TIPS (ps < 0.001). Parent self-reported stress significantly reduced (p = 0.004) and relaxation increased (p = 0.05) following participation with the skills training module. CONCLUSIONS: C-TIPS is a feasible and well-received web-based intervention that promises to improve pain management in children undergoing cancer treatment, improve stress management in parents, and increase parents' knowledge and understanding of their child's cancer treatment. Results from the current study will help make improvements to C-TIPS in preparation for a randomized-controlled trial of this innovative program.
Authors: Crystle-Joie Agbayani; Jo A Tucker; Edward L Nelson; Freddy Martinez; Haydee Cortes; Dina Khoury; Zeev N Kain; Carol Lin; Lilibeth Torno; Michelle A Fortier Journal: Support Care Cancer Date: 2022-01-07 Impact factor: 3.359
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Authors: Winsome Lam; Su-Fang Li; Yan-Zhi Yi; Ka Yan Ho; Katherine K W Lam; Doris Y P Leung; Kitty Y Y Chan; Jacqueline M C Ho; Stephen C W Chan; Hai-Xia Wang; Li Zhou; Yan Yin; Frances K Y Wong Journal: Int J Environ Res Public Health Date: 2022-08-10 Impact factor: 4.614
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