Literature DB >> 30116096

Anti-Racism Methods for Big Data Research: Lessons Learned from the HIV Testing, Linkage, & Retention in Care (HIV TLR) Study.

Chandra L Ford1,2, Lois M Takahashi1,3, P Paul Chandanabhumma1,2, Maria Elena Ruiz1,4, William E Cunningham1,5.   

Abstract

Public Health Critical Race Praxis (PHCRP) contributes three functional elements to health equity studies: a race conscious orientation; an antiracism lexicon based on Critical Race Theory (CRT); and an integrated, reflexive approach. Few big data studies employ all three functional elements. Therefore, this article describes the application of PHCRP to the Human Immunodeficiency Virus Testing, Linkage and Retention in care (HIV TLR) study (N=3,476,741), which connects multiple large datasets to electronic medical records to examine contextual determinants of racial/ethnic disparities in HIV care continuum outcomes in southern California. As HIV TLR demonstrates, PHCRP's innovative tools and strategies help big data research maintain fidelity to CRT.

Entities:  

Keywords:  Big Data; Critical Race Theory; Electronic Medical Records; Health Services Research; Methods; Social Epidemiology

Mesh:

Year:  2018        PMID: 30116096      PMCID: PMC6092168          DOI: 10.18865/ed.28.S1.261

Source DB:  PubMed          Journal:  Ethn Dis        ISSN: 1049-510X            Impact factor:   1.847


  14 in total

1.  The Behavioral Model for Vulnerable Populations: application to medical care use and outcomes for homeless people.

Authors:  L Gelberg; R M Andersen; B D Leake
Journal:  Health Serv Res       Date:  2000-02       Impact factor: 3.402

Review 2.  Paved with good intentions: do public health and human service providers contribute to racial/ethnic disparities in health?

Authors:  Michelle van Ryn; Steven S Fu
Journal:  Am J Public Health       Date:  2003-02       Impact factor: 9.308

3.  'Dying from' to 'living with': framing institutions and the coping processes of African American women living with HIV/AIDS.

Authors:  Celeste Watkins-Hayes; LaShawnDa Pittman-Gay; Jean Beaman
Journal:  Soc Sci Med       Date:  2012-03-09       Impact factor: 4.634

4.  The public health critical race methodology: praxis for antiracism research.

Authors:  Chandra L Ford; Collins O Airhihenbuwa
Journal:  Soc Sci Med       Date:  2010-08-11       Impact factor: 4.634

5.  Implicit value judgments in the measurement of health inequalities.

Authors:  Sam Harper; Nicholas B King; Stephen C Meersman; Marsha E Reichman; Nancy Breen; John Lynch
Journal:  Milbank Q       Date:  2010-03       Impact factor: 4.911

Review 6.  The spectrum of engagement in HIV care and its relevance to test-and-treat strategies for prevention of HIV infection.

Authors:  Edward M Gardner; Margaret P McLees; John F Steiner; Carlos Del Rio; William J Burman
Journal:  Clin Infect Dis       Date:  2011-03-15       Impact factor: 9.079

Review 7.  Toward a fourth generation of disparities research to achieve health equity.

Authors:  Stephen B Thomas; Sandra Crouse Quinn; James Butler; Craig S Fryer; Mary A Garza
Journal:  Annu Rev Public Health       Date:  2011       Impact factor: 21.981

8.  Does racial concordance between HIV-positive patients and their physicians affect the time to receipt of protease inhibitors?

Authors:  William D King; Mitchell D Wong; Martin F Shapiro; Bruce E Landon; William E Cunningham
Journal:  J Gen Intern Med       Date:  2004-11       Impact factor: 5.128

9.  Influence of residential segregation on survival after AIDS diagnosis among non-Hispanic blacks.

Authors:  Kristopher P Fennie; Khaleeq Lutfi; Lorene M Maddox; Spencer Lieb; Mary Jo Trepka
Journal:  Ann Epidemiol       Date:  2014-11-28       Impact factor: 3.797

10.  Progress along the continuum of HIV care among blacks with diagnosed HIV- United States, 2010.

Authors:  Y Omar Whiteside; Stacy M Cohen; Heather Bradley; Jacek Skarbinski; H Irene Hall; Amy Lansky
Journal:  MMWR Morb Mortal Wkly Rep       Date:  2014-02-07       Impact factor: 17.586

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  6 in total

Review 1.  Risks and Opportunities to Ensure Equity in the Application of Big Data Research in Public Health.

Authors:  Paul Wesson; Yulin Hswen; Gilmer Valdes; Kristefer Stojanovski; Margaret A Handley
Journal:  Annu Rev Public Health       Date:  2021-12-06       Impact factor: 21.981

Review 2.  Considerations for Selecting Cognitive Endpoints and Psychological Patient-Reported Outcomes for Clinical Trials in Pediatric Patients With Sickle Cell Disease.

Authors:  Anna M Hood; Lori E Crosby; Hanne Stotesbury; Melanie Kölbel; Fenella J Kirkham
Journal:  Front Neurol       Date:  2022-06-21       Impact factor: 4.086

3.  Confronting Racism in All Forms of Pain Research: A Shared Commitment for Engagement, Diversity, and Dissemination.

Authors:  Anna M Hood; Staja Q Booker; Calia A Morais; Burel R Goodin; Janelle E Letzen; Lisa C Campbell; Ericka N Merriwether; Edwin N Aroke; Claudia M Campbell; Vani A Mathur; Mary R Janevic
Journal:  J Pain       Date:  2022-02-26       Impact factor: 5.383

4.  Introducing the Rapid Assessment of COVID Evidence (RACE) Series.

Authors:  Chandra L Ford; Bita Amani
Journal:  Ethn Dis       Date:  2022-01-20       Impact factor: 2.006

5.  Re-envisioning, Retooling, and Rebuilding Prevention Science Methods to Address Structural and Systemic Racism and Promote Health Equity.

Authors:  Velma McBride Murry; Cory Bradley; Gracelyn Cruden; C Hendricks Brown; George W Howe; Martín-Josè Sepùlveda; William Beardslee; Nanette Hannah; Donald Warne
Journal:  Prev Sci       Date:  2022-10-12

Review 6.  Adequacy of Existing Surveillance Systems to Monitor Racism, Social Stigma and COVID Inequities: A Detailed Assessment and Recommendations.

Authors:  Chandra L Ford; Bita Amani; Nina T Harawa; Randall Akee; Gilbert C Gee; Majid Sarrafzadeh; Consuela Abotsi-Kowu; Shayan Fazeli; Cindy Le; Ezinne Nwankwo; Davina Zamanzadeh; Anaelia Ovalle; Monica L Ponder
Journal:  Int J Environ Res Public Health       Date:  2021-12-12       Impact factor: 3.390

  6 in total

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