Literature DB >> 30097718

Introduction: the why and whither of genomic data sharing.

B M Knoppers1,2, Yann Joly3.   

Abstract

Mesh:

Year:  2018        PMID: 30097718     DOI: 10.1007/s00439-018-1923-y

Source DB:  PubMed          Journal:  Hum Genet        ISSN: 0340-6717            Impact factor:   4.132


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  9 in total

1.  Data analysis: Create a cloud commons.

Authors:  Lincoln D Stein; Bartha M Knoppers; Peter Campbell; Gad Getz; Jan O Korbel
Journal:  Nature       Date:  2015-07-09       Impact factor: 49.962

Review 2.  The Genomic Commons.

Authors:  Jorge L Contreras; Bartha M Knoppers
Journal:  Annu Rev Genomics Hum Genet       Date:  2018-01-25       Impact factor: 8.929

3.  GENOMICS. A federated ecosystem for sharing genomic, clinical data.

Authors: 
Journal:  Science       Date:  2016-06-10       Impact factor: 47.728

4.  Key Implications of Data Sharing in Pediatric Genomics.

Authors:  Vasiliki Rahimzadeh; Christoph Schickhardt; Bartha M Knoppers; Karine Sénécal; Danya F Vears; Conrad V Fernandez; Stefan Pfister; Sharon Plon; Sharon Terry; Janet Williams; Marc S Williams; Martina Cornel; Jan M Friedman
Journal:  JAMA Pediatr       Date:  2018-05-01       Impact factor: 16.193

5.  Prepublication data sharing.

Authors:  Ewan Birney; Thomas J Hudson; Eric D Green; Chris Gunter; Sean Eddy; Jane Rogers; Jennifer R Harris; S Dusko Ehrlich; Rolf Apweiler; Christopher P Austin; Lisa Berglund; Martin Bobrow; Chas Bountra; Anthony J Brookes; Anne Cambon-Thomsen; Nigel P Carter; Rex L Chisholm; Jorge L Contreras; Robert M Cooke; William L Crosby; Ken Dewar; Richard Durbin; Stephanie O M Dyke; Joseph R Ecker; Khaled El Emam; Lars Feuk; Stacey B Gabriel; John Gallacher; William M Gelbart; Antoni Granell; Francisco Guarner; Tim Hubbard; Scott A Jackson; Jennifer L Jennings; Yann Joly; Steven M Jones; Jane Kaye; Karen L Kennedy; Bartha Maria Knoppers; Nikos C Kyrpides; William W Lowrance; Jingchu Luo; John J MacKay; Luis Martín-Rivera; W Richard McCombie; John D McPherson; Linda Miller; Webb Miller; Don Moerman; Vincent Mooser; Cynthia C Morton; James M Ostell; B F Francis Ouellette; Julian Parkhill; Parminder S Raina; Christopher Rawlings; Steven E Scherer; Stephen W Scherer; Paul N Schofield; Christoph W Sensen; Victoria C Stodden; Michael R Sussman; Toshihiro Tanaka; Janet Thornton; Tatsuhiko Tsunoda; David Valle; Eero I Vuorio; Neil M Walker; Susan Wallace; George Weinstock; William B Whitman; Kim C Worley; Cathy Wu; Jiayan Wu; Jun Yu
Journal:  Nature       Date:  2009-09-10       Impact factor: 49.962

6.  Creating a data resource: what will it take to build a medical information commons?

Authors:  Patricia A Deverka; Mary A Majumder; Angela G Villanueva; Margaret Anderson; Annette C Bakker; Jessica Bardill; Eric Boerwinkle; Tania Bubela; Barbara J Evans; Nanibaa' A Garrison; Richard A Gibbs; Robert Gentleman; David Glazer; Melissa M Goldstein; Hank Greely; Crane Harris; Bartha M Knoppers; Barbara A Koenig; Isaac S Kohane; Salvatore La Rosa; John Mattison; Christopher J O'Donnell; Arti K Rai; Heidi L Rehm; Laura L Rodriguez; Robert Shelton; Tania Simoncelli; Sharon F Terry; Michael S Watson; John Wilbanks; Robert Cook-Deegan; Amy L McGuire
Journal:  Genome Med       Date:  2017-09-22       Impact factor: 11.117

7.  Moving beyond Bermuda: sharing data to build a medical information commons.

Authors:  Robert Cook-Deegan; Amy L McGuire
Journal:  Genome Res       Date:  2017-04-03       Impact factor: 9.043

8.  Genomic cloud computing: legal and ethical points to consider.

Authors:  Edward S Dove; Yann Joly; Anne-Marie Tassé; Bartha M Knoppers
Journal:  Eur J Hum Genet       Date:  2014-09-24       Impact factor: 4.246

9.  Framework for responsible sharing of genomic and health-related data.

Authors:  Bartha Maria Knoppers
Journal:  Hugo J       Date:  2014-10-17
  9 in total
  8 in total

Review 1.  Conclusion: harmonisation in genomic and health data sharing for research: an impossible dream?

Authors:  David Townend
Journal:  Hum Genet       Date:  2018-08-17       Impact factor: 4.132

2.  A scientometric review of genome-wide association studies.

Authors:  Melinda C Mills; Charles Rahal
Journal:  Commun Biol       Date:  2019-01-07

3.  Programmatic Access to FAIRified Digital Plant Genetic Resources.

Authors:  Mehmood Ghaffar; Danuta Schüler; Patrick König; Daniel Arend; Astrid Junker; Uwe Scholz; Matthias Lange
Journal:  J Integr Bioinform       Date:  2020-01-08

4.  Global Public Perceptions of Genomic Data Sharing: What Shapes the Willingness to Donate DNA and Health Data?

Authors:  Anna Middleton; Richard Milne; Mohamed A Almarri; Shamim Anwer; Jerome Atutornu; Elena E Baranova; Paul Bevan; Maria Cerezo; Yali Cong; Christine Critchley; Josepine Fernow; Peter Goodhand; Qurratulain Hasan; Aiko Hibino; Gry Houeland; Heidi C Howard; S Zakir Hussain; Charlotta Ingvoldstad Malmgren; Vera L Izhevskaya; Aleksandra Jędrzejak; Cao Jinhong; Megumi Kimura; Erika Kleiderman; Brandi Leach; Keying Liu; Deborah Mascalzoni; Álvaro Mendes; Jusaku Minari; Nan Wang; Dianne Nicol; Emilia Niemiec; Christine Patch; Jack Pollard; Barbara Prainsack; Marie Rivière; Lauren Robarts; Jonathan Roberts; Virginia Romano; Haytham A Sheerah; James Smith; Alexandra Soulier; Claire Steed; Vigdís Stefànsdóttir; Cornelia Tandre; Adrian Thorogood; Torsten H Voigt; Anne V West; Go Yoshizawa; Katherine I Morley
Journal:  Am J Hum Genet       Date:  2020-09-17       Impact factor: 11.025

5.  Essential requirements for establishing and operating data trusts: practical guidance co-developed by representatives from fifteen canadian organizations and initiatives.

Authors:  P Alison Paprica; Eric Sutherland; Andrea Smith; Michael Brudno; Rosario G Cartagena; Monique Crichlow; Brian K Courtney; Chris Loken; Kimberlyn M McGrail; Alex Ryan; Michael J Schull; Adrian Thorogood; Carl Virtanen; Kathleen Yang
Journal:  Int J Popul Data Sci       Date:  2020-08-24

6.  The Protection for Personal Information Based on IoT Network Management and Data Sharing in Big Data Era.

Authors:  Yu Zhang; Hexiao Yin; Haoyun Dong
Journal:  J Environ Public Health       Date:  2022-10-03

7.  Where Does Open Science Lead Us During a Pandemic? A Public Good Argument to Prioritize Rights in the Open Commons.

Authors:  Benjamin Capps
Journal:  Camb Q Healthc Ethics       Date:  2020-06-05       Impact factor: 1.566

Review 8.  Practical guide for managing large-scale human genome data in research.

Authors:  Tomoya Tanjo; Yosuke Kawai; Katsushi Tokunaga; Osamu Ogasawara; Masao Nagasaki
Journal:  J Hum Genet       Date:  2020-10-23       Impact factor: 3.172

  8 in total

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