Literature DB >> 30057442

Design Issues in E-Consent.

John Wilbanks1.   

Abstract

Entities:  

Mesh：

Year:  2018        PMID： 30057442      PMCID： PMC6062847          DOI： 10.1177/1073110518766025

Source DB:  PubMed          Journal:  J Law Med Ethics        ISSN： 1073-1105            Impact factor:   1.604


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  8 in total

1.  Readability standards for informed-consent forms as compared with actual readability.

Authors:  Michael K Paasche-Orlow; Holly A Taylor; Frederick L Brancati
Journal:  N Engl J Med       Date:  2003-02-20       Impact factor: 91.245

Review 2.  Interventions to improve research participants' understanding in informed consent for research: a systematic review.

Authors:  James Flory; Ezekiel Emanuel
Journal:  JAMA       Date:  2004-10-06       Impact factor: 56.272

3.  Informed consent -- why are its goals imperfectly realized?

Authors:  B R Cassileth; R V Zupkis; K Sutton-Smith; V March
Journal:  N Engl J Med       Date:  1980-04-17       Impact factor: 91.245

4.  Shared decision-making.

Authors:  William Godolphin
Journal:  Healthc Q       Date:  2009

Review 5.  Participant comprehension of research for which they volunteer: a systematic review.

Authors:  Wanda Montalvo; Elaine Larson
Journal:  J Nurs Scholarsh       Date:  2014-08-15       Impact factor: 3.176

6.  A longitudinal program for biomarker development in Parkinson's disease: a feasibility study.

Authors:  Bernard Ravina; Caroline Tanner; Diane Dieuliis; Shirley Eberly; Emily Flagg; Wendy R Galpern; Stanley Fahn; Christopher G Goetz; Stephen Grate; Roger Kurlan; Anthony E Lang; Kenneth Marek; Karl Kieburtz; David Oakes; Robin Elliott; Ira Shoulson
Journal:  Mov Disord       Date:  2009-10-30       Impact factor: 10.338

7.  Formative Evaluation of Participant Experience With Mobile eConsent in the App-Mediated Parkinson mPower Study: A Mixed Methods Study.

Authors:  Megan Doerr; Amy Maguire Truong; Brian M Bot; John Wilbanks; Christine Suver; Lara M Mangravite
Journal:  JMIR Mhealth Uhealth       Date:  2017-02-16       Impact factor: 4.773

8.  The mPower study, Parkinson disease mobile data collected using ResearchKit.

Authors:  Brian M Bot; Christine Suver; Elias Chaibub Neto; Michael Kellen; Arno Klein; Christopher Bare; Megan Doerr; Abhishek Pratap; John Wilbanks; E Ray Dorsey; Stephen H Friend; Andrew D Trister
Journal:  Sci Data       Date:  2016-03-03       Impact factor: 6.444
  8 in total
  13 in total

1.  National health information technology priorities for research: A policy and development agenda.

Authors:  Teresa Zayas-Cabán; Kevin J Chaney; Donald W Rucker
Journal:  J Am Med Inform Assoc       Date:  2020-04-01       Impact factor: 4.497

2.  Communicating With Diverse Patients About Participating in a Biobank: A Randomized Multisite Study Comparing Electronic and Face-to-Face Informed Consent Processes.

Authors:  Christian M Simon; Kai Wang; Laura A Shinkunas; Daniel T Stein; Paul Meissner; Maureen Smith; Rebecca Pentz; David W Klein
Journal:  J Empir Res Hum Res Ethics       Date:  2021-08-19       Impact factor: 1.742

Review 3.  The Ethics of Consent in a Shifting Genomic Ecosystem.

Authors:  Sandra Soo-Jin Lee
Journal:  Annu Rev Biomed Data Sci       Date:  2021-07-20

Review 4.  Key components and IT assistance of participant management in clinical research: a scoping review.

Authors:  Johannes Pung; Otto Rienhoff
Journal:  JAMIA Open       Date:  2020-10-14

5.  Informed Consent in Two Alzheimer's Disease Research Centers: Insights From Research Coordinators.

Authors:  Christine M Suver; Jennifer K Hamann; Erin M Chin; Felicia C Goldstein; Hanna M Blazel; Cecelia M Manzanares; Megan J Doerr; Sanjay J Asthana; Lara M Mangravite; Allan I Levey; James J Lah; Dorothy F Edwards
Journal:  AJOB Empir Bioeth       Date:  2020-03-16

6.  Informed Consent for Mobile Phone Health Surveys in Colombia: A Qualitative Study.

Authors:  Mariana Rodriguez-Patarroyo; Angelica Torres-Quintero; Andres I Vecino-Ortiz; Kristina Hallez; Aixa Natalia Franco-Rodriguez; Eduardo A Rueda Barrera; Stephanie Puerto; Dustin G Gibson; Alain Labrique; George W Pariyo; Joseph Ali
Journal:  J Empir Res Hum Res Ethics       Date:  2020-09-25       Impact factor: 1.742

Review 7.  Electronic consenting for conducting research remotely: A review of current practice and key recommendations for using e-consenting.

Authors:  Emily Skelton; Nicholas Drey; Mary Rutherford; Susan Ayers; Christina Malamateniou
Journal:  Int J Med Inform       Date:  2020-09-13       Impact factor: 4.046

Review 8.  Adolescent Assent and Reconsent for Biobanking: Recent Developments and Emerging Ethical Issues.

Authors:  T J Kasperbauer; Colin Halverson
Journal:  Front Med (Lausanne)       Date:  2021-07-09

9.  Lessons Learned: Beta-Testing the Digital Health Checklist for Researchers Prompts a Call to Action by Behavioral Scientists.

Authors:  Rebecca Bartlett Ellis; Julie Wright; Lisa Soederberg Miller; Danielle Jake-Schoffman; Eric B Hekler; Carly M Goldstein; Danielle Arigo; Camille Nebeker
Journal:  J Med Internet Res       Date:  2021-12-22       Impact factor: 5.428

10.  Outreach to new mothers through direct mail and email: recruitment in the Early Check research study.

Authors:  Ryan S Paquin; Megan A Lewis; Blake A Harper; Rebecca R Moultrie; Angela Gwaltney; Lisa M Gehtland; Holly L Peay; Martin Duparc; Melissa Raspa; Anne C Wheeler; Cynthia M Powell; Nancy M P King; Scott M Shone; Donald B Bailey
Journal:  Clin Transl Sci       Date:  2021-02-13       Impact factor: 4.689
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