Literature DB >> 30014364

One For All, All For One? Collective Representation in Healthcare Policy.

Karin Jongsma1, Nitzan Rimon-Zarfaty2,3, Aviad Raz3, Silke Schicktanz2.   

Abstract

Healthcare collectives, such as patient organizations, advocacy groups, disability organizations, professional associations, industry advocates, social movements, and health consumer organizations have been increasingly involved in healthcare policymaking. Such collectives are based on the idea that individual interests can be aggregated into collective interests by participation, deliberation, and representation. The topic of collectivity in healthcare, more specifically collective representation, has only rarely been addressed in (Western) bioethics. This symposium, entitled: "Collective Representation in Healthcare Policy" of the Journal of Bioethical Inquiry draws attention to this understudied topic from a variety of disciplines, within a variety of socio-cultural contexts. We draw attention to important ethical, cultural, and social questions, and into the practices, justifications for, and implications of collective representation of patients in healthcare policy.

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Mesh:

Year:  2018        PMID: 30014364     DOI: 10.1007/s11673-018-9870-9

Source DB:  PubMed          Journal:  J Bioeth Inq        ISSN: 1176-7529            Impact factor:   1.352


  10 in total

1.  Addressing Deficits and Injustices: The Potential Epistemic Contributions of Patients to Research.

Authors:  Katrina Hutchison; Wendy Rogers; Vikki A Entwistle
Journal:  Health Care Anal       Date:  2017-12

2.  Mitochondrial Replacement Techniques : Examining Collective Representation in Emerging Technologies Governance.

Authors:  Jacquelyne Luce
Journal:  J Bioeth Inq       Date:  2018-07-31       Impact factor: 1.352

3.  Understanding collective agency in bioethics.

Authors:  Katharina Beier; Isabella Jordan; Claudia Wiesemann; Silke Schicktanz
Journal:  Med Health Care Philos       Date:  2016-09

4.  Navigating individual and collective interests in medical ethics.

Authors:  Jonathan Pugh
Journal:  J Med Ethics       Date:  2018-01       Impact factor: 2.903

5.  Representing Whom? U.K. Health Consumer and Patients' Organizations in the Policy Process.

Authors:  Rob Baggott; Kathryn L Jones
Journal:  J Bioeth Inq       Date:  2018-05-25       Impact factor: 1.352

6.  Are ME/CFS Patient Organizations "Militant"? : Patient Protest in a Medical Controversy.

Authors:  Charlotte Blease; Keith J Geraghty
Journal:  J Bioeth Inq       Date:  2018-07-03       Impact factor: 1.352

7.  Legislating Patient Representation: A Comparison Between Austrian and German Regulations on Self-Help Organizations as Patient Representatives.

Authors:  Daniela Rojatz; Julia Fischer; Hester Van de Bovenkamp
Journal:  J Bioeth Inq       Date:  2018-07-02       Impact factor: 1.352

8.  The relevance of different trust models for representation in patient organizations: conceptual considerations.

Authors:  Helene Gerhards; Karin Jongsma; Silke Schicktanz
Journal:  BMC Health Serv Res       Date:  2017-07-11       Impact factor: 2.655

9.  Patient Representation and Advocacy for Alzheimer Disease in Germany and Israel.

Authors:  Silke Schicktanz; Nitzan Rimon-Zarfaty; Aviad Raz; Karin Jongsma
Journal:  J Bioeth Inq       Date:  2018-07-31       Impact factor: 1.352

10.  Representative Claims in Healthcare: Identifying the Variety in Patient Representation.

Authors:  Hester M van de Bovenkamp; Hans Vollaard
Journal:  J Bioeth Inq       Date:  2018-06-07       Impact factor: 1.352

  10 in total
  2 in total

1.  Embedded Journalists or Empirical Critics? The Nature of The "Gaze" in Bioethics.

Authors:  Michael A Ashby; Bronwen Morrell
Journal:  J Bioeth Inq       Date:  2018-09       Impact factor: 1.352

2.  Citizens under the umbrella: citizenship projects and the development of genetic umbrella organizations in the USA and the UK.

Authors:  Koichi Mikami
Journal:  New Genet Soc       Date:  2020-03-06
  2 in total

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