Literature DB >> 26948497

Understanding collective agency in bioethics.

Katharina Beier1, Isabella Jordan1, Claudia Wiesemann1, Silke Schicktanz2.   

Abstract

Bioethicists tend to focus on the individual as the relevant moral subject. Yet, in highly complex and socially differentiated healthcare systems a number of social groups, each committed to a common cause, are involved in medical decisions and sometimes even try to influence bioethical discourses according to their own agenda. We argue that the significance of these collective actors is unjustifiably neglected in bioethics. The growing influence of collective actors in the fields of biopolitics and bioethics leads us to pursue the question as to how collective moral claims can be characterized and justified. We pay particular attention to elaborating the circumstances under which collective actors can claim 'collective agency.' Specifically, we develop four normative-practical criteria for collective agency in order to determine the conditions that must be given to reasonably speak of 'collective autonomy'. For this purpose, we analyze patient organizations and families, which represent two quite different kinds of groups and can both be conceived as collective actors of high relevance for bioethical practice. Finally, we discuss some practical implications and explain why the existence of a shared practice of trust is of immediate normative relevance in this respect.

Entities:  

Keywords:  Autonomy; Bioethics; Collective; Family; Patient organization; Social identity; Trust

Mesh:

Year:  2016        PMID: 26948497     DOI: 10.1007/s11019-016-9695-4

Source DB:  PubMed          Journal:  Med Health Care Philos        ISSN: 1386-7423


  18 in total

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8.  Resisting social disenfranchisement: negotiating collective identities and everyday life with memory loss.

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Review 9.  Relational autonomy or undue pressure? Family's role in medical decision-making.

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Journal:  Scand J Caring Sci       Date:  2008-03

10.  The ethics of 'public understanding of ethics'--why and how bioethics expertise should include public and patients' voices.

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Journal:  Med Health Care Philos       Date:  2012-05
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  5 in total

1.  Representing Whom? U.K. Health Consumer and Patients' Organizations in the Policy Process.

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Authors:  Karin Jongsma; Nitzan Rimon-Zarfaty; Aviad Raz; Silke Schicktanz
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Authors:  Helene Gerhards; Karin Jongsma; Silke Schicktanz
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5.  Involving Patient Groups in Drug Research: A Systematic Review of Reasons.

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  5 in total

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