Kathleen A Calzone1, Maggie Kirk2, Emma Tonkin3, Laurie Badzek4, Caroline Benjamin5, Anna Middleton6. 1. National Institutes of Health, National Cancer Institute, Center for Cancer Research, Genetics Branch, 37 Convent Drive, Building 37, RM 6002C, MSC 4256, Bethesda, MD 20892, USA. Electronic address: calzonek@mail.nih.gov. 2. Genomics Policy Unit, University of South Wales, Pontypridd, Cardiff CF37 1DL, UK. Electronic address: maggie.kirk@southwales.ac.uk. 3. University of South Wales, Genomics Policy Unit, Faculty of Life Sciences and Education, Glyntaff Campus, Pontypridd CF37 1DL, UK. Electronic address: emma.tonkin@southwales.ac.uk. 4. Penn State University College of Nursing 201 Nursing Science Building University Park, PA 16802, USA. Electronic address: lzb340@psu.edu. 5. School of Community Health and Midwifery, Faculty of Health & Wellbeing, University of Central Lancashire, Preston, England, UK; Liverpool Women's NHS Hospital Trust, Crown Street, Liverpool, England L17 5BY, UK. Electronic address: cbenjamin1@uclan.ac.uk. 6. Connecting Science, Wellcome Genome Campus, Cambridge CB10 1SA, UK; Faculty of Education, University of Cambridge, UK. Electronic address: anna.middleton@wgc.org.uk.
Abstract
BACKGROUND: Global genomic literacy of all health professions, including nurses, remains low despite an inundation of genomic information with established clinical and analytic validity and clinical utility. Genomic literacy and competency deficits contribute to lost opportunities to take advantage of the benefits that genomic information provides to improve health outcomes, reduce healthcare costs, and increase patient quality and safety. Nurses are essential to the integration of genomics into healthcare. The greatest challenges to realizing their potential in successful integration include education and awareness. Identification of resources, their focus, whether they targeted at nursing, and how to access them, form the foundation for a global genomic resource initiative led by the Global Genomics Nursing Alliance. OBJECTIVES: The aim was to identify existing global genomic resources and competencies, identifying the source, type and accessibility. DESIGN: Cross sectional online descriptive survey to ascertain existing genomic resources. SETTINGS: Limited to eighteen countries and seven organizations represented by delegates attending the inaugural meeting in 2017 of the Global Genomics Nursing Alliance. PARTICIPANTS: A purposive sample of global nursing leaders and representatives of national and international nursing organizations. METHODS: The primary method was by online survey administered following an orientation webinar. Given the small numbers of nurse leaders in genomics within our sample (and indeed within the world), results were analyzed and presented descriptively. Those identifying resources provided further detailed resource information. Additional data were collected during a face-to-face meeting using an electronic audience-response system. RESULTS: Of the twenty-three global delegates responding, 9 identified existing genomic resources that could be used for academic or continuing genomics education. Three countries have competence frameworks to guide learning and 5 countries have national organizations for genetics nurses. CONCLUSIONS: The genomic resources that already exist are not readily accessible or discoverable to the international nursing community and as such are underutilized.
BACKGROUND: Global genomic literacy of all health professions, including nurses, remains low despite an inundation of genomic information with established clinical and analytic validity and clinical utility. Genomic literacy and competency deficits contribute to lost opportunities to take advantage of the benefits that genomic information provides to improve health outcomes, reduce healthcare costs, and increase patient quality and safety. Nurses are essential to the integration of genomics into healthcare. The greatest challenges to realizing their potential in successful integration include education and awareness. Identification of resources, their focus, whether they targeted at nursing, and how to access them, form the foundation for a global genomic resource initiative led by the Global Genomics Nursing Alliance. OBJECTIVES: The aim was to identify existing global genomic resources and competencies, identifying the source, type and accessibility. DESIGN: Cross sectional online descriptive survey to ascertain existing genomic resources. SETTINGS: Limited to eighteen countries and seven organizations represented by delegates attending the inaugural meeting in 2017 of the Global Genomics Nursing Alliance. PARTICIPANTS: A purposive sample of global nursing leaders and representatives of national and international nursing organizations. METHODS: The primary method was by online survey administered following an orientation webinar. Given the small numbers of nurse leaders in genomics within our sample (and indeed within the world), results were analyzed and presented descriptively. Those identifying resources provided further detailed resource information. Additional data were collected during a face-to-face meeting using an electronic audience-response system. RESULTS: Of the twenty-three global delegates responding, 9 identified existing genomic resources that could be used for academic or continuing genomics education. Three countries have competence frameworks to guide learning and 5 countries have national organizations for genetics nurses. CONCLUSIONS: The genomic resources that already exist are not readily accessible or discoverable to the international nursing community and as such are underutilized.
Authors: Kathleen A Calzone; Bonnie Jerome-D'Emilia; Jean Jenkins; Constance Goldgar; Michael Rackover; John Jackson; Ye Chen; John Voss; W Gregory Feero Journal: J Nurs Scholarsh Date: 2011-08-26 Impact factor: 3.176
Authors: Emma Kurnat-Thoma; Mei R Fu; Wendy A Henderson; Joachim G Voss; Marilyn J Hammer; Janet K Williams; Kathleen Calzone; Yvette P Conley; Angela Starkweather; Michael T Weaver; S Pamela K Shiao; Bernice Coleman Journal: Nurs Outlook Date: 2021-01-22 Impact factor: 3.250