Mojtaba Rezaei1, Mahmoud Omidbeigi2, Sara Hanaei3,4, Negin Saeedi5, Khatereh Naghdi1, Alexander R Vaccaro6, Vafa Rahimi-Movaghar1,7,8,9. 1. 1Sina Trauma and Surgery Research Center, Tehran University of Medical Sciences, Tehran, Iran. 2. 2Clinical Research Development Center, Loghman Hakim Hospital, Shahid Beheshti University of Medical Sciences, Tehran, Iran. 3. 3School of Medicine, Tehran University of Medical Sciences (TUMS), Tehran, Iran. 4. Universal Scientific Education and Research Network (USERN), Tehran, Iran. 5. 5Department of Physiology and Neuroscience Research Center, Medical School, Shahid Beheshti University of Medical Science, Tehran, Iran. 6. 6Rothman Institute, Thomas Jefferson University Hospital, Philadelphia, PA USA. 7. 7Brain and Spinal Injuries Research Center (BASIR), Imam Khomeini Hospital, Tehran University of Medical Sciences, Tehran, Iran. 8. 8Department of Neurosurgery, Shariati Hospital, Tehran University of Medical Sciences, Tehran, Iran. 9. 9Tissue Repair Laboratory, Institute of Biochemistry and Biophysics (IBB), University of Tehran, Tehran, Iran.
Abstract
STUDY DESIGN: Descriptive study of the results of a web-based consultation service for individuals with spinal cord injury (SCI). OBJECTIVES: To review frequently asked questions (FAQ) among individuals with SCI and determine the most important topics. SETTING: Sina Trauma and Surgery Research Center, Tehran University of Medical Sciences, Tehran, Iran. METHODS: A cross-sectional study reviewing questions from patients with SCI that were collected from the Health and Safety Consultant Center (HSCC) between January and December 2015. The HSCC is a web-based medical consultation service that provides patients with information and counseling pertaining to SCI. RESULTS: A total of 113 questions were collected from 99 individuals. The mean age was 32.02 ± 13.28 years with a range of 3-70 years. Men accounted for 81.7% of the questions, while women accounted for 18.3%. The most common site of SCI was thoracic (40.6%), followed by lumbar (31.3%), and cervical (28.1%). Recovery potential (38.1%), sexual and reproductive issues (26.5%), urinary (10.6%), and motor (10.6%) problems were among the most commonly reviewed topics. CONCLUSIONS: FAQ provide insight on areas of concerns for individuals with SCI and help guide providers to determine high-yield topics. Discerning the specific areas of need or concern for patients is instrumental in developing pertinent educational materials and programs, in addition to efficiently counseling patients and caregivers on the aftercare of SCI.
STUDY DESIGN: Descriptive study of the results of a web-based consultation service for individuals with spinal cord injury (SCI). OBJECTIVES: To review frequently asked questions (FAQ) among individuals with SCI and determine the most important topics. SETTING: Sina Trauma and Surgery Research Center, Tehran University of Medical Sciences, Tehran, Iran. METHODS: A cross-sectional study reviewing questions from patients with SCI that were collected from the Health and Safety Consultant Center (HSCC) between January and December 2015. The HSCC is a web-based medical consultation service that provides patients with information and counseling pertaining to SCI. RESULTS: A total of 113 questions were collected from 99 individuals. The mean age was 32.02 ± 13.28 years with a range of 3-70 years. Men accounted for 81.7% of the questions, while women accounted for 18.3%. The most common site of SCI was thoracic (40.6%), followed by lumbar (31.3%), and cervical (28.1%). Recovery potential (38.1%), sexual and reproductive issues (26.5%), urinary (10.6%), and motor (10.6%) problems were among the most commonly reviewed topics. CONCLUSIONS: FAQ provide insight on areas of concerns for individuals with SCI and help guide providers to determine high-yield topics. Discerning the specific areas of need or concern for patients is instrumental in developing pertinent educational materials and programs, in addition to efficiently counseling patients and caregivers on the aftercare of SCI.
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