Literature DB >> 29938127

Using a participatory approach to develop and implement the UK ME/CFS Biobank.

Eliana M Lacerda1, Caroline C Kingdon1, Erinna W Bowman2, Luis Nacul1.   

Abstract

Entities:  

Year:  2017        PMID： 29938127      PMCID： PMC6005931          DOI： 10.1080/21641846.2018.1396021

Source DB:  PubMed          Journal:  Fatigue        ISSN： 2164-1846


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  14 in total

Review 1.  Community based participatory research: a promising approach for increasing epidemiology's relevance in the 21st century.

Authors:  Margaret W Leung; Irene H Yen; Meredith Minkler
Journal:  Int J Epidemiol       Date:  2004-05-20       Impact factor: 7.196

2.  Community-based research partnerships: challenges and opportunities.

Authors:  Meredith Minkler
Journal:  J Urban Health       Date:  2005-05-11       Impact factor: 3.671

3.  Using community-based participatory research to address health disparities.

Authors:  Nina B Wallerstein; Bonnie Duran
Journal:  Health Promot Pract       Date:  2006-06-07

4.  What is participatory research?

Authors:  A Cornwall; R Jewkes
Journal:  Soc Sci Med       Date:  1995-12       Impact factor: 4.634

5.  Whither lay epidemiology in UK public health policy and practice? Some reflections on occupational and environmental health opportunities.

Authors:  A Watterson
Journal:  J Public Health Med       Date:  1994-09

6.  Differing case definitions point to the need for an accurate diagnosis of myalgic encephalomyelitis/chronic fatigue syndrome.

Authors:  Luis Nacul; Caroline C Kingdon; Erinna W Bowman; Hayley Curran; Eliana M Lacerda
Journal:  Fatigue       Date:  2017-01-08

7.  'PACE-Gate': When clinical trial evidence meets open data access.

Authors:  Keith J Geraghty
Journal:  J Health Psychol       Date:  2016-11-01

8.  The UK ME/CFS Biobank for biomedical research on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Multiple Sclerosis.

Authors:  Eliana M Lacerda; Erinna W Bowman; Jacqueline M Cliff; Caroline C Kingdon; Elizabeth C King; Ji-Sook Lee; Taane G Clark; Hazel M Dockrell; Eleanor M Riley; Hayley Curran; Luis Nacul
Journal:  Open J Bioresour       Date:  2017-02-20

Review 9.  How have selection bias and disease misclassification undermined the validity of myalgic encephalomyelitis/chronic fatigue syndrome studies?

Authors:  Luis Nacul; Eliana M Lacerda; Caroline C Kingdon; Hayley Curran; Erinna W Bowman
Journal:  J Health Psychol       Date:  2017-03-01

Review 10.  The expressed needs of people with chronic fatigue syndrome/myalgic encephalomyelitis: a systematic review.

Authors:  Maria de Lourdes Drachler; Jose Carlos de Carvalho Leite; Lee Hooper; Chia Swee Hong; Derek Pheby; Luis Nacul; Eliana Lacerda; Peter Campion; Anne Killett; Maggie McArthur; Fiona Poland
Journal:  BMC Public Health       Date:  2009-12-11       Impact factor: 3.295
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  3 in total

1.  Hope, disappointment and perseverance: Reflections of people with Myalgic encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Multiple Sclerosis participating in biomedical research. A qualitative focus group study.

Authors:  Eliana M Lacerda; Clare McDermott; Caroline C Kingdon; Jack Butterworth; Jacqueline M Cliff; Luis Nacul
Journal:  Health Expect       Date:  2019-01-10       Impact factor: 3.377

2.  Ensuring the Voice of the Very Severely Affected Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patient Is Heard in Research-A Research Model.

Authors:  Helen Baxter
Journal:  Healthcare (Basel)       Date:  2022-07-10

3.  Public awareness of and attitudes towards research biobanks in Latvia.

Authors:  S Mezinska; J Kaleja; I Mileiko; D Santare; V Rovite; L Tzivian
Journal:  BMC Med Ethics       Date:  2020-07-31       Impact factor: 2.652
  3 in total

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