Literature DB >> 28649428

The UK ME/CFS Biobank for biomedical research on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Multiple Sclerosis.

Eliana M Lacerda1, Erinna W Bowman1, Jacqueline M Cliff2, Caroline C Kingdon1, Elizabeth C King2, Ji-Sook Lee2, Taane G Clark3, Hazel M Dockrell2, Eleanor M Riley2, Hayley Curran1, Luis Nacul1.   

Abstract

The UK ME/CFS Biobank was launched in August 2011 following extensive consultation with professionals and patient representatives. The bioresource aims to enhance research on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), related to pathophysiology, biomarkers and therapeutic approaches. The cohort includes 18-60 year olds, encompassing 284 clinically-confirmed ME/CFS cases, 60 neurologist-diagnosed multiple sclerosis (MS) cases, and 135 healthy individuals. The Biobank contains blood samples, aliquoted into serum, plasma, peripheral blood mononuclear cells (PBMC), red blood cells/granulocyte pellet, whole blood, and RNA (totalling 29,863 aliquots). Extensive dataset (700 clinical and socio-demographic variables/participant) enables comprehensive phenotyping. Potential reuse is conditional to ethical approval.

Entities:  

Keywords:  Myalgic Encephalomyelitis / Chronic Fatigue Syndrome; biobank; biospecimen; database; multiple sclerosis

Year:  2017        PMID： 28649428      PMCID： PMC5482226          DOI： 10.5334/ojb.28

Source DB:  PubMed          Journal:  Open J Bioresour        ISSN： 2056-5542


  19 in total

1.  General Health Questionnaire - 28 (GHQ-28).

Authors:  Michele Sterling
Journal:  J Physiother       Date:  2011       Impact factor: 7.000

2.  Validation of the fatigue severity scale in a Swiss cohort.

Authors:  Philipp O Valko; Claudio L Bassetti; Konrad E Bloch; Ulrike Held; Christian R Baumann
Journal:  Sleep       Date:  2008-11       Impact factor: 5.849

3.  The chronic fatigue syndrome: a comprehensive approach to its definition and study. International Chronic Fatigue Syndrome Study Group.

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5.  A new method for measuring daytime sleepiness: the Epworth sleepiness scale.

Authors:  M W Johns
Journal:  Sleep       Date:  1991-12       Impact factor: 5.849

Review 6.  Measures of adult pain: Visual Analog Scale for Pain (VAS Pain), Numeric Rating Scale for Pain (NRS Pain), McGill Pain Questionnaire (MPQ), Short-Form McGill Pain Questionnaire (SF-MPQ), Chronic Pain Grade Scale (CPGS), Short Form-36 Bodily Pain Scale (SF-36 BPS), and Measure of Intermittent and Constant Osteoarthritis Pain (ICOAP).

Authors:  Gillian A Hawker; Samra Mian; Tetyana Kendzerska; Melissa French
Journal:  Arthritis Care Res (Hoboken)       Date:  2011-11       Impact factor: 4.794

7.  A report--chronic fatigue syndrome: guidelines for research.

Authors:  M C Sharpe; L C Archard; J E Banatvala; L K Borysiewicz; A W Clare; A David; R H Edwards; K E Hawton; H P Lambert; R J Lane
Journal:  J R Soc Med       Date:  1991-02       Impact factor: 18.000

8.  Prevalence of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) in three regions of England: a repeated cross-sectional study in primary care.

Authors:  Luis C Nacul; Eliana M Lacerda; Derek Pheby; Peter Campion; Mariam Molokhia; Shagufta Fayyaz; Jose C D C Leite; Fiona Poland; Amanda Howe; Maria L Drachler
Journal:  BMC Med       Date:  2011-07-28       Impact factor: 8.775

Review 9.  The expressed needs of people with chronic fatigue syndrome/myalgic encephalomyelitis: a systematic review.

Authors:  Maria de Lourdes Drachler; Jose Carlos de Carvalho Leite; Lee Hooper; Chia Swee Hong; Derek Pheby; Luis Nacul; Eliana Lacerda; Peter Campion; Anne Killett; Maggie McArthur; Fiona Poland
Journal:  BMC Public Health       Date:  2009-12-11       Impact factor: 3.295

10.  Appraisal of the Karnofsky Performance Status and proposal of a simple algorithmic system for its evaluation.

Authors:  Dominik Péus; Nicolas Newcomb; Silvia Hofer
Journal:  BMC Med Inform Decis Mak       Date:  2013-07-19       Impact factor: 2.796
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  17 in total

1.  Using a participatory approach to develop and implement the UK ME/CFS Biobank.

Authors:  Eliana M Lacerda; Caroline C Kingdon; Erinna W Bowman; Luis Nacul
Journal:  Fatigue       Date:  2017-10-30

2.  European Network on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (EUROMENE): Expert Consensus on the Diagnosis, Service Provision, and Care of People with ME/CFS in Europe.

Authors:  Luis Nacul; François Jérôme Authier; Carmen Scheibenbogen; Lorenzo Lorusso; Ingrid Bergliot Helland; Jose Alegre Martin; Carmen Adella Sirbu; Anne Marit Mengshoel; Olli Polo; Uta Behrends; Henrik Nielsen; Patricia Grabowski; Slobodan Sekulic; Nuno Sepulveda; Fernando Estévez-López; Pawel Zalewski; Derek F H Pheby; Jesus Castro-Marrero; Giorgos K Sakkas; Enrica Capelli; Ivan Brundsdlund; John Cullinan; Angelika Krumina; Jonas Bergquist; Modra Murovska; Ruud C W Vermuelen; Eliana M Lacerda
Journal:  Medicina (Kaunas)       Date:  2021-05-19       Impact factor: 2.430

3.  Erythrocyte microRNA sequencing reveals differential expression in relapsing-remitting multiple sclerosis.

Authors:  Kira Groen; Vicki E Maltby; Rodney A Lea; Katherine A Sanders; J Lynn Fink; Rodney J Scott; Lotti Tajouri; Jeannette Lechner-Scott
Journal:  BMC Med Genomics       Date:  2018-05-21       Impact factor: 3.063

Review 4.  Systematic Review of the Epidemiological Burden of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Across Europe: Current Evidence and EUROMENE Research Recommendations for Epidemiology.

Authors:  Fernando Estévez-López; Kathleen Mudie; Xia Wang-Steverding; Inger Johanne Bakken; Andrejs Ivanovs; Jesús Castro-Marrero; Luis Nacul; Jose Alegre; Paweł Zalewski; Joanna Słomko; Elin Bolle Strand; Derek Pheby; Evelina Shikova; Lorenzo Lorusso; Enrica Capelli; Slobodan Sekulic; Carmen Scheibenbogen; Nuno Sepúlveda; Modra Murovska; Eliana Lacerda
Journal:  J Clin Med       Date:  2020-05-21       Impact factor: 4.241

5.  Hand Grip Strength as a Clinical Biomarker for ME/CFS and Disease Severity.

Authors:  Luis Carlos Nacul; Kathleen Mudie; Caroline C Kingdon; Taane G Clark; Eliana Mattos Lacerda
Journal:  Front Neurol       Date:  2018-11-27       Impact factor: 4.003

6.  Functional Status and Well-Being in People with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Compared with People with Multiple Sclerosis and Healthy Controls.

Authors:  Caroline C Kingdon; Erinna W Bowman; Hayley Curran; Luis Nacul; Eliana M Lacerda
Journal:  Pharmacoecon Open       Date:  2018-12

7.  Hope, disappointment and perseverance: Reflections of people with Myalgic encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Multiple Sclerosis participating in biomedical research. A qualitative focus group study.

Authors:  Eliana M Lacerda; Clare McDermott; Caroline C Kingdon; Jack Butterworth; Jacqueline M Cliff; Luis Nacul
Journal:  Health Expect       Date:  2019-01-10       Impact factor: 3.377

8.  Herpesviruses Serology Distinguishes Different Subgroups of Patients From the United Kingdom Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Biobank.

Authors:  Tiago Dias Domingues; Anna D Grabowska; Ji-Sook Lee; Jose Ameijeiras-Alonso; Francisco Westermeier; Carmen Scheibenbogen; Jacqueline M Cliff; Luis Nacul; Eliana M Lacerda; Helena Mouriño; Nuno Sepúlveda
Journal:  Front Med (Lausanne)       Date:  2021-07-05

9.  Prevalence of and risk factors for severe cognitive and sleep symptoms in ME/CFS and MS.

Authors:  Vageesh Jain; Amit Arunkumar; Caroline Kingdon; Eliana Lacerda; Luis Nacul
Journal:  BMC Neurol       Date:  2017-06-20       Impact factor: 2.474

10.  Cellular Immune Function in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS).

Authors:  Jacqueline M Cliff; Elizabeth C King; Ji-Sook Lee; Nuno Sepúlveda; Asia-Sophia Wolf; Caroline Kingdon; Erinna Bowman; Hazel M Dockrell; Luis Nacul; Eliana Lacerda; Eleanor M Riley
Journal:  Front Immunol       Date:  2019-04-16       Impact factor: 7.561
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