Michael T Pulley1, Rebecca Brittain2, Wayne Hodges2, Christine Frazier3, Leslie Miller4, Maria Matyjasik-Liggett4, Susan Maurer5, Melissa Peters4, Kimberly Solomon6, Alan R Berger1. 1. Department of Neurology, University of Florida, Jacksonville, Florida, USA. 2. Department of Nursing, UF Health Jacksonville, Jacksonville, Florida, USA. 3. Respiratory Therapy, UF Health Jacksonville, Jacksonville, Florida, USA. 4. Rehabilitation Services, UF Health Jacksonville, Jacksonville, Florida, USA. 5. Nutrition Services, UF Health Jacksonville, Jacksonville, Florida, USA. 6. Department of Neuroscience, University of Florida, Jacksonville, Florida, USA.
Abstract
INTRODUCTION: Amyotrophic lateral sclerosis (ALS) patients benefit from multidisciplinary care in an ALS clinic. We studied whether multidisciplinary care of ALS patients using the store and forward method of telemedicine was feasible and acceptable to patients and providers. METHODS: ALS patients seen in the University of Florida (UF) Jacksonville ALS clinic were eligible for our study. A trained telemedicine nurse performed and recorded a multidisciplinary assessment of the patient in their home. Clinic team members reviewed the assessments and provided recommendations, and the clinic director discussed the plan with the patient via videoconference. Patient and provider satisfaction was evaluated using surveys. RESULTS: Eighteen patients completed a total of 27 telemedicine visits. Patient satisfaction was excellent and provider satisfaction was very good. DISCUSSION: The store and forward method of telemedicine is an acceptable alternative to live telemedicine for the multidisciplinary care of ALS patients. This method of care may improve access to multidisciplinary care for this patient population. Muscle Nerve 59:34-39, 2019.
INTRODUCTION:Amyotrophic lateral sclerosis (ALS) patients benefit from multidisciplinary care in an ALS clinic. We studied whether multidisciplinary care of ALSpatients using the store and forward method of telemedicine was feasible and acceptable to patients and providers. METHODS:ALSpatients seen in the University of Florida (UF) Jacksonville ALS clinic were eligible for our study. A trained telemedicine nurse performed and recorded a multidisciplinary assessment of the patient in their home. Clinic team members reviewed the assessments and provided recommendations, and the clinic director discussed the plan with the patient via videoconference. Patient and provider satisfaction was evaluated using surveys. RESULTS: Eighteen patients completed a total of 27 telemedicine visits. Patient satisfaction was excellent and provider satisfaction was very good. DISCUSSION: The store and forward method of telemedicine is an acceptable alternative to live telemedicine for the multidisciplinary care of ALSpatients. This method of care may improve access to multidisciplinary care for this patient population. Muscle Nerve 59:34-39, 2019.
Authors: Sabrina Paganoni; Marc van de Rijn; Kristin Drake; Katherine Burke; Michael Doyle; Amy Swartz Ellrodt; Katherine Nicholson; Nazem Atassi; Fabiola de Marchi; Suma Babu; Juan Estrada; Lee H Schwamm; James D Berry Journal: Muscle Nerve Date: 2019-06-27 Impact factor: 3.217
Authors: Jinsy A Andrews; James D Berry; Robert H Baloh; Nathan Carberry; Merit E Cudkowicz; Brixhilda Dedi; Jonathan Glass; Nicholas J Maragakis; Timothy M Miller; Sabrina Paganoni; Jeffrey D Rothstein; Jeremy M Shefner; Zachary Simmons; Michael D Weiss; Richard S Bedlack Journal: Muscle Nerve Date: 2020-06-05 Impact factor: 3.852